Hi. I’m looking online for information about cerebellum ataxia....
Researchers looking closer at protein clearance as the best way to treat SCA now.
Our studies suggest that disrupting the ATXN1-CIC interaction, either pharmacologically or with a small peptide, will bear fruit for the atax...
MRI of brain - cerebellum atrophy or normal?
I just had a genetic test done trying to figure out which type of Ataxia. Has anyone had an MRI show unremarkable brain with no leisons or ce...
New to Friedreich's Ataxia
I'm new here.. my nearly 13 yo son has just been diagnosed with FA....
Hello to hope. Thank you for this forum
This forum kept we awake way past a reasonable bedtime as I could not stop reading all the posts and replies. As a new member and newly diagn...
Has anyone found that they have lost their appetite, and lost weight, after an Ataxia diagnosis? I live in North London/Enfield, am 70, and w...
Hey am a 24 yr old lady I have cerebellum atrophy which affects my walking nd writing. So I don't have balance when walking nd I need someone...
My lovely husband
I have already got an appointment at the Ataxia clinic for December and Physio and an OT appointment is in the pipeline ....
A great day for Ataxia and other disorders.
Enhancing NAD+ and Sirtuin activity is something that could help slow many neurological disorders including many forms of Ataxia....
A new light shines on SCA3. Far infrared light therapy?
Someone pointed me to this awhile back, and I remember being intrigued, but I never followed through on studying it. Today, I caught some con...
Husband with cerebella ataxia
I’m 36 yrs old and my husband being 35 was diagnosed with cerebella ataxia 3 yrs ago. The last year he has deteriorated hugely....
Oxford's Neurogenetics Clinic
Her diagnosis is pending, but it is extremely likely she has an Ataxia of some description ( AFTER 2 years of being fobbed off by Psychiatris...
Looking for support / advise
My husband, 63, was diagnosed 3 months ago with Gait ataxia due to " moderate carabellar atrophy ". He also has sensory loss in his right arm...
How did I miss this?? A real CURE for some genetic SCAs may be close!!!
By close I mean within a decade. Especially if you have SCA3 which is already in the pipeline for treatment....
My husband has had c a for 13 years. At first it was progressing very slowly but recently his walking and balance have got quite bad....
UC50 assessment Tribunal
well today is the day, after having my assessment in April last year ( 2018 ), and had the mandatory appeal, with the same result zero points...
Today's herbal supplement of interest: Skullcap.
I believe that natural herbs that are proven in the lab to help clean out mis-folded proteins MAY help people with ataxia....
Today's supplement of interest. L-serine.
First I want to say thank you to the forum member Blueginger for bringing this supplement to my attention. Thank you :D...
SCA Type 6 & CBD oil
Hi.... I have Spinocerebellar Type 6 heredited from my biological mother.......
Hi all, I have been asked if I would attend a Medical School based in the hospital I attend if it helps the future generation why not. I was ...
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