My mum was diagnosed last yr with SCA17, after 6yrs previously Mistakingly diagnosed with MSA. We received diagnosis through a letter! And a brief mention from a gp who admitted knowing nothing about it. I have researched what I can, and I am terrified! Mum is my rock, the strongest most stubborn wonderful woman and friend and is none the wiser of what lies ahead she struggles through convinced that this time next yr she will walk again! My family are unaware of the seriousness also. I'm afraid to say anything. What do I do. Because watching her struggle, her wounds from falling, the frustration to just pick up a cup is killing me. Some one please help us
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