update on health on discharge - Lung Conditions C...

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update on health on discharge

295 Replies

hello everyone as you know was discharge from hospital but the news I was given before discharge was devestating . I'll be brief but accurate. .my c as become aggressive due to excessive stress over the past year . Within their six months I will probably lose most of my senses within ten months my organs will start degrading and start shutting down. At this point will be taken into hospital because by twelve months at some stage my life will end . My left lung is on the verge of collapse I have two malignant tumors on my kidneys And a tumor on my brain which as caused some swelling causing some memory loss seizures and other slight issues . So I am trying to process all this information and trying to avoid stress which is a but a joke .

295 Replies
Alberta56 profile image
Alberta56

So sorry to hear that. If I were a praying person, I'd pray for you. xxxxxxxxxxxxxxxxxxxx

in reply to Alberta56

Thank you but save your prayers 🙏 I heard that for twenty four hours each night in hospital. In honesty any faith I had I lost 👍🏼😂

Bevvy profile image
Bevvy

Sorry to hear this news. I appreciate this is still very raw but will you be able to access services to help you once things start to become difficult? Loosing one’s senses will make things extremely difficult to cope with. For example caring for yourself. Is there any sort of hospital care rather than having to go in to hospital? Certainly in the UK (for all its faults) there would be services you could access via social services. I hope things can be put into place.

in reply to Bevvy

Unfortunately here there's no palitive care in place as family usually deal with this but in my case I will be taken back to hospital to end my days . Not a welcoming thought but all I have unfortunately 😔

Damon1864 profile image
Damon1864Volunteer

Dave that is devastating news I'm so sorry. You just take things easy and don't get stressed please. Stay positive a live life to the fullest. If you every want to talk or just rant and rave you can always pm me. My thoughts are with you dear friend, have a great day and take care 😊 Bernadette and Jack 🐕 xxxxxx 🌻🌻💖

in reply to Damon1864

Thank you so much for your support along with everyone . Avoiding stress is a definite tall order there's always someone ready to push your buttons even here 😹

Maricopa profile image
Maricopa in reply to

Stress is difficult to deal with. I got to a point I’d rather be medicated for my stress then live with it. And my Dr agreed due to my health profile, no reversal is gonna happen. So what’s the point of me trying to be a hero.

in reply to Maricopa

Was on anti depressants and I was far worse than without them . I can cope with my stars and JD each night.

Maricopa profile image
Maricopa in reply to

I had to go through several different antidepressants to find the one that worked without side effects. A couple actually made me more anxious. I take benzos and that does help. And Celexa 20 mg

in reply to Maricopa

For the time period I'm looking at I'll just plodding along take each day as it comes.

Bingo88 profile image
Bingo88

So sorry to hear such devastating news Daveyboy1963. Must be difficult to deal with. But if you want to chat at anytime and need to message me. Please do so. Brian

in reply to Bingo88

Thanks Brian at the moment I'm trying to digest all the information 👍🏼

Bingo88 profile image
Bingo88 in reply to

Here if you need to chat. I went through this with my Father and it is difficult pal

in reply to Bingo88

Cheers buddy

CDPO16 profile image
CDPO16

So sorry to hear this Dave. Here for you if you need to talk. Carole xx

in reply to CDPO16

Thank you but going to take some time to swallow this pill. 👍🏼

crashdoll profile image
crashdoll

So sorry Dave. Cannot imagine what you’re going through and I’m sure it’ll take time for your to process. It’ll be a journey as your adjust to the upcoming days, weeks and months on a practical and emotional basis. Please know your lung buddy people are here for you.

in reply to crashdoll

I know and I'm grateful for the support 😔

sassy59 profile image
sassy59

Sorry to hear such news Dave and I wish you a good quality of life for as long as possible. Difficult times ahead sadly. Keep chatting to us won’t you? Hugs 🤗💕xxxx

in reply to sassy59

I'll keep ticking till my main Spring snaps I promise

sassy59 profile image
sassy59 in reply to

Good man xxx👍😘

madonbrew profile image
madonbrew in reply to

You better had!! 🌟

teddyd profile image
teddyd

That is a lot for you to take on board. I dont really know what to say,except there are a lot of people in this group that will listen and offer support xx

in reply to teddyd

I know and appreciate it and yes too much to digest at the moment I'm slowly dealing with it 🙂

Wonderboy6 profile image
Wonderboy6

Nothing I can say daveyboy. Have said it all. You know that. Must admit, am totally devastated that this is happening to you, can do nothing but read 📚 your t.messages,I'm as religious as a bag of spuds but I would say go with god.

in reply to Wonderboy6

Think I'm going with the aliens buddy big I get my way I keep looking for them and hoping 😹😹👍🏼

Wonderboy6 profile image
Wonderboy6 in reply to

Fly into the stars that you love ❤️ 😍 💖 ❣️ 💕 9

in reply to Wonderboy6

That would be great 👍🏼

Wonderboy6 profile image
Wonderboy6 in reply to Wonderboy6

I'm gonna meet you up there, we can tell each other what silly arsoles we are. Haha.

in reply to Wonderboy6

I'll tell the aliens to pick you up and we can teach them how much fun a straight jacket is 🤣🤣🤣

