Just to give some possitive feedback on this drug. Aaron has been on this now for 2 months now. He has been having 2 weekly injections instead of monthly, and, keeping everything crossed, it appears to be working. Having suffered from 5 months old and not responding to any medication, except 2 hourly nebs, I feel elated!!!!
Aaron had given up on life and had reached the stage where he was refusing medication, he is nearly 15, 6ft and 15 stone!! Not easy to argue with. He was ""ready to die""! Although he is not possitive that this will work for long (Terbutaline sub-cut, theophllyn, steroids ony worked for 15 months max), he is at least taking all his other meds!
I think we may have turned a corner, though I am sure there will be many more bends along the way.