BACk IN HOSPITAL AGAIN

[Sara_2611]

Hi everyoneJust to let everyone know that after only just 2weeks of being discharged I find myself back in hospital for the same old story - my oxygen levels dropped dangerously again into the 60s then into the 40s - even though I was attached to my concentrator at 8 litres having gone to the loo

I sat on my bed while i was extrely tired to calm diwn when i was satisfied i coukd turn it to 6 had another rest then turned it to 4 litres

I lay down on my bed & my heart started beating fast i turned it back up to 6 then 8 & still the same

I got my folks to rush me to hospital & just had a few hours in A & E then taken to respiratory unit They took bloods in Resuss withe result that there is no evidence of infection

but ive got to stay in until they are satisfied with everything & can discharge me

Needless to say Im quite upset & so are my folks as its only been 2weeks from the last time i was in.

[sassy59]

Sorry to hear you’re back in hospital so soon after the last time Sara. I hope you will be helped and can eventually go home again soon. Wishing you well. Xxx🤗❤️

[Sara_2611 in reply to sassy59]

Thanks much appreciated wish theyd get me the correct meals i ordered though I cant believe it happened the same week as oldham oxygen service are supposed to visit my home to repeat the gas tezt in my ear

[peege]

So sorry to hear this Sara, thank goodness you're on the respiratory ward.Thinking of you and hope all goes well ××

[Sara_2611 in reply to peege]

Cheers In in north manchester general hospital & in the nicer new part of the respiratory ward so it makes it bearable

[Bingo88]

So sorry to hear you are back in hospital again. Hope they can do something to help stabilise your breathing so you can get home and relax. Take care. Brian

[Sara_2611 in reply to Bingo88]

Thanks the physio apparently assigned to me (i knew nothing aboyt it) came & did some breathing techniques & some if i havea hyperventilate episode

[Foxy79]

hi Sara very sorry to hear about your sats I hope you feel better it's very complicated when we have serve copd and other respiratory problems can be difficult but it's better be safe and get yourself checked up I know hospitals can be boring some time's but it's still safe for an emergency wish you recover and on your feet soon take care 🙏

[Sara_2611 in reply to Foxy79]

I cant understand why there was such a short period inbetween oxygen drops. Priior to these two episodes i went 3 to 4months without having one so its more concerning

[Foxy79 in reply to Sara_2611]

hi Sara I'm 41 and I had serve copd broncechtisis respiratory type 2 odimia and pseudomnas with astma for 12 years and oxygen and bibep machine and nublizer with lots of tablets I have been in hospital for years on and off but know I got hold of my health I'm in control I have been out off hospital for few years touch wood but there was times in past I had been in hospital once a week in a month in hospital regularly and then once a yearly but know I'm OK and do use oxygen daily then take it off when I'm okay then I try not to eat too much one meal have it in twice take care 🙏

[Sara_2611 in reply to Foxy79]

Thanks for your reply

[Mellywelly]

Sorry you are back in hospital again, there must be something their missing surely. Are they doing any tests at all. My heart goes out to you 😮‍💨 hope they can give you answers

[Sara_2611 in reply to Mellywelly]

When i arrived in Resusc they did a blood test 4 lots & results were no evidence of infection so i suppose thats good My specialist told me that its part of the ILD so it will always happen ive got scarring on my lungs

[Mellywelly in reply to Sara_2611]

Really sorry chook, it's so unfair all these things we have to put up with. I have copd and their still trying to find medication that works for me, giving me hope the next one I try is the one. Just today went for a stroll and suddenly got shaky, weak and could not catch my breath, and all my partner does is roll his eyes. Really helpful. I hope they get you sorted soon. 😉👍

[Sara_2611 in reply to Mellywelly]

Blimey? Your partner juat tolling his eyes thats not very supportive is it? He shouldvr understood, & helped you

[Patk1 in reply to Mellywelly]

I feel4u Mellywell,so unkind of yr partner xx

[Sara_2611 in reply to Patk1]

I agree

[Richrdwrm]

Wishing you a good and smooth return to full health soon Sara.

[Sara_2611 in reply to Richrdwrm]

Thanks a lot i can only do my best but will never be full good health

[Alberta56]

So sorry to hear this. I hope they can get you stabilised soon, so you can stay at home for good. xxx

[Sara_2611 in reply to Alberta56]

Yes i hope so what is concerning is that i was on my concentrator at 8litres (my prescription for moving about)

[Ergendl]

Oh, dear! Hoping the medics soon find out what is happening and treat it so that you can get back home again with your loved ones.

[Sara_2611 in reply to Ergendl]

They no its ILD which is scarring of the lungs & that this oxygen drop is just part of it

[Ergendl in reply to Sara_2611]

Big virtual ((((hugs)))).