Wonderboy6 profile image
Wonderboy6 in reply to

I want a state of the art straitjacket with tassles on the shoulders a [pink] cos I want them to think I'm an old alian poofter

in reply to Wonderboy6

That's fine with me I'm having one with lots of pansies and daisies on it they can think I'm a flower power poofter 👍🏼😹

Wonderboy6 profile image
Wonderboy6 in reply to

Pink lipstick, Pink nails, pink 💗 💓 eye lashes might even have a pink gin, yeah, go for it. Gotta get a pink wig cos am bald 👨‍🦲 🤪 🙃

in reply to Wonderboy6

Oooooooh too much pink try some lemon highlights and lilac eyelashes

Wonderboy6 profile image
Wonderboy6 in reply to

Ouch, that hurt, but mite have a go 🚶‍♂️ 😢

in reply to Wonderboy6

👍🏼👍🏼👍🏼😹

madonbrew profile image
madonbrew in reply to Wonderboy6

You two are making me laugh!

mylungshateme profile image
mylungshateme in reply to

You two are cracking me up love it. X

in reply to mylungshateme

It's nice to smile and laugh takes our minds off the straight jacket and the padded rooms 😂😂😊

mylungshateme profile image
mylungshateme in reply to

😜🤪😆😂x

O2Trees profile image
O2Trees in reply to Wonderboy6

🤣🤣🤣 - "and alien poofter"? fab!

Wonderboy6 profile image
Wonderboy6 in reply to O2Trees

Sorry I forgot about the great slice of apple 🍎 pie 🥧 and cream.yeah.

in reply to Wonderboy6

Now you just pushed the wrong button oooh apple pie 😂 sod it I'll make one of my own 😂😂😂

madonbrew profile image
madonbrew in reply to Wonderboy6

😂😂😂

Biofreak profile image
Biofreak

Oh Davey that is devastating news. It's hard enough when you have family around you but when you're on your own dealing with this it must be like being in a nightmare. We will be your family instead even though we can't be there in person, we are there in the ether to talk to whenever you need. Try and stay calm as much as is possible. Get the music on and play your favourite tunes and carry on watching the sunset or the sunrise when you can't sleep. Lots of love flying your way. Xx

in reply to Biofreak

For that I thank you yes it is lonely 🥺

O2Trees profile image
O2Trees

Absolutely awful news Davey - Im so so sorry. And such a lot to take in. Please stay in touch here for support especially when your family isnt around. Thinking of you x

leo60 profile image
leo60

So sorry to hear this Davey. It's a real bummer and worse that you are on your own out there. But we are all here for you, as you know. Keep watching the stars with your friends Jack and Dan and chill . . . . . . . . . . 🌟⭐🌟⭐🌟⭐ xx

in reply to leo60

Oh I'll be under my stars just got the JD out the fridge ready 😄

leo60 profile image
leo60 in reply to

In that case I will have a glass of wine with you! 🥂🥂 Oh! Did you mean later?? Too late now, I've poured it! 🙄🙄 Silly me! 😂😂 xx

in reply to leo60

Good on you 👍🏼 sounds like I'm becoming a bad influence 🤣🤣🤣

leo60 profile image
leo60

Davey, I am a 62 year old Leo . Nobody is a bad influence on me. I can do it all on my own thank you 😂😂 cheers mate 🥂🥃 xx

in reply to leo60

Yammas , I'm supposed to be a placid Virgo but far from it 😂😂😂😂

leo60 profile image
leo60 in reply to

My kids’ dad was a Virgo, placid only to a point! Xx

in reply to leo60

Oh yes we all have our point of no return 😂🤣😂🤣

Alberta56 profile image
Alberta56 in reply to

My daughter's a Virgo. Placid!!!- you have to be joking. Virgos are supposed to be very neat and tidy too. Daughter can turn any room into a slum within minutes of arriving in it. I think she was meant to be a Leo, but she arrived 2 weeks late. 🤪🤪😡😡 xxx

in reply to Alberta56

Well there you go then because I love everything clean and tidy 😂😂😂😂

Alberta56 profile image
Alberta56 in reply to

You'd hate it in this house. What with Brian and Sue and our friendly neighbourhood spiders.😂🕷🕷🕷🕸🕸🕸.

in reply to Alberta56

Spiders don't bother me they keep the fly population down 😂😂 I take it Brian and sue are a bit untidy 😂😂😂

Alberta56 profile image
Alberta56 in reply to

I'm not that tidy minded, but my family's rooms will soon require crampons and other climbing equipment to access them. 😂

in reply to Alberta56

Oh dear you best get extra steroids in to build up your strength 💪 my heart goes out to you I would probably be hanging upside from the rafters 😂😂😂😂

Alberta56 profile image
Alberta56 in reply to

At least you could around the rooms that way. xxx

in reply to Alberta56

😂😂😂 out of madness comes a smile and laughter 🤣🤣🤣🤣 the craziness makes you realise your alive 😂😂👍🏼

teenieleek profile image
teenieleek

Dreadful news for you to deal with. Just pop in here when you feel able for virtual hugs and support.

in reply to teenieleek

I will do . Wasn't the news I wanted to hear mind you no one wants that sort of news

CarolMcl profile image
CarolMcl

I'm so sorry to hear your news, so sad. When you're up to it, keep posting your pictures and sharing your wit with us

in reply to CarolMcl

I will do as long as I can do 👍🏼👍🏼

Suzie42 profile image
Suzie42

We all wish you to stay strong Dave, know its unbelievably hard especially on your own, but let your greek friends in as you know they will want to help.How about a load of us from HU to come over and see you....50 will be a good number 🤣we will cheer you up big time as long as we all bring some JD with us 🙃🤣🤣 Just trying to lighten it up for you Dave.

