Death in the family and the Trehalose discussion.
Sorry I have been unresponsive and kind of out of it. My husband very unexpectedly died ( way 2 young ) and I have much to sort out....
In 2013 I was diagnosed with a rare genetic illness called Spinal Cerebellar Ataxia 6 which is an inherited disease causing symptoms akin to ...
Perhaps Ataxia UK can find someone reputable who may have an opinion that many here might want to hear....
I was also diagnosed with Acquired Cerebellar Ataxia at 27, I'm registered Severely Sight Impaired, go Swimming, Wakeboarding, Canoeing so fa...
Child with cerebellar atrophy ataxia 💔
The last 3 years his been having tests, for ataxia, nystagmus amongst other things....
Partial Possible Treatment for some SCAs.
Tragically, it is most likely NOT a cure for people who are late in the stages of the disease or who have ataxia not related to a genetic pol...
Having been diagnosed with progressive cerebellar ataxia 6 months ago last night I awoke 5.30a.m. with my left leg shaking so violently i cou...
How does an ataxia terminal stage look like?
Hi, My father is suffering from SCA. He began to have gait disturbances when he was 40....
A response to 2Sunny regarding recent posts on trehalose and nicotinamide riboside
Ataxia UK, as the patient group for people affected by ataxia, cannot allow this site to be used to advise or persuade people ( explicitly or...
Morning hope all are well I have just been diagnosed with Cerebellar ataxia plus syndrome MIR SCAN showing disproportionate atrophy of the ce...
64 with Friedreich's Ataxia
Hi My husband has Friedreich's Ataxia and due to the increasing severity of his condition he moved into a nursing home four years ago....
Trehalose and nicotinamide riboside as treatments for ataxia
However, the long term safety and efficacy has not yet been proven for either Cabaletta ( trehalose ) or Niagen ( nicotinamide riboside ) so ...
Hi I had a RTA in 1980
Hi, when I was 16 I was riding my motorbike as I usually did going as fast as possible. On this occasion I rounded a corner of a single track...
Cerebellar Ataxia of my 3 Year old son
I want to create a community for people who suffer from ataxia and their families, like this one, only in my country- Israel....
Drugs Vs Ataxia
I have cerebellar ataxia Just wanted to ask people about drugs, is Cannabis and Ecstasy forbidden for me?...
Oral Ingestion of Trehalose. A human clinical trial!!!
Ladies and Gentelman, I am sorry that this study has not been published on every ataxia, huntington, parkinson, etc forum, but this morning I...
Last Post - Two Years Ago
It's been two years since my last post - possibly more. Suffice to say time does pass quick when your memory is not working 100% and even sim...
Trehalose support growing.
These are email responses to my request for help initiating a clinical trial of orally ingested trehalose. Of interest I would note that one ...
Cerebellar ataxia through gluten intolerance ?
My mother was diagnosed with cerebellar ataxia in the early 1980's and I was diagnosed with the same condition in the late 1980's when my wif...
Reasearch medical marihuana for ataxia
Hello. These times of news sharing it is hard to not notice all the videos and reports on what tremendous effects CBD oil and cannabis has on...
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