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Questions about Trimbow

HerLadyship profile image
15 Replies

Hi everyone.. I'm new to the group and hoping for some tips on managing COPD. I had been on the Trilegy inhaler and then a few weeks ago moved on to Trimbow. I'm not sure that it's helping ...if anything I'm more breathless than before.Has anyone else found this?

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HerLadyship profile image
HerLadyship
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15 Replies
Bingo88 profile image
Bingo88

Good morning. Sadly all Inhalers don't help everyone. I was tried on Trimbow and started coughing a lot more after being on it for 3 weeks So went back to my Trelegy. I should speak to whoever prescribed the Trimbow. Brian

HerLadyship profile image
HerLadyship in reply toBingo88

Thanks Brian ... I'll go back and explain to the doc after Christmas (if I can get to see one)... maybe something else would suit better

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gloasra in reply toBingo88

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CDPO16 profile image
CDPO16

Hi and welcome. With inhalers it tends to be try and see. I went through at least 6 different ones before finding one that helped me. It's possible that the Trimbow doesn't suit you. After the Christmas break let your doctor or nurse know how you are feeling

HerLadyship profile image
HerLadyship in reply toCDPO16

Thank you so much for replying ... I know this is a busy time of year!! Yes ... I'll definitely go back to the doc .. there's surely something that suits better

Spacecat1 profile image
Spacecat1

Speak to your gp we are all different lots of people suit trimble I didn't. GP put me on fostair and it suited. I did my best with Trimbow but fostair is totally fifteenth.

HerLadyship profile image
HerLadyship in reply toSpacecat1

My goodness.... you've had a hard time finding an inhaler that suits...glad you got sorted

Jansy16 profile image
Jansy16

I'm on Trimbow & don't find it helps anymore. Hoping my Dr will try me on something else. I also suffer with anxiety which doesn't help.

HerLadyship profile image
HerLadyship in reply toJansy16

Hi ....I tend to be anxious also when breathless ...and when I go for a walk I'm inclined to be scared ... always have the reliever with me.

Biker88 profile image
Biker88

Have you been shown correct breathing techniques, most people only shallow breath using the upper chest muscles, it the diaphragm which is the main muscle for breathing. Practicing diaphragm breathing and have the out breath twice the length of the in breath can help if you get breathless. I have been prescribed a very low dose of Oramorph for my breathlessness, this is a standard NHS treatment and certainly helps me, might be worth mentioning to your GP if you are not already on it.

HerLadyship profile image
HerLadyship in reply toBiker88

Thank you Biker88 ... I'll mention this to GP

angie26 profile image
angie26 in reply toBiker88

Hi my doctor prescribed oramorph not for my copd but for chronic pain due to osteoporosis fractures, however reading the accompanying leaflet with the oramorph it states ”do not use if you suffer with COPD”. I’m afraid I was worried about that!

Biker88 profile image
Biker88 in reply toangie26

Hi Angie, Oramorph used for pain relief is at a higher dose and higher doses can cause breathing issues. But the low dose for breathlessness does not also it doesn’t affect driving etc which the high dose can. There is NHS literature on the use of Oramorph and breathlessness, I initially declined oramorph when it was first offered due to my fear of addiction, driving ban etc. but after seeing the NHS advice and speaking to people with COPD who also took it I decided to give it ago

leo60 profile image
leo60

Hello Your Ladyship! I was on Trelegy a while back and after a time it wasn't helping anymore so I was prescribed Trimbow. After a day of not being able to breathe I switched back , but having been reassured I tried it again and it has been great! But as everyone else has said, we are all different.

I hope you and your doctor find something that suits you quickly :)

Happy New Year xx

HerLadyship profile image
HerLadyship in reply toleo60

Thank you Leo60 ...maybe I should give Trimbow a bit longer ... happy New year to you also!

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