My heart goes out to you.....💕

in reply to Suzie42

Thank you , I appreciate it I'm having a good long think about things that is one thing being alone can help with no distractions

Suzie42 profile image
Suzie42 in reply to

Not too much as that can be negative, you will need a lot of positivity going forward and we will help whenever we can Dave

in reply to Suzie42

I know! I'm looking at my favourite star at the moment. Wish someone would come down and swoop me up there

Suzie42 profile image
Suzie42 in reply to

I bet, but you never know.........

in reply to Suzie42

We can but wish 👍🏼👍🏼

Suzie42 profile image
Suzie42 in reply to

🌟🌠

in reply to Suzie42

Plenty of them tonight

helenlw7 profile image
helenlw7

So sorry to read your devastating news. You know my thoughts are with you, and any time you want to moan or rant don’t hesitate to pm me.

Hugging teddies
in reply to helenlw7

Thank you so much . I appreciate your support and understanding. It's a lot to absorb but I'll get there 🙂

helenlw7 profile image
helenlw7

It is a lot to absorb, and I’m sure things will become clearer in your mind over the next few days.

in reply to helenlw7

I agree the good thing is it was explained very directly but clearly

helenlw7 profile image
helenlw7 in reply to

Definitely good that it was explained clearly, because some drs are a bit airy fairy with their explanations, I think they’re frightened of scaring the patient.

in reply to helenlw7

Certainly not the case here very direct and thorough

madonbrew profile image
madonbrew

Dear Dave,😥🤗🤗🤗🤗🤗🤗🤗🌟🌟🌟🌟

Dee 🌺

in reply to madonbrew

Thanks dee

Katinka46 profile image
Katinka46

So sorry to hear this, very hard to take in. Are you in contact with a hospice?

Xxxx

in reply to Katinka46

There's no hospice care here unfortunately

Katinka46 profile image
Katinka46 in reply to

Yes, apologies for raising it again. I replied before I had seen your earlier responses. If the normal practice is hospital then they must have good caring people in place. A specialist team, maybe?Love and hugs

Kate xxx

Shortlungs profile image
Shortlungs

Take care sorry to hear your news keep enjoying your sunsets as love seeing them

in reply to Shortlungs

Will do 👍🏼👍🏼

SORRELHIPPO profile image
SORRELHIPPO

This must be so hard for you, I can imagine getting any equilibrium back will be difficult, as others have said, we are here, even if at a distance.

in reply to SORRELHIPPO

And I appreciate it and yes the biggest pill I've had to swallow

corriena profile image
corriena

Words fail me. All i can say is live each day as best you can. Im sorry to hear youv had such devistating news 😞

in reply to corriena

It's life unfortunately if it throws you lemons slice it up for your gin and tonic

peege profile image
peege

Oh Davey I'm so very sorry to hear your news. You must be devastated, thank you for telling us. I know we'll all be with you every step of the way. It sounds as though you have caring friends over there along with the beauty all around. Thinking of you xxx

in reply to peege

Thank you xx

Patk1 profile image
Patk1

We are here 4u Davey 💕x

in reply to Patk1

👍🏼 thank you

Hellodolly profile image
Hellodolly

Hi Dave

What a horrible shock for you to be given that news. I’m so sorry.

As everyone has said, we are here, but I appreciate that it must feel very alone in Greece. Would you consider going back to the UK where you could at least get some palliative care?

Thinking of you and sending positive vibes thru the the ether 🤗🤗🤗🤗

in reply to Hellodolly

Thank you and I asked about flying back to the UK and was told that it is dangerous for me to fly and is an option but a dangerous one. And not advisable

Hellodolly profile image
Hellodolly in reply to

Train/boat then? It depends if you would rather be in the UK or are ok to stay in Greece.Tough stuff - hope you are doing ok tonight. 😊

in reply to Hellodolly

It would cost a few thousand euros to cover the distance ferry from here to mainland then train to each country with stop overs in hotels I've looked into the option but even when I got back I've got no home to go to so vicious circle really

garshe profile image
garshe

I wish I knew what to say but for the first time I'm speechless. Hearing this news is so upsetting. I wish you had family around you to care for you . We can be your family Dave , so when you have digested all the information you have been given we are here for you when you need to chat .

Please try and stay Positive although this is not easy. Thinking of you , lots of love .xxSheila 💕

in reply to garshe

I had a long time under the stars last night and I decided to shut everything away and just enjoy each day as it comes. Be as normal as possible .thank you Sheila

garshe profile image
garshe in reply to

Sending healing Dave xxSheila 🙏💕

in reply to garshe

Thank you Sheila

mylungshateme profile image
mylungshateme

Just seen this I'm so very sorry 😪 it will take time for to process all that information. I just wanted to say the going into hospital at the end stage is probably the equivalent to hospice at home so this will ensure your comfortable and pain and discomfort is also managed and you won't be alone. But I am sorry your going through all this please keep talking on here when your up to it and can manage it. X🙂🌸🌺🌻

in reply to mylungshateme

Oh the oncologist said when I am in the hospital I will be in complete control of the pain medication! Like a hint of what I can do to help myself if you get the drift .

