Pseudomonas infection.

[falcon68]

Good morning all, l have had a Pseudomonas infection for quite a time and been given stronger antibiotics to get rid of it. Unfortunately they have not done the trick, so now l am on a Nebuliser twice a day and will have to be on it for a year, apparently. Is there anyone else that has been on a Neb for a long period and did you find it helpful?

[sassy59]

My husband doesn’t have pseudomonas but has used a nebuliser twice a day for years. It’s very beneficial for his COPD. X

[peege]

Using the nebuliser will get those special antibiotics right to your lungs to get rid of as much of the pseudomonas as possible. Good luck, wishing you all the best with it (I've never used one myself, only administered them).

[Shonkie]

I have just had the same experience with long term pseudomonas which affected me really badly. After 2 days of the nebuliser I was much better with a lot less congestion and no coughing. After 3 months I am much better with no sideffectsn from the medication.

[PAP48]

I have used a nebuliser over prolonged periods for pseudomonas. It’s the only way for me that the infection is controlled and personally I’d rather have the drug going directly into my lungs than tablets hitting my stomach and causing other side effects. I had no side effects the nebulised method. Hope this helps.

[Lfcpremier]

Hi. Really interested as I'm in a similar situation. I have a lot of mucus & wheezing but I'm not very ill. Consultant has offered colomycin via a nebuliser as I can't tolerate ciprofloxacin. Please let me know how you get on. Good luck!

[Mooka]

I have nebulised colomycin for over five years for pseudomonas. I had a two week course of iv antibiotics before starting the nebuliser to get the pseudomonas numbers down first. I’ve had some infections during that time but not, to my knowledge, pseudomonas. My respiratory doctor won’t let me come off the nebuliser but I’m immunocompromised so that makes a difference. I hope it works for you.

[lvn0619 in reply to Mooka]

Really important that you also nebulize with albuterol to open the small air sacs to get meds in followed by either 3% or 7% saline to loosen mucous. Then do your air way clearance and finally nebulize your ABX . This way it will get to the small air sacs also. Having Bx requires diligence in our routine nebs atleast twice daily followed by airway clearance to keep pseudomonas and other bacteria numbers down. I hope this helps.

[Pepsi003]

Hello, I was diagnosed with bronchiectasis and pseudomonas four years ago. I cough up large amounts of sputum. I have never been offered a nebuliser, but the consultant was very keen to put me on intravenous ciprofloxacin which I declined as I have found that drug has bad side effects. If I were you I would try the nebuliser. Best wishes.

[Warrior4104 in reply to Pepsi003]

Hi. I have same issues as yours. I have a bad pseudomonas infection every month. How do you manage it?

[Pepsi003 in reply to Warrior4104]

Hello, I have a sputem test every six months and it always shows active pseudomonas infection. However I have not taken any anti - biotics since I was given ciprofloxacin four years ago. It did seem to ease the symptoms at first but once the course was finished the symptoms came back just the same. I had side effects while on the tablets and I now have tinnitus which I suspect is a side effect. I now spend 30 minutes two or three times a day clearing my chest using deep breathing techniques , and to get as much clearance of mucous as possible I do some deep breathing sitting up and some lying down on my side. I do get a pain and tenderness in my chest before I clear the mucous but after the mucous clearing I do feel better. I do find however that my daily life is restricted as I need to fit in the mucous clearing and sometimes I suddenly need to clear it sooner than I was expecting, so no anti-biotics at present but the bronchiectasis does rule my life. (I am nearly 70 now, however, so at least I am retired and don't have to go to work).

Best wishes

[Germantara]

I hope you get well soon

[poppyshola]

Hi there... yes me ... I'm on nebulised ceftazidime which smells like cat pee and taste like it probably does too.. At first I found it a nightmare to tolerate but its benefits are quite noticeable now ... I Don't know how long I'll be on it as I'm waiting for them to let me know .. but I think by far its been the most effective yet ... so it'll very likely be forever until it isn't anymore..Colomycin was my first nebulised medicine and I tolerated it for a long time but suddenly my stomach no longer liked it ... I don't know why as it goes straight to the lungs but ?? It didnt.

Have been on a combination of 2 different meds when I became poorly by IV

But this must be a new strategy ... as said it goes straight into the lungs so it makes sense ...

I too have Pseudomonas , I thought it went away as once it didn't show up on my results but I think it was probably laying low somewhere .. because apparently its one of those pesky little things that likes to hang around .. am I'm colonised ..I guess like many of us here..

You'll find Littlepom is the quite the expert on here from experience having had her problems since a child like myself ...

Take care and try not to worry ... x

[falcon68 in reply to poppyshola]

Hi poppyshola l have started nebulising colomycin and found it caused worst than normal breathlessness. I spoke to respiratory nurse at the hospital. She told me to use my salamol inhaler 20 mins before l do the neb. Tried that this morning and my chest didn't feel as bad. I am very wheezy though...did you find that? I have got to use the neb for a year and they will probably review it.

[poppyshola in reply to falcon68]

Hi there.. yes you must use your salmon inhaler to prevent you having a bronch spasm ... I think it's quite normal to feel breathless at first because you are disturbing the gunk deep down that's been laying there undisturbed for a little while .. . You need to try to expel whatever lies deep within your lungs so that your Colomycin can start to work on making your lungs clearer ... then it'll get easier to breathe your Colomycin in.. Yes it's very likely you'll be using your nebuliser a year or more later ... it really is the easiest and by far the quickest way of distributing any meds and the most effective as its going straight in to your lungs... try to persevere 😣 and you'll hopefully see the difference soon x