I am a 46 yr old single mum and I work 16 hrs as a checkout operative. I was diagnosed with ataxia in 2012 and there are times that I find it very hard to cope. The fatigue is overwhelming and I seem to get tired more quickly than I used to and sleep more frequently and for longer periods. The Ataxia Nurse at Sheffield, Diane, is wonderful and thinks I should reduce my hours to increase the quality of life,in fact I think that she thinks I should stop working altogether. I have seen my GP who is willing to help me in anyway and I am having a meeting with Personnel, but I am so worried about the whole thing, it all seems so final, and I feel too young to be contemplating giving up work and relying on benefits. Has anyone been through the process? How do you go about it?Should I claim ESA or JSA? How do you feel if work is reduced? Does it improve the quality of your life or do things slow down even more? Can you cope financially? Please help as I am so stressed and worried about it all, Thanks. Nicky.
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