B0xermad profile image
B0xermad

Davey I am so sorryand there is no words to say that will help in anyway to remove all your worries from your situation, live your best life whilst you can and grab onto whatever you support you are offered.sending you my positive thoughts to see you through the rough days ❤

in reply to B0xermad

Thank you it's appreciated and I'm going to try to treat each day as a normal day.

coughee profile image
coughee in reply to

So, What’s cooking today Davey? (Stress buster), ice cubes in the freezer ready for JD later? (stress buster) and then later, star gazing?Like you said, take each day and enjoy each day as best you can. We are all with you, and rooting for you.

in reply to coughee

Spaghetti Bolognese for dinner tonight I've already shredded my beef ice cubes on full alert JD and glass ready for action 👍🏼👍🏼

coughee profile image
coughee in reply to

Garlic bread too? 😋

in reply to coughee

I picked up a baguette and I already have my garlic and herb butter so will make my own garlic bread 👍🏼😂😂

bluepuddy profile image
bluepuddy

I'm so sorry to hear this. Try and capture as many beautiful moments as you can, while you can. If you avoid stress you may live longer. Keep in touch with your friends on the forum. Big hugs.

in reply to bluepuddy

Thank you for your support and wishes and the advice . The island is full of people but I still feel like Robinson Crusoe most of the time.

bluepuddy profile image
bluepuddy in reply to

There are many people who even when they are surrounded by family still feel alone. Treasure each day and continue to appreciate your friends. It sounds as if you have some good ones. A great big hug from me.

Greenthorn profile image
Greenthorn in reply to

Can you put an advert in the paper for a young bird to pour the JD and sing you to sleep? Do you have any favouritse songs? Let me know if you do. I'll record myself on piano and post it to you on HU. Yeah, there'll be bum notes too!

in reply to Greenthorn

I've forgotten how to write ✍️😂 Im used to typing 😂 , I've got this afternoon sorted now I have a big bag of grapes and eggs from my neighbor across the road so I'm making a vanilla fruit cake with orange grape lemon and apricot . I'll post the end product 😁 the grape in it will be beautiful, I've made this before and my friend came round for a beer and ate almost three quarters of the cake slice after slice so ended up giving him the rest to take home 😂😂

Greenthorn profile image
Greenthorn in reply to

Yes please post the picture for me to salivate over. I'm a malt whisky man (Laphroaig) but today i will buy a bottle of JD to have a sup with you. I shall also photograph the bottle and will include the bottle in posted paintings as i recently did with the Guinness glass in the George Seurat painting. In that way many of the HU readers will enjoy the JD with you!

Izb1 profile image
Izb1 in reply to Greenthorn

Laphroaig my son in laws favourite tipple. Will raise a glass to Davey when you post your photo x

in reply to

Cakes in the oven and the aroma mmm I will show the end product soon .

Greenthorn profile image
Greenthorn in reply to

Stop it!

in reply to Greenthorn

Would you like a slice now sir or when cooled down

Absolutely perfect
Greenthorn profile image
Greenthorn in reply to

I'll pace the room and will have a slice when its cooled down. Many thanks!

in reply to Greenthorn

Your welcome it's a shame you can't smell what I can smell right now 😂

Greenthorn profile image
Greenthorn in reply to

My nostrils are protuding.

in reply to Greenthorn

Oh 🤣 sorry I didn't realize fruit cake had this affect 😂

mylungshateme profile image
mylungshateme in reply to

Just catching up was gonna ask how the cake went but yum I can see. How was the sunset tonight? Is it still ridiculously hot? X

in reply to mylungshateme

Unfortunately yes it's still hot 🥵🥵😂 I've got the fan outside with me blowing what cool air is about straight up the leg of my shorts 🤣🤣🤣

mylungshateme profile image
mylungshateme in reply to

🤣😂🤪 I don't know how you do it I've been struggling in uk heatwave I'd never cope abroad lol even now a good 10 degrees lower than what it has been I'm still hot an got fan on 😆

in reply to mylungshateme

Some people find cooling the neck best some say feet each individual as different parts of their bodies cool people down sounds daft but it's true

in reply to mylungshateme

You have to remember aswell the temperature you had as a heatwave is our usual temperature in summer 🤣🤣🤣🤣

mylungshateme profile image
mylungshateme in reply to

👀🙈

in reply to mylungshateme

🤣🤣🤣🤣🤣🤣

in reply to bluepuddy

Huge thank you I'm enjoying a nice frappe at moment forgetting all the bad stuff behind in a sho box under my bed

bluepuddy profile image
bluepuddy in reply to

Brilliant. 😀

Wonderboy6 profile image
Wonderboy6

Watcha mate ,how's you today, as well as can be expected I sincerely 👍 hope. Am knackered after t/bone steak and piles of mashed half hundredweight of fart pellets,sorry, meant baked beans .apple pie 🥧 🍰 🍮 was sensational with cream. Cow girl's 🐄 made the evening. Brilliant night. Slept like the proverbial log.

in reply to Wonderboy6

Really glad you enjoyed your evening buddy , I'm making apple pie today I think 🧐🤔 I'm out having a coffee at the moment treating each day as normal and push all the 💩 to the back of my head ,👍🏼

Wonderboy6 profile image
Wonderboy6 in reply to

Good on ya, bluey, debating on going out to tesco before it rains.might and might not woman's perogative, aint it.

