SCA Type 6 & CBD oil
Hi.... I have Spinocerebellar Type 6 heredited from my biological mother.......
In 2013 I was diagnosed with a rare genetic illness called Spinal Cerebellar Ataxia 6 which is an inherited disease causing symptoms akin to ...
I was also diagnosed with Acquired Cerebellar Ataxia at 27, I'm registered Severely Sight Impaired, go Swimming, Wakeboarding, Canoeing so fa...
Death in the family and the Trehalose discussion.
Sorry I have been unresponsive and kind of out of it. My husband very unexpectedly died ( way 2 young ) and I have much to sort out....
Today's herbal supplement of interest: Skullcap.
I believe that natural herbs that are proven in the lab to help clean out mis-folded proteins MAY help people with ataxia....
Child with cerebellar atrophy ataxia 💔
The last 3 years his been having tests, for ataxia, nystagmus amongst other things....
3 sugars. Mannitol, trehalose, and now xylitol!?
Never ever try anything based on some random internet comments. Always talk to you doctor before trying anything new....
Drugs Vs Ataxia
I have cerebellar ataxia Just wanted to ask people about drugs, is Cannabis and Ecstasy forbidden for me?...
Perhaps Ataxia UK can find someone reputable who may have an opinion that many here might want to hear....
Having been diagnosed with progressive cerebellar ataxia 6 months ago last night I awoke 5.30a.m. with my left leg shaking so violently i cou...
64 with Friedreich's Ataxia
Hi My husband has Friedreich's Ataxia and due to the increasing severity of his condition he moved into a nursing home four years ago....
Morning hope all are well I have just been diagnosed with Cerebellar ataxia plus syndrome MIR SCAN showing disproportionate atrophy of the ce...
Hi I had a RTA in 1980
Hi, when I was 16 I was riding my motorbike as I usually did going as fast as possible. On this occasion I rounded a corner of a single track...
Confused and very concerned
I was up until eight weeks ago a very healthy person although I have had ongoing lower back pain for many years. Then suddenly I noticed a st...
How does an ataxia terminal stage look like?
Hi, My father is suffering from SCA. He began to have gait disturbances when he was 40....
Hi I’m Gemma and I’m 31 years old. About 2 years ago after a lot of hospital visits and scans etc.....
Partial Possible Treatment for some SCAs.
Tragically, it is most likely NOT a cure for people who are late in the stages of the disease or who have ataxia not related to a genetic pol...
Cerebellar ataxia through gluten intolerance ?
My mother was diagnosed with cerebellar ataxia in the early 1980's and I was diagnosed with the same condition in the late 1980's when my wif...
A response to 2Sunny regarding recent posts on trehalose and nicotinamide riboside
Ataxia UK, as the patient group for people affected by ataxia, cannot allow this site to be used to advise or persuade people ( explicitly or...
Cerebellar Ataxia of my 3 Year old son
I want to create a community for people who suffer from ataxia and their families, like this one, only in my country- Israel....
Start a Community