Online PR course via an app.Straw poll - Lung Conditions C...

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Online PR course via an app.Straw poll

PaulineHM profile image
68 Replies

I am looking for your help please.

Our local NHS respiratory dept is thinking of offering an online PR course ( exercise and education videos ) for 6 sessions and with initial session and final session support from a health care professional.

If they go ahead with it it will be offered via an App.

Could you help with a straw poll you good folk please ?

A. Is this a programme you would like to be offered where you live?

B. Would you participate if this was to be your first experience of a PR course?

C. If you have already attended a PR course is this something you would be happy to use to brush up your exercise tolerance levels and renew educational information ?

Thank you….

68 Replies
Troilus profile image
Troilus

a) yes

b) yes

c) n/a

PaulineHM profile image
PaulineHM in reply to Troilus

Thank you.

crashdoll profile image
crashdoll

A) yes, definitely!

B) I have had PR but I would happily have this as my first experience.

C) I would really like this, it would be very helpful.

PaulineHM profile image
PaulineHM in reply to crashdoll

Thank you !

peege profile image
peege

A yes

B not sure, the presence of experienced respiratory physiotherapists was very helpful at my PR in 2013

C yes, most definitely ××

PaulineHM profile image
PaulineHM in reply to peege

Thank you, very helpful comment too. I agree that having the Face to Face support is helpful, especially for first timers. 🥳

beech profile image
beech

yes, yes and yes

I did enjoy the input of the respiratory physios personally, the in-person encouragement to do more, and the social aspect of mixing with others with similar issues to myself.

But if that couldn’t happen in a group situation and only online, anything has to be better than nothing! 👍

PaulineHM profile image
PaulineHM in reply to beech

Thank you, your additional comments are very helpful.

Alberta56 profile image
Alberta56

I'd sign up for such a course, though I would much prefer an in the flesh refresher course. I find it easier to get motivated in a group with real tutors.

PaulineHM profile image
PaulineHM in reply to Alberta56

Thank you, that is helpful.

Llegkt1 profile image
Llegkt1

I have recently been offered the online course but I said I would prefer to go in person...I'm on the waiting list but it's only 1hr a week for 8 weeks unless I want to travel to another area x x

PaulineHM profile image
PaulineHM in reply to Llegkt1

Thank you, that is interesting. How long is the waiting list for Face to face, do you know ?

Llegkt1 profile image
Llegkt1 in reply to PaulineHM

I'm not sure they rang me to do an over the phone assessment and just sid I would be pit on the waiting list...I'm in Washington uk x

Patk1 profile image
Patk1

A YES B YES

C YES

Ice2010 profile image
Ice2010

yes

Beshmeta profile image
Beshmeta

yes, yes and n/a

Izb1 profile image
Izb1

A yesB yes

C n/a

I am finding it hard getting around so would benefit from this.

PaulineHM profile image
PaulineHM in reply to Izb1

Thank you, awww, is there any chance a respiratory physio can help you at home ?

Izb1 profile image
Izb1 in reply to PaulineHM

My problem at the moment is my hip, am in so much pain can't get out and about and not sleeping which doesn't help. With the lack of exercise my lungs are not so good so think i would benefit from an online course x

Bootle-boy profile image
Bootle-boy

A, B and C. I did one some years ago and found it very useful.

PaulineHM profile image
PaulineHM in reply to Bootle-boy

Thank you.

gedney profile image
gedney

Did this course on line in COVID did not find it good, felt I needed motivation of other people in group setting

PaulineHM profile image
PaulineHM in reply to gedney

Thank you, that is interesting. Perhaps group on line would suit you better if face to face isnt available ?

DizzyLiz57 profile image
DizzyLiz57

Yes, yes , N/A

Great idea!

PaulineHM profile image
PaulineHM in reply to DizzyLiz57

Thank you.

LilsM profile image
LilsM

a. Yes

b. Yes

c. N/a

PaulineHM profile image
PaulineHM in reply to LilsM

Thank you.

Mons profile image
Mons

I did a PR course at a community centre. I found it really beneficial and there was 1 nurse and 1 physio plus healthcare guests to talk on a specialised subject sometimes. It was really helpful and reassuring talking to other people with similar problems. The exercise schedule was set for whatever level the person was capable of. I met some lovely people and we also had a laugh too. I would 100% recommend it to anyone. I also would do an online course happily. I actually missed going twice a week when the course finished, and I never expected the experience to be such a positive one. Definitely do the online course if you can. Good luck.

PaulineHM profile image
PaulineHM in reply to Mons

Thank you, what a lovely testimonial and so pleased it made a real difference. I have done both, but not used a stand alone app for it. I am a patient rep here in Gloucestershire and the NHS here is thinking about introducing the app for patients to use. So checking out peoples thoughts on using an app. Keep Well.

Foxy79 profile image
Foxy79

hi Pauline

I'm foxy79 can you please say what is this pr course can anyone do the course I have done rehabilitation course in the past but not PR is it something you can do like exercises or 9-4. Thank you for everything foxy

JPC2 profile image
JPC2

a) yes

b) yes

c) n/a

Currygirl profile image
Currygirl

Hi I would be very interested in anything that helps I have never been offered any kind of pulmonary rehab I live way down in Cornwall UK thank jane

PaulineHM profile image
PaulineHM in reply to Currygirl

Thank you, shocked that there is no PR there for you. ! Hope you get something before too long.