in reply to Wonderboy6

Yes that is what they say but if you want to get technical rub yourself down with shower gel and go sit in the rain you can save money keep clean and shock the neighborhood all at the same time 😂😂😂

Wonderboy6 profile image
Wonderboy6 in reply to

Well,that's it, daveyboy, another coffee ☕️ morning with the oldies done and dusted. Two topics, when I was a desert 🏜 rat, fighting those beastly Germans followed by the good old days when beer was tuppence a pint and Vera Lynn was doing all the singing.

in reply to Wonderboy6

Oh Vera Lynn now that was one classy lassie my coffee morning was quiet uneventful and nice topic of conversation the sex life of cock roaches. I know exciting stuff your thinking but in Greece they're always looking at killing them and the idea today was find the males and use two bricks to remove his vitals. I was that excited I almost fell asleep 😂👍🏼

Wonderboy6 profile image
Wonderboy6 in reply to

Would have given me the inevitable palpitations.

in reply to Wonderboy6

Take it you don't like cock roaches or is it the idea of two blue bricks 😂😂😂

Wonderboy6 profile image
Wonderboy6 in reply to

Bricks take me back to my bovver boy days.

in reply to Wonderboy6

You used to wear them strapped to your feet 😂

mylungshateme profile image
mylungshateme in reply to

😆😂🤣

katieoxo60 profile image
katieoxo60

Good morning Daveyboy, That is not a good outcome however I presume you expected a poor outcome at some stage, now its about coming to terms with it, sadly not easy. It won't be best for you having to go into hospital at the end I am sure , but sometimes if your body is no longer working it can be for the best, take each day as it comes enjoy what you are able and who knows you may not end up in hospital fate may step in to change the course of your final days, I hope it does for your sake. Try to stay as relaxed as possible so you feel the best you can given the circumstances. Will be thinking of you every day, what you are going through is what I most fear fortunately here in the UK we have services that do not depend on you having family . There are no right or wrong words at such times if you need to rant we are here for you, or if its just a chat concentrate on the beautiful sunsets you have around your home. remember too a little bit of what you fancy does you good & calms the stress

in reply to katieoxo60

I'm enjoying my coffee at moment before I decide my next plan for today 👍🏼

katieoxo60 profile image
katieoxo60 in reply to

That's the idea.👍

in reply to katieoxo60

Decided to possibly make a couple of apple pies today so that is time taken up doing what I love

katieoxo60 profile image
katieoxo60 in reply to

One of my specialties when working was apple pie and custard, now I prefer apple pie and ice cream, my other specialty was home made lemon meringue tart because my mum loved it. Another nice one is banana sponge not banana pudding. Just for a laugh for you one of my staff used to say I don't like rock buns they have flies in , that was the currants of course😀😀 I can just smell them apple pies now yum yum

LissacFrance profile image
LissacFrance

Not good news mate. My nephew was diagnosed with stage 4 glioblastoma and obviously went into the routine of chemo, radio etc. His response was "well at least I will have time to do some reading". he bought a copy of, of all things "mein Kampf". He attracted an awful lot of attention in hospital waiting rooms when he sat there with it on his knee. he also attracted admiration for starting a book that would take a long time to finish. Chin up, try to cut out the stress, tomorrow is another day. Chris.

in reply to LissacFrance

I intend to leave all the bad stuff in a shoe box under the bed

LissacFrance profile image
LissacFrance in reply to

My nephew would have needed an awful lot of shoeboxes, instead his wife had to take care of all his "collections"

in reply to LissacFrance

The only collection I have is in my fridge doctor JD 🤣

Ergendl profile image
Ergendl

Oh, Dave! What awful news for you to cope with. Praying for you at this challenging time. Enjoy the sunsets and the stars and your JD xxxx

in reply to Ergendl

Thanks I'll be enjoying my Stars and hopefully I get abducted by aliens 😂

Loopylorre profile image
Loopylorre

Oh Daveyboy, that’s devastating news to receive on your own, no words of wisdom I’m afraid, just agree with what everyone else is saying to you, we all are here to support as best we can albeit at a distance, take care, sending healing ❤️‍🩹 hugs 🤗 to you, xx 🌻🌻🌻

in reply to Loopylorre

Thank you , I'm going to try my hardest to keep the bad stuff in the shoe box under the bed for as long as possible

Greenthorn profile image
Greenthorn in reply to Loopylorre

But Daveyboy is not on his own cos we are his earth angels.

mylungshateme profile image
mylungshateme in reply to Greenthorn

Well said we are all here day and night 🙂x

Morrison10 profile image
Morrison10

Hi, I’m so sorry to read your sad news, yes we’re all thinking of you, and hope you’re able to keep in contact with us. I’m told positive thinking is good, and hope you can have many happy moments. Very best wishes, Jean x

in reply to Morrison10

Thanks Jean x

cofdrop-UK profile image
cofdrop-UK

Awe sweetheart not the news any if us, especially you wanted. You have a good attitude but it must be hard to come to terms with. Please know you have many friends here to support you. Keep in touch with us whenever you feel you need to offload or share your pics. If you don’t feel like it that’s ok too, although it would be reassuring to know you have a special lung buddy who can relay to us all you are ok and just need some me time.

