Eosinophilic Asthma : My consultant at... - Lung Conditions C...

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Eosinophilic Asthma

G410way profile image
17 Replies

My consultant at the hospital suggested I have this type of asthma. Apparently your white blood cells attack your lungs. I was put on a one year study and I’m now permanently on the injection once a month. In the US the brand name is Nucala, here it’s Mepolizumab.

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G410way profile image
G410way
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17 Replies
Patk1 profile image
Patk1

Hope Yr benefitting frm it.im on fasenra=benrazilumab

G410way profile image
G410way in reply toPatk1

Very similar I think. ❤️

Linsforbes profile image
Linsforbes

I’ve been on Trial here Benralizumab, but it was obvious to me I was on the placebo unfortunately. Would like to try the real thing.

Alberta56 profile image
Alberta56

Glad this seems to be helping.

Germantara profile image
Germantara

I hope this does help you and you and feel better

G410way profile image
G410way in reply toGermantara

🤗

Sparkimoore profile image
Sparkimoore

Yes, I’m on that since it was first licensed back in 2017?? Saved my life, no doubt about it. Absolutely remarkable medication!

I’m now on a triple dose of this each month as my Eucinophillic asthma is associated with EPGA/ Churg STRAUSS Syndrome, but NICE have not licensed it in uk for this but luckily in in Jersey, & we’re not in NHS, so was able to get it.

Absolute lifesaver! I get some considerable fatigue & do feel pretty unwell for 4-5 days afrer injection but that’s a small price to pay each month to be able to BREATHE!

Good Luck!

Rose

G410way profile image
G410way in reply toSparkimoore

Hi Rose, I don’t have any soreness or reaction to mepolizumab.

Sparkimoore profile image
Sparkimoore in reply toG410way

That’s GREAT! I didn’t notice a consistent improvement for several months, so don’t be despondent if you don’t see an improvement at once.

Good luck!

Annunnaki profile image
Annunnaki

Hi. I hope the new meds works for you. Can I ask which Consultant and which Hospital please? I'm in central London. So if it's outside it's no use to me. But others might benefit.

G410way profile image
G410way in reply toAnnunnaki

Hi , I live in Derby. It’s certainly something you could ask your consultant about. x

Annunnaki profile image
Annunnaki in reply toG410way

Ok. Having issue with that at present. Thank you.

Kristicats profile image
Kristicats

my husband has been on this injection without any good results unfortunately . But horses for courses. Perhaps he’s not got that type of asthma after all.

Patk1 profile image
Patk1 in reply toKristicats

Have they not suggested other biologics? X

Kristicats profile image
Kristicats in reply toPatk1

In short No. ATM trying him back on high dose prednisone again. I suppose will reduce gradually again. He’s been really struggling for over 2 years now and has had to pack up work and our life is now severely restricted.Nothing seems to help and I don’t think they know what’s causing such chronic asthma . It’s not COPD

🤷‍♀️

Patk1 profile image
Patk1 in reply toKristicats

Oh dear.foes he have hi eosinophils+ inflammatory markers x

Kristicats profile image
Kristicats in reply toPatk1

Up and down at each test.

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