Online PR course via an app.Straw poll

[PaulineHM]

I am looking for your help please.

Our local NHS respiratory dept is thinking of offering an online PR course ( exercise and education videos ) for 6 sessions and with initial session and final session support from a health care professional.

If they go ahead with it it will be offered via an App.

Could you help with a straw poll you good folk please ?

A. Is this a programme you would like to be offered where you live?

B. Would you participate if this was to be your first experience of a PR course?

C. If you have already attended a PR course is this something you would be happy to use to brush up your exercise tolerance levels and renew educational information ?

Thank you….

[Troilus]

a) yes

b) yes

c) n/a

[PaulineHM in reply to Troilus]

Thank you.

[crashdoll]

A) yes, definitely!

B) I have had PR but I would happily have this as my first experience.

C) I would really like this, it would be very helpful.

[PaulineHM in reply to crashdoll]

Thank you !

[peege]

A yes

B not sure, the presence of experienced respiratory physiotherapists was very helpful at my PR in 2013

C yes, most definitely ××

[PaulineHM in reply to peege]

Thank you, very helpful comment too. I agree that having the Face to Face support is helpful, especially for first timers. 🥳

[beech]

yes, yes and yes

I did enjoy the input of the respiratory physios personally, the in-person encouragement to do more, and the social aspect of mixing with others with similar issues to myself.

But if that couldn’t happen in a group situation and only online, anything has to be better than nothing! 👍

[PaulineHM in reply to beech]

Thank you, your additional comments are very helpful.

[Alberta56]

I'd sign up for such a course, though I would much prefer an in the flesh refresher course. I find it easier to get motivated in a group with real tutors.

[PaulineHM in reply to Alberta56]

Thank you, that is helpful.

[Llegkt1]

I have recently been offered the online course but I said I would prefer to go in person...I'm on the waiting list but it's only 1hr a week for 8 weeks unless I want to travel to another area x x

[PaulineHM in reply to Llegkt1]

Thank you, that is interesting. How long is the waiting list for Face to face, do you know ?

[Llegkt1 in reply to PaulineHM]

I'm not sure they rang me to do an over the phone assessment and just sid I would be pit on the waiting list...I'm in Washington uk x

[Patk1]

A YES B YES

C YES

[Ice2010]

yes

[Beshmeta]

yes, yes and n/a

[Izb1]

A yesB yes

C n/a

I am finding it hard getting around so would benefit from this.

[PaulineHM in reply to Izb1]

Thank you, awww, is there any chance a respiratory physio can help you at home ?

[Izb1 in reply to PaulineHM]

My problem at the moment is my hip, am in so much pain can't get out and about and not sleeping which doesn't help. With the lack of exercise my lungs are not so good so think i would benefit from an online course x

[Bootle-boy]

A, B and C. I did one some years ago and found it very useful.

[PaulineHM in reply to Bootle-boy]

Thank you.

[gedney]

Did this course on line in COVID did not find it good, felt I needed motivation of other people in group setting

[PaulineHM in reply to gedney]

Thank you, that is interesting. Perhaps group on line would suit you better if face to face isnt available ?

[DizzyLiz57]

Yes, yes , N/A

Great idea!

[PaulineHM in reply to DizzyLiz57]

Thank you.

[LilsM]

a. Yes

b. Yes

c. N/a

[PaulineHM in reply to LilsM]

Thank you.

[Mons]

I did a PR course at a community centre. I found it really beneficial and there was 1 nurse and 1 physio plus healthcare guests to talk on a specialised subject sometimes. It was really helpful and reassuring talking to other people with similar problems. The exercise schedule was set for whatever level the person was capable of. I met some lovely people and we also had a laugh too. I would 100% recommend it to anyone. I also would do an online course happily. I actually missed going twice a week when the course finished, and I never expected the experience to be such a positive one. Definitely do the online course if you can. Good luck.

[PaulineHM in reply to Mons]

Thank you, what a lovely testimonial and so pleased it made a real difference. I have done both, but not used a stand alone app for it. I am a patient rep here in Gloucestershire and the NHS here is thinking about introducing the app for patients to use. So checking out peoples thoughts on using an app. Keep Well.

[Foxy79]

hi Pauline

I'm foxy79 can you please say what is this pr course can anyone do the course I have done rehabilitation course in the past but not PR is it something you can do like exercises or 9-4. Thank you for everything foxy

[JPC2]

a) yes

b) yes

c) n/a

[Currygirl]

Hi I would be very interested in anything that helps I have never been offered any kind of pulmonary rehab I live way down in Cornwall UK thank jane

[PaulineHM in reply to Currygirl]

Thank you, shocked that there is no PR there for you. ! Hope you get something before too long.