❣️❣️❣️

in reply to cofdrop-UK

Thank you for your support and understanding 💞

Jane2005 profile image
Jane2005

I'm am so sorry to hear your devastating news & I only agree with everyone above has said. I am thinking of you & hope that you can carry on with your amazing positivity. Very best wishes Jane xx

in reply to Jane2005

I'm just going to keep ticking as long as I can

ghousrider profile image
ghousrider

Daveyboy i now the feeling some days i have my smell go on me the lung at this mo in time breathing is very rough at mo its very damp here this morning as it rained throu night we now have sight problems in family my sister is 64 lost sight left eye they thing its gluecoma in eye i am now being tested my self & my elder brother / i have stated to have ghest pain left side of body but dont want to go in the hospital i dont think i would come out again / have you ad flu injection ask for it i have got to have injection for shingles as well sorry to here your health problem sorry i told you mine my mate i hope you will be ok to early yet keep ghin up keep smiling need a mate to talk to your buddy ghoust rider👍👍👍👍

in reply to ghousrider

I'm ticking away with my frappe at the moment , humidity is excessively high here at the moment I look across at turkey and can usually see the mountains clearly because we're close to turkey but the heat etc you can't see anything and the breeze is coming from Turkey so humidity is just too high

Digger0 profile image
Digger0

I "liked" you post but it's more of I'm with you. Sorry to hear this, it will take time to process - make sure you get the help you need or are entitled to.

in reply to Digger0

I'll take it as I have all my life on the chin life plays games with us all unfortunately

Reading4everyone profile image
Reading4everyone

Davey boy, that is a hell of a lot of devastating info to take in and process. Did the docs tell you this bluntly? I am praying that you have peace and good care at this stage in your life. Marlbee

in reply to Reading4everyone

Oh yes the doctors here are very direct and hold nothing back

Shirleyj profile image
Shirleyj

Such sad news. Carry on enjoying your cooking, (apple pies sounds lovely) by the way. Enjoy you JDs and watch the sunsets. You have all of us to chat to x x x 🌻

in reply to Shirleyj

I know and I'm grateful for that , just got to decide on mini apple pies or a couple of large ones I am definitely going to make a pear and peach pie

1947Mags profile image
1947Mags

Thinking of you, so sorry to read this latest news and to thank you for a vision of a life so different from my own (location wise) and the lovely pics you send in. Keep as well as you can I know from your posts you have good neighbours and friends. Love Mags

in reply to 1947Mags

Thank you and I'm going to keep ticking as long possible

gingermusic profile image
gingermusic

Hello I was devastated to read your message this morning, and feel so very very sorry for you. How you are suppose to stay strong I have no idea. I wonder sometimes with health whether it is better to know whats ahead or just be left to live each day as it comes. If ever you wish to talk I will always be ready to listen and help you in any way I can. I can only send love and wish you all the best. Try to enjoy some time doing something that's special to you.Something to make you happy. Love Ruth

in reply to gingermusic

I do the one thing I love most every night , I sit under the stars with a JD and wait to be abducted 👍🏼

gingermusic profile image
gingermusic in reply to

A drink I have never tried but wanted to, so have one for me please while you gaze at those heavenly stars. xx

in reply to gingermusic

I'll have an Extra large one to share with you tonight xx

gingermusic profile image
gingermusic in reply to

Wow that's the best offer I have had in a while thank you U shall look forward to it xx

in reply to gingermusic

I'll make sure it's a very large JD tonight

Here's the moon to look at for a start
gingermusic profile image
gingermusic in reply to

That is a good start thanks Daveyboy I am looking forward to later and sharing that drink. Love Gingermusic xx

in reply to gingermusic

Your welcome xx

gingermusic profile image
gingermusic in reply to

Thank you take care and enjoy your day, xx

in reply to gingermusic

And you 👍🏼👍🏼xx

Wonderboy6 profile image
Wonderboy6

Going to the lounge to meet up with the other inmates of hades, have a coffee ☕️ win the raffle can't stand the excitement. Good for some gentle humour. Catch you later today, daveyboy .

in reply to Wonderboy6

You enjoy yourself buddy don't slip out of the straight jacket though 😂

Otto11 profile image
Otto11

Oh what a shock for you. I’m so sorry to hear this & lost for words tbh. I do hope you get some support from the health system there & also friends & neighbours. Some days it helps to talk other days not. You have a lot of support here from this lovely bunch & I am going to be in Cyprus soon so not far from you & will give you a wave from there & we can watch the same stars together. ⭐️ X

in reply to Otto11

Sounds like a plan 👍🏼👋👋

Ace467 profile image
Ace467

So sorry to hear this sad news given to you , I hope you can make the most of your time left , think positive because no one know how much time you’ve , Similar to you too, My husband was discharged yesterday after admitted into A&E with unsteadiness and headaches.he was also told there’s not much time left hit him . he want to spend his last few weeks with families. We’re all devastated that his cancer has progressed so aggressively in his brain .

After going through numerous chemotherapy and whole brain radiotherapy in the past two and half years there’s no more the doctors can do for him .

We’ve the palliative care team on board. But I’m so cared to face this last journey with him , not knowing how this horrific disease will end his life ! You’re in my prayers too ! I hope you can find hopes and stay healthy.

