Death in the family and the Trehalose discussion.
neta8 months agoPOPULAR
Sorry I have been unresponsive and kind of out of it. My husband very unexpectedly died ( way 2 young ) and I have much to sort out....
SM5662RS4 months agoPOPULAR
Hello I am posting on behalf of my brother who after many tests was diagnosed as having Cerebral Ataxia. He has all the symptoms balance, vis...
neta9 months agoPOPULAR
Perhaps Ataxia UK can find someone reputable who may have an opinion that many here might want to hear....
wibblywobbly2 months ago
can anyone tell me which antidepressants they're taking please. I really need to go on some again....
Partial Possible Treatment for some SCAs.
2Sunny9 months agoPOPULAR
Tragically, it is most likely NOT a cure for people who are late in the stages of the disease or who have ataxia not related to a genetic pol...
Child with cerebellar atrophy ataxia 💔
Mango19834 months ago
The last 3 years his been having tests, for ataxia, nystagmus amongst other things....
petbar7 months ago
Having been diagnosed with progressive cerebellar ataxia 6 months ago last night I awoke 5.30a.m. with my left leg shaking so violently i cou...
How does an ataxia terminal stage look like?
live_your_life7 months ago
Hi, My father is suffering from SCA. He began to have gait disturbances when he was 40....
A response to 2Sunny regarding recent posts on trehalose and nicotinamide riboside
SueMillman9 months ago
Ataxia UK, as the patient group for people affected by ataxia, cannot allow this site to be used to advise or persuade people ( explicitly or...
Stagger2 months ago
I was also diagnosed with Acquired Cerebellar Ataxia at 27, I'm registered Severely Sight Impaired, go Swimming, Wakeboarding, Canoeing so fa...
Trehalose and nicotinamide riboside as treatments for ataxia
However, the long term safety and efficacy has not yet been proven for either Cabaletta ( trehalose ) or Niagen ( nicotinamide riboside ) so ...
Shahidzak5 months ago
Morning hope all are well I have just been diagnosed with Cerebellar ataxia plus syndrome MIR SCAN showing disproportionate atrophy of the ce...
ataxia and love? how does it work?
netaa year agoPOPULAR
I find that sadly that my husband's way of dealing with my ataxia is to make believe its not happening....
Exercise and Ataxia
isabelalfaiatea year agoPOPULAR
Dear all, Here is some news of my progress. I continue to do my exercises daily and now feel much more independent....
Cerebellar Ataxia of my 3 Year old son
Rosenfeld7 months ago
I want to create a community for people who suffer from ataxia and their families, like this one, only in my country- Israel....
64 with Friedreich's Ataxia
Mary_Dixon4 months ago
Hi My husband has Friedreich's Ataxia and due to the increasing severity of his condition he moved into a nursing home four years ago....
Oral Ingestion of Trehalose. A human clinical trial!!!
JP668 months ago
Ladies and Gentelman, I am sorry that this study has not been published on every ataxia, huntington, parkinson, etc forum, but this morning I...
Last Post - Two Years Ago
Matelot-RN8 months ago
It's been two years since my last post - possibly more. Suffice to say time does pass quick when your memory is not working 100% and even sim...
Hi I had a RTA in 1980
StephenJG4 months ago
Hi, when I was 16 I was riding my motorbike as I usually did going as fast as possible. On this occasion I rounded a corner of a single track...
Trehalose support growing.
These are email responses to my request for help initiating a clinical trial of orally ingested trehalose. Of interest I would note that one ...
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