Start again lol I see a neurologist who says i have SCA she doesn't know which one i have as i'm a bit of this and a bit of that . I only get to see her for short visits 2 times a year , how do i go about finding which label i am and what i have coming to me .My mum god bless her had twitchy feet and bad balance but was told it was bad circirlation and the hair in her inner ear had dropped out , i see so many of the same things happening to me , i don't know if she just never told me . I have the same problem if it is genetic do i tell my sensitive daughter that this is what you have coming to you but you just have to get on with it and make the best of it . So many new things happening and i don't know if that is down to ataxia or my immue system weakening as my friend says .I have tried looking on the inter net but not getting very far ! It would be nice if someone said ataxix can effect the pains in your body ie: mild to strong pains but constantly . Losing grip of things more often could mean progression of ataxia And that my walking could get to the point of getting harder to do . I suppose only nature has the answers but i would like help x
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