[Currygirl in reply to PaulineHM]

Thank you Pauline any suggestions, as it is I'm so depressed right now and also just healing from a knee replacement. I don't go anywhere or see anyone apart from husband he's really good at helping in house x

[Ergendl]

Yes, yes, and yes; though it really helped having physios around when I did my first PR course, to show me how to correct my overbreathing.

[PaulineHM in reply to Ergendl]

Thank you , yes that is where Face to Face PR has the advantage over an app doesn't it ?

[canthinkofaname]

A. Yes

B. Yes

C. Yes

I did in line PR during lockdown. Although it was through an app, I could see and hear the other participants, so it felt very inclusive. Overall an enjoyable experience.

[PaulineHM in reply to canthinkofaname]

Thank you, fantastic!!! Pleased you had a good experience.

[Fircone]

A yes

B I previously attended a PR course 13 years ago.

C I would love to do an online course but it’s not available in my area. I’ve been invited to attend another PR course but as I am a full time carer for my husband who is paralysed from a brain injury I’m unable to go. It could make quite a difference to managing my copd if I was able to do it online.

[PaulineHM in reply to Fircone]

Thank you and sorry to hear about your husband. Yes I think online would be really helpful for people in your situation. Keep well.

[Hidden]

Yes I would like it in my area and would use the app because I have constantly been refused it here in Warwick

[PaulineHM in reply to Hidden]

Sorry to hear that. Can I ask why you have been refused?

[Hidden in reply to PaulineHM]

I think that it is a postcode lottery. My doctors don’t know anything about it.Mostly it seems that people with copd can get it. I do know that some bronchs have had it but very hit and miss

[O2Trees]

A. Yes

B. N/A

C. Yes

[PaulineHM in reply to O2Trees]

Thank you.

[Didobetty1]

Re the course, I would definitely sign up for it.

[PaulineHM in reply to Didobetty1]

Thank you.

[Mooka]

a yes

B yes

C n/a

[PaulineHM in reply to Mooka]

Thank you.

[Karenanne61]

A) YesB) Probably not as I was horrified at the suggestion of pr when I was offered it initially. I was in a coma following resp. failure and excercise was the last thing on my mind. It was only the presence of amazing resp physios who kept me motivated.

C) I would definitely look at a pr app to see how it fitted into my existing exercise schedule and input from pr professionals would be invaluable.

[PaulineHM in reply to Karenanne61]

Thank you so much, so sorry to read that you were initially so unwell but delighted that PR and physios really helped.

[Little_River]

A Yes

B Yes

C Over the last 10 years I have completed both a physical and app based PR course. I found both very useful. I did find the social interaction of the physical course beneficial but the app based course provided a lot of flexibility.

[PaulineHM in reply to Little_River]

Thank you.

[colourpassion]

C yes, A +B better than nothing but i believe personal input encouragement from a health professional is important for first time.

[PaulineHM in reply to colourpassion]

I do agree with you. Thank you.

[Maggity]

A: yesB: NA

C: yes

[PaulineHM in reply to Maggity]

Thank you.

[Morrison10]

I pay a private physio for hour treatment twice weekly. I was born with PCD, and will be 88 in July. Never had any real guidance or treatment from NHS. Had to find consultant who was interested in PCD by paying to look on line 4 years ago of qualifications and interests of all in Midlands. Unsure how I could join your good work.

[PaulineHM in reply to Morrison10]

Sorry to read that you have struggled to get care over the years. Just keeping as well as possible can be a real help. Keep well.

[corriena]

I would take part but i would much prefer in person. The people we meet at the meetings help to make us feel not so alone with are illness. Helps us make friends who understands what we are going through and can shear idears of what we can do to help arselves.

[PaulineHM in reply to corriena]

Thank you.

[saltyskies]

1. Yes!

2. Yes

3. Once I’ve been to PR I would probably use such a thing to brush up

Sounds like a great idea alongside conventional in-person programmes, for those who can’t or don’t want to go in person

[Hazel-mary]

ye , yes and yes.

I did a face to face recently and found it really good and made lovely friends.

There was a physio and nurse at the sessions and they were really helpful and gave lots of helpful information

Hazel x

[PaulineHM in reply to Hazel-mary]

Thank you.

[sneezy23]

a yes

b yes

c n/a

[PaulineHM in reply to sneezy23]

Thank you.

[Nash1962]

A Yes B Yes

[PaulineHM in reply to Nash1962]

Thank you.