Death in the family and the Trehalose discussion.
neta in Ataxia UK 6 months agoPOPULAR
Sorry I have been unresponsive and kind of out of it. My husband very unexpectedly died ( way 2 young ) and I have much to sort out....
neta in Ataxia UK 7 months agoPOPULAR
Perhaps Ataxia UK can find someone reputable who may have an opinion that many here might want to hear....
SM5662RS in Ataxia UK 2 months agoPOPULAR
Hello I am posting on behalf of my brother who after many tests was diagnosed as having Cerebral Ataxia. He has all the symptoms balance, vis...
Partial Possible Treatment for some SCAs.
2Sunny in Ataxia UK 8 months agoPOPULAR
Tragically, it is most likely NOT a cure for people who are late in the stages of the disease or who have ataxia not related to a genetic pol...
petbar in Ataxia UK 5 months ago
Having been diagnosed with progressive cerebellar ataxia 6 months ago last night I awoke 5.30a.m. with my left leg shaking so violently i cou...
How does an ataxia terminal stage look like?
live_your_life in Ataxia UK 5 months ago
Hi, My father is suffering from SCA. He began to have gait disturbances when he was 40....
A response to 2Sunny regarding recent posts on trehalose and nicotinamide riboside
SueMillman in Ataxia UK 7 months ago
Ataxia UK, as the patient group for people affected by ataxia, cannot allow this site to be used to advise or persuade people ( explicitly or...
Child with cerebellar atrophy ataxia 💔
Mango1983 in Ataxia UK 2 months ago
The last 3 years his been having tests, for ataxia, nystagmus amongst other things....
ataxia and love? how does it work?
neta in Ataxia UK a year agoPOPULAR
I find that sadly that my husband's way of dealing with my ataxia is to make believe its not happening....
Exercise and Ataxia
isabelalfaiate in Ataxia UK a year agoPOPULAR
Dear all, Here is some news of my progress. I continue to do my exercises daily and now feel much more independent....
Trehalose and nicotinamide riboside as treatments for ataxia
However, the long term safety and efficacy has not yet been proven for either Cabaletta ( trehalose ) or Niagen ( nicotinamide riboside ) so ...
Shahidzak in Ataxia UK 3 months ago
Morning hope all are well I have just been diagnosed with Cerebellar ataxia plus syndrome MIR SCAN showing disproportionate atrophy of the ce...
Oral Ingestion of Trehalose. A human clinical trial!!!
JP66 in Ataxia UK 7 months ago
Ladies and Gentelman, I am sorry that this study has not been published on every ataxia, huntington, parkinson, etc forum, but this morning I...
Last Post - Two Years Ago
Matelot-RN in Ataxia UK 7 months ago
It's been two years since my last post - possibly more. Suffice to say time does pass quick when your memory is not working 100% and even sim...
Cerebellar Ataxia of my 3 Year old son
Rosenfeld in Ataxia UK 5 months ago
I want to create a community for people who suffer from ataxia and their families, like this one, only in my country- Israel....
Why keep patient notes!
springlove in Ataxia UK 2 months ago
There was no mention of ataxia, in fact no questions at all and I didn't bother to tell him....
64 with Friedreich's Ataxia
Mary_Dixon in Ataxia UK 2 months ago
Hi My husband has Friedreich's Ataxia and due to the increasing severity of his condition he moved into a nursing home four years ago....
Reasearch medical marihuana for ataxia
thenwg in Ataxia UK 7 months ago
Hello. These times of news sharing it is hard to not notice all the videos and reports on what tremendous effects CBD oil and cannabis has on...
Trehalose support growing.
JP66 in Ataxia UK 6 months ago
These are email responses to my request for help initiating a clinical trial of orally ingested trehalose. Of interest I would note that one ...
Newley diagnosed with cerebral ataxia
Chris501 in Ataxia UK a year agoPOPULAR
I can't handle this. I was diagnosed a year ago and am finding it very hard to accept that I can't do the things that I used to do such as go...
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