🙏🙏

in reply to Ace467

I'm ready for my next journey but I'm going to fight tooth and nail to hold on as long as possible my thoughts and prayers with your husband and you and your family . 🙏🙏🙏

Alberta56 profile image
Alberta56 in reply to Ace467

So sorry to hear this. Will be thinking of you and your family, as well of course as of Davey. xxx

Izb1 profile image
Izb1

You sound in a better frame of mind today Dave and pleased you have boxed up your worries for now. I say to myself when I have worries, i will deal with that on the day and it seems to help. As I said to you last night, we may not be visable on this site but when you fall a hand will catch you. For now take care and put these worries out of your mind and think about whats for dinner mmmm x

in reply to Izb1

Already decided I'm doing a tuna pasta bake

coughee profile image
coughee in reply to

What happened to the spag bol with garlic bread? 🤣

in reply to coughee

Still having the garlic bread keep ya wig on 😂😂 tuna will be good lots of omega 3 and Grecian 2000 😂😂😂

Izb1 profile image
Izb1 in reply to

Sounds like you are stuck for choices for dinner , and such lovely neighbours you have bringing grapes and fresh eggs x

in reply to Izb1

Nope tuna pasta bake and garlic bread fresh out of the oven when time for dinner. And I've just made a beautiful vanilla fruit cake with grapes orange lemon mmmmmi must stop talking about the cake greenhorn will start salivating 😁😁😁😁

watergazer profile image
watergazer

Quite a lot to come to terms with daveyboy. 🤗🤗🤗 hope you keep as well as you can for as long as possible. Sending you gentle hugs 🤗 🤗🤗

in reply to watergazer

Thank you and I'm not going down without a fight I'm not ready to kick Satan out his chair at the moment got to get down to my fighting weight 😂 👍🏼

Greenthorn profile image
Greenthorn

Daveyboy, im glad i wrote that poem for you, and others, when i did, before this news came out. Whilst u can see, there'll always be an borizon and whilst you can smell, there'll always be sausages to tease your senses. And with or without eyes, you'll always know there are stars above you each night.

I think you have given us enormous pleasure in you honest and candid posts, of sunsets and food and your spluttering squib firework body.

Your humour always shines through.But in this post your humility shines through like a beacon.

I ain't saying goodbye, but good morning.

in reply to Greenthorn

And a good morning to you kind sir , this morning I put all the bad news in a shoe box stuffed it under the bed and I'm going to be enjoying whatever each day brings anything bad pops up in the shoe box it goes . I've just walked up to the front door and the elderly couple across from me have left and carrier bag of grapes from their vines and a dozen fresh eggs from their chickens so boiled eggs for lunch and tonight sit under my stars JD in one hand and grapes in the other . Have a lovely day today even if it is raining . Dave

HollyBoyd profile image
HollyBoyd in reply to

A great attitude Davey x

in reply to HollyBoyd

Cancer as raviged my family and now it's my turn but I'm not going to roll over for it I'm fighting back

HollyBoyd profile image
HollyBoyd in reply to

I can see that, just keep fighting, we are all shouting for you.

in reply to HollyBoyd

I appreciate that I'm going to need all I can get by the looks of things 👍🏼

Karenanne61 profile image
Karenanne61

That's just too much! All I can say is keep enjoying the stars and know so many of us are rooting for you.

in reply to Karenanne61

I will do and thanks 👍🏼

JJ_7 profile image
JJ_7

I just read this and I am so sorry. Keep posting as it is good to know that people care.

in reply to JJ_7

👍🏼👍🏼

Walkwalkwalk profile image
Walkwalkwalk

Hi Davey. So you are back, that is the Davey I-know , already out having a coffee and planning bolognaise and deciding what size of apple pie to make. Your news must be so emotionally draining so I hope that you have some friends to offload to, as well as this family, who care about you so much.

It’s good when our doctors can be open about our medical conditions as we then have the opportunity to apply our own way of dealing with it. Enjoy your special star, mine is Sirius the Dog Star and I often feel that someone who was important to me looks down from there.

Happy sunsets in JD’s company.

My very best wishes,

Grace

in reply to Walkwalkwalk

I have someone from Mars which is always visible she looks down on me. But I have the two best friends to rant at who never say a word my bottle of JD and the cooker 😁😁😁

Walkwalkwalk profile image
Walkwalkwalk in reply to

👍

Zero02 profile image
Zero02

xx

Sara_2611 profile image
Sara_2611

Oh dear I am so so sorry to hear that Seems to me you were discharged too soon Take it very easy best u can

in reply to Sara_2611

I was originally discharged to early but this time if they hadn't discharged me I would have done myself.

Sara_2611 profile image
Sara_2611 in reply to

I remember being in a ward whete a woman was very distressed & kept waking people up inckuding me to talk to

One day her doctors st the hospital said they were discharging her & the poor girl got all ready & i talked to her in a socially distanced & maskef up way to see if she was all set

Half an hoyr later i had to go back to my booth so they could speak to her in private & all i could hear was th he words you cant be dischargrf today & you need tp stay. Poor girl was so upset she just waljed out collected her meds & discharged herself

I nearly ernto to the neighbiuring ward with side rooms but they then tpld the nursevthey wouldnt take me because of the infection but theyre allowing me to stay in the assesment unit for now until another room is found for me so ive pushed it home again abiut my immune system & that i must be isolated & that i categorrically will not share a main ward in a booth for that reason because my spedciallustvsaud i must be isolated

in reply to Sara_2611

I will say one thing about the hospital , I was in a single room not in a ward but outside a/e they have about six rooms and I was told before discharge if I'm back in I will be placed in one of those rooms ! No windows and next to what can be a very noisy a/e unit

ElsaC profile image
ElsaC

Have you thought of CBD oil to help with stress? You may have to ask your doctors about drug interactions but CBD is non toxic and it's really helped me. I found your post very sad and moving - I really hope you can access all the support available in the coming months.

in reply to ElsaC

Believe me if it were available here I would try it but certain drugs here they refuse to issue, I only got prescribed morphine after trying every pain killer on their list.