Currygirl profile image
Currygirl in reply to PaulineHM

Thank you Pauline any suggestions, as it is I'm so depressed right now and also just healing from a knee replacement. I don't go anywhere or see anyone apart from husband he's really good at helping in house x

Ergendl profile image
Ergendl

Yes, yes, and yes; though it really helped having physios around when I did my first PR course, to show me how to correct my overbreathing.

PaulineHM profile image
PaulineHM in reply to Ergendl

Thank you , yes that is where Face to Face PR has the advantage over an app doesn't it ?

canthinkofaname profile image
canthinkofaname

A. Yes

B. Yes

C. Yes

I did in line PR during lockdown. Although it was through an app, I could see and hear the other participants, so it felt very inclusive. Overall an enjoyable experience.

PaulineHM profile image
PaulineHM in reply to canthinkofaname

Thank you, fantastic!!! Pleased you had a good experience.

Fircone profile image
Fircone

A yes

B I previously attended a PR course 13 years ago.

C I would love to do an online course but it’s not available in my area. I’ve been invited to attend another PR course but as I am a full time carer for my husband who is paralysed from a brain injury I’m unable to go. It could make quite a difference to managing my copd if I was able to do it online.

PaulineHM profile image
PaulineHM in reply to Fircone

Thank you and sorry to hear about your husband. Yes I think online would be really helpful for people in your situation. Keep well.

Littlepom profile image
Littlepom

Yes I would like it in my area and would use the app because I have constantly been refused it here in Warwick

PaulineHM profile image
PaulineHM in reply to Littlepom

Sorry to hear that. Can I ask why you have been refused?

Littlepom profile image
Littlepom in reply to PaulineHM

I think that it is a postcode lottery. My doctors don’t know anything about it.Mostly it seems that people with copd can get it. I do know that some bronchs have had it but very hit and miss

O2Trees profile image
O2Trees

A. Yes

B. N/A

C. Yes

PaulineHM profile image
PaulineHM in reply to O2Trees

Thank you.

Didobetty1 profile image
Didobetty1

Re the course, I would definitely sign up for it.

PaulineHM profile image
PaulineHM in reply to Didobetty1

Thank you.

Mooka profile image
Mooka

a yes

B yes

C n/a

PaulineHM profile image
PaulineHM in reply to Mooka

Thank you.

Karenanne61 profile image
Karenanne61

A) YesB) Probably not as I was horrified at the suggestion of pr when I was offered it initially. I was in a coma following resp. failure and excercise was the last thing on my mind. It was only the presence of amazing resp physios who kept me motivated.

C) I would definitely look at a pr app to see how it fitted into my existing exercise schedule and input from pr professionals would be invaluable.

PaulineHM profile image
PaulineHM in reply to Karenanne61

Thank you so much, so sorry to read that you were initially so unwell but delighted that PR and physios really helped.

Little_River profile image
Little_River

A Yes

B Yes

C Over the last 10 years I have completed both a physical and app based PR course. I found both very useful. I did find the social interaction of the physical course beneficial but the app based course provided a lot of flexibility.

PaulineHM profile image
PaulineHM in reply to Little_River

Thank you.

colourpassion profile image
colourpassion

C yes, A +B better than nothing but i believe personal input encouragement from a health professional is important for first time.

PaulineHM profile image
PaulineHM in reply to colourpassion

I do agree with you. Thank you.

Maggity profile image
Maggity

A: yesB: NA

C: yes

PaulineHM profile image
PaulineHM in reply to Maggity

Thank you.

Morrison10 profile image
Morrison10

I pay a private physio for hour treatment twice weekly. I was born with PCD, and will be 88 in July. Never had any real guidance or treatment from NHS. Had to find consultant who was interested in PCD by paying to look on line 4 years ago of qualifications and interests of all in Midlands. Unsure how I could join your good work.

PaulineHM profile image
PaulineHM in reply to Morrison10

Sorry to read that you have struggled to get care over the years. Just keeping as well as possible can be a real help. Keep well.

corriena profile image
corriena

I would take part but i would much prefer in person. The people we meet at the meetings help to make us feel not so alone with are illness. Helps us make friends who understands what we are going through and can shear idears of what we can do to help arselves.

PaulineHM profile image
PaulineHM in reply to corriena

Thank you.

saltyskies profile image
saltyskies

1. Yes!

2. Yes

3. Once I’ve been to PR I would probably use such a thing to brush up

Sounds like a great idea alongside conventional in-person programmes, for those who can’t or don’t want to go in person :)

Hazel-mary profile image
Hazel-mary

ye , yes and yes.

I did a face to face recently and found it really good and made lovely friends.

There was a physio and nurse at the sessions and they were really helpful and gave lots of helpful information

Hazel x

PaulineHM profile image
PaulineHM in reply to Hazel-mary

Thank you.

sneezy23 profile image
sneezy23

a yes

b yes

c n/a

PaulineHM profile image
PaulineHM in reply to sneezy23

Thank you.

Nash1962 profile image
Nash1962

A Yes B Yes

PaulineHM profile image
PaulineHM in reply to Nash1962

Thank you.

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