[Sara_2611 in reply to Ergendl]

Thank u so much

[leo60]

How awful for you and your family. I agree with some of the others, they should be looking into why this is happening. With me they found I was a retainer, I'm not saying you are, but there could well be some underlying, not immediately obvious, problem. I hope they soon get you home, treated and stable. All the best, xx

[Sara_2611 in reply to leo60]

Retainer? Whats that The under lying problem is the ILD

[leo60 in reply to Sara_2611]

Oh sorry, I didn't realise. Well I hope you're soon home again xx

[Sara_2611 in reply to leo60]

Cheers

[Tykelady]

This is exactly what happened to me a month ago after which I was discharged into the care of a virtual ward team. Although I am now back under GP care it has left me with a lot of apprehension about when it is going to happen again. Hopefully you will soon be home again.

[Sara_2611 in reply to Tykelady]

Virtual ward team? The sooner the better for me thanks so much

[Izb1]

What a worry for both you and your folks. Lets hope they can get you sorted and back home. Take care x

[Sara_2611 in reply to Izb1]

Yes it's concerning that the period of time appears ro be getting shorter cheers

[CDPO16]

Sorry to hear this Sara, I hope they can get to the bottom of your problems this time. You must be so weary of it all. Wishing you well xx

[Sara_2611 in reply to CDPO16]

Cheers im very weary as im not getting the 10 hours sleep i need as im epileptic as well

[watergazer]

Sorry to hear this Sara. Fingers crossed you’ll be home soonxx

[Sara_2611 in reply to watergazer]

Cheers

[pasquino]

I had the same exprience, at the end was a case of pulmunary hypertension.

Mind you ,is very hard to diagnose and very expensive...therefore the NHS prefers to stick on usual routine (x ray+ steroids+ antibiotics)

Suggestion? Treat yourself with a PRIVATE specialist at least to have a deep examination and diagnosis.

[Maricopa in reply to pasquino]

Right heart catheterization may be in order.

[pasquino in reply to Maricopa]

Yes, I know, but it took months on NHS ...in fact I was refferred in march this year and (hopefully) I will have ny catheter on the 9th of august ...but at least going private for the visit saved me a couple of months of waiting only for the specialist`s visit.Not considering that the NHS will do everything they can to convince you that it does not depend fron the heart, therefore they tend to stick to the usual unuseful therapy : steroids, antibiotics and nebulizer.

[Sara_2611 in reply to Maricopa]

I had that procedure done in sheffield earlier this year which resulted in an enlarged ventricle in my heart

[Sara_2611 in reply to pasquino]

You have to pay for privatw healthcae & i cant afford it Ive also got PH as well

[Karenanne61]

Oh dear that's rotten for you! Wishing you a speedy recovery and hoping the medics can determine why it happens and stop it happening again.

[Sara_2611 in reply to Karenanne61]

Thanks It ll never stop its a feature of the condition thanks for the good wishes

[Kate124]

hello. It’s hard being on oxygen I’ve been on it almost 3 years. Started on 4l now on 18 l 24/7. For me I kept needing more as sats were terrible. Even now my oxygen drops to 40s on movement. No joke when you feel like you’re suffocating. I hope they sort you. May need higher oxygen for a while.

[Loopylorre]

So sorry to hear your back in again, fingers crossed for you that they sort it out & your home again soon 💐🌷🌹 xx

[64alisonanderson]

sending lots of love to you.xx

[Sara_2611 in reply to 64alisonanderson]

Cheers

[Patk1]

Hope u soon get help u need.ru aware of " controlled breathing techniques"?there are a few.pursed lips technique is gd to slow breathing down + help u breathe thro bad episodes+ stop hyperventilating xxx

[PaulineHM]

Ooooooo I feel for you Sara, must be quite scary for your oxygen dropping like that.. Not nice at all.

I hope they manage to sort out your oxygen for you so that it stabilises for you and that you will be home soon xx

Pauline

[Sara_2611]

Thanks i hope so too

[Ern007]

Sorry for late reply Sara - been busy with CT scan on chest and outpatients..

It's scary when O2 dips -I sometimes do an overnight test with oxymeter - two weeks ago it was in 60s and 70s for longer than I liked - Basal was 90 so I left it there.

I hope you get home soon and get you sorted proper. Manchester you are not far from where I live. Let us know how you get on.

[Sara_2611 in reply to Ern007]

Thanks

[Tinalou75]

The same thing happened to me last month. I had a chest x-ray (no infection) antibiotics and they upped my steroids again. After an assessment with the respiratory team I was discharged on a higher oxygen flow and am on the virtual ward. Still no clues as to why. I hope you're doing ok? Are you home now? X

[Sara_2611 in reply to Tinalou75]

No still here. I was ambushed ay 10.30pm for a a nurse to to a blood test hours after was given predniserole. I sent her packing straight away & tol her to come back the next day atound 3pm. If sje comes back at another inconvinient time depemding om what is going on she ll either be allowed to proceed or leave empty handed

[Tinalou75]

How are you doing now Sara? X

[horseygirl_0103 in reply to Tinalou75]

Ive been home a while now - these changes in temperatures keep making me cough Ive now got 2 walking frames to help me control my breathing when im walking

My prescription is 8 litres when moving about 4 at rest

Im not too bad thanks for asking#

My mum tried to persuade me to go shopping with her to middleton but i wouldnt as im too afraid of my oxygen tank running out & left with none so id rather stay in