Hi guys
Last week for 8 days i was hospitalised over my oxygen levels - I found I had a chest infection on top of my ILD that lowered it from my base rate of 88-92 to 66
When I had it checked at A& E it was still 66 so I was admitted immediately
Now I find I have another condition a s a result of a heart scan I had on the Tuesday - Pulmonary Hypertension -this can only be treated in Sheffield because theres no local special facilites available
It was either there or London-well I would refuse point blank & put my foot down if I had to go to London
When my specialist came in to see me she mentioned this & asked me to think about it -the enxt day an ordinary hospital medical doctor suddenly came marching into my room & said hes referred me -so im bloomin cross -I told him my specialist told me I could think about it & let her know
Im on a strong antibiotic that ive gotta take indefintely 250mg 3 times a week on a monday wendesday & a friday so Ive had my GP get it added to my repeat prescription so they better get it right next month
Ive got a new set of oxygen machines now that have got a dial of 4 on it & when Im moving around Ive got to set it at 4 - if im at rest ive fot to have it on 3
For the 1st few days Im going to stay on it full time so as not to shock my lungs - then send an hour on an hour off so i can get back into my routine into 8 hours off it & 16 hours on it
Im furious because I was doing ok on my other oxygen machines