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Nucala side effects?

Headoverheels profile image
10 Replies

Hi. I haven't posted for a few months as I have been very pleased with the results of being on Nucala. On Friday I had my 6th monthly injection. On the same night I experienced a nightmare...huge black spiders multiplying at a rapid rate on the walls. On Saturday night it was lizards. Whilst upstairs on Sunday I saw my husband but he was downstairs!

I rang the Respiratory Clinic yesterday hoping they might say it can be a side effect but no one else seems to have had this problem. I am now waiting to hear from the hosptial chemist who will check all my medications.

I know this is a shot in the dark but has anyone experienced hallucinations with Nucala?

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Headoverheels
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10 Replies
Patk1 profile image
Patk1

Sorry I can't help.just to say it sounds terrifying x

Headoverheels profile image
Headoverheels in reply to Patk1

Yes it will be worrying if the hospital say my meds aren't the cause of the problem. Nice of you to reply ...thank you .

Poobah profile image
Poobah

That sounds really distressing. The only hallucinations I experienced was a result of antibiotics, and I had taken them before, but out of the blue had a bad reaction. I imagined my pillows and bed were infested with rats; it seemed so real. My GP was less than sympathetic and said that I'd be hearing voices next, but he did change the antibiotics.

Even though hallucinations aren't listed as a known side effect of Nucala, that doesn't mean it's not the cause. Stick to your guns and request that the instance is reported on the yellow card system via the pharmacist.

I know Montelukast can cause hallucinations, but the pharmacist would have checked your current medications, just in case something else was triggering your hallucinations.

Your prescribing doctor should be monitoring you after reporting your experience, so follow up with them. They do have a duty of care.

All the best and keep us posted. xx

Headoverheels profile image
Headoverheels

Thank you Poobah. That sounds worse than big black spiders! Montelukast was mentioned when I contacted the hospital, apparently they are well known for hallucinations. I do take one every evening but have been on them for about 3 years with no problems.

It really is a conundrum. I don't particularly want to change from Nucala... it could be a case of from the frying pan into the fire.

I look forward to hearing from the hospital x

Itswonderful profile image
Itswonderful

goodness! Are you still experiencing this?

Headoverheels profile image
Headoverheels in reply to Itswonderful

I am relieved to say the hallucinations have gone. They happened over the weekend after the injection on the Friday. On Sunday evening I saw black spots on the carpet at least it wasn't spiders! I am dreaming more than ever at the moment ....just don't know what's causing the disturbance. I am not looking forward to my next injection.

Itswonderful profile image
Itswonderful in reply to Headoverheels

Oh Headoverheels. I'm hoping it isn't the biologic so you can get continue to get the benefits of it. Let us know how it goes? Best wishes.

Headoverheels profile image
Headoverheels in reply to Itswonderful

Many thanks Itswonderful...I will keep in touch. Best wishes.

hoven profile image
hoven

looking on a patient review site I saw one mention of hallucinations.

Headoverheels profile image
Headoverheels in reply to hoven

Thank you...

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