ElsaC profile image
ElsaC in reply to

I doubt that a doctor would prescribe it but you can buy it online. I use Orange County CBD (based in Liverpool). They have free next day delivery. All good wishes.

in reply to ElsaC

I'm in Greece and since Brexit some the Greek government may not be impressed bringing in a substance that they don't use themselves

ElsaC profile image
ElsaC in reply to

😜

in reply to ElsaC

They take anything drug related extremely serious here.

Fruitbat2 profile image
Fruitbat2

So sorry to hear your news, I hope whoever is caring for you is really kind.

in reply to Fruitbat2

Well I'm trying to be kind to myself because I'm self caring I have no one here and unfortunately here it's the job of the family

dunnellon profile image
dunnellon

Just saw this posting Davey. I can only imagine your emotions running wild trying to process all this. I have no words of wisdom nor any personal experience to share, so I can just share virtual hugs and emotional support and hopes for the continued strength and the resiliency of your personality to help give you the best quality of your days. You have a lot of people thinking of you and holding you in their hearts.

in reply to dunnellon

Thank you, I'm keeping my self busy cake making and actually enjoying proper food. It's a lot to process and it's hard but I'll keep fighting

dunnellon profile image
dunnellon

👍

Thepainterswife profile image
Thepainterswife

Well , I’m definitely late to the party here Davey - 200 replies already , a testament to how much love there is for you here. Bad news indeed and yes you will need time to come to terms with what you’ve been told but I believe that with your temperament you will handle it well . I think you already know you’ve only been told you’re going where all of us will go and some of us may well go before you , it’s the way we make the final journey in this life that matters . Don’t dwell on the negatives , drink your JD’s watch you’re stars and one day you may well be playing amongst them , free from pain , free from worry - who knows ?? You’ve had a conversation earlier re star signs , well I’m an Aquarian ie I tend to often be on a different wave length to others . I’m not a card carrying tree hugger or anything but I do believe that the most important thing in this life is nature and the spirit in humans beings rather than the physical body I truly believe you have a great spirit in you that will find a peaceful way home when the time comes . In the meantime relax and find peace and pleasure wherever you can and in all you do xxx

in reply to Thepainterswife

For this I thank you 🙏 I'm under the stars each night hoping that I get abducted 👍🏼😂 hey who knows

Thepainterswife profile image
Thepainterswife in reply to

Exactly no one’s knows - you are just as likely to be taken to the stars as not 🤷🏻‍♀️ None of us have complete control over events in our lives but we do have complete control over how we choose to handle any event . Choose to relax ,enjoy your JD’s and stars and trust that with the love of all your friends here ( and medication 😂) your spirit will rise above whatever’s to come. ⭐️🌟⭐️☄️🌠

in reply to Thepainterswife

I will and thank you I appreciate your words and understanding

Digger0 profile image
Digger0 in reply to

Hm, the film Coocoon springs to mind!

in reply to Digger0

Now that would be good 👍🏼👍🏼👍🏼👍🏼

winabago profile image
winabago

I am so sorry for your prognosis, I hope you can keep up with your photos I have found them very up-lifiting, hope the diagnosis is wrong.

in reply to winabago

Would be lovely if the diagnosis was wrong but it's progressed very quickly but I'll keep posting as long as I can without a doubt 👍🏼

winabago profile image
winabago

Don't ever give up.

in reply to winabago

I'm not giving up I'll keep fighting

winabago profile image
winabago in reply to

That;s right, keep up the good fight.

in reply to winabago

I don't give up anything without a fight been like this all my life 👍🏼😂

winabago profile image
winabago in reply to

Good to hear.

in reply to winabago

👍🏼👍🏼👍🏼

Lupino profile image
Lupino

Hello brave man and cooker of the fruit pies! I want to wish you as comfortable and pleasant an evening as is possible. I’m part of your forum family. Sending you a gentle hug and love. Will look forward to reading your post tomorrow morning. x 💕

in reply to Lupino

I'll be posting without a doubt 👍🏼

Nicholatracy profile image
Nicholatracy

So sorry for such bad news. Live every day to the fullest. Enjoy your beautiful sunsets and the wonderful Greek food 🐞

in reply to Nicholatracy

Will do and thanks 👍🏼

DIAMOND2022 profile image
DIAMOND2022

Sending love daveyboy ❤️❤️❤️

in reply to DIAMOND2022

Gratefully received thank you you have my appreciation

HollyBoyd profile image
HollyBoyd

Dear Davey. I am lost for words, but I see that your friends here have said it all, and you have answered with your humour and positive outlook. I wish you well and look forward to more sunsets and fantastic dishes. Thinking of you star gazing with a JD in your hand. lots of love Holly xxx 😎

in reply to HollyBoyd

I'm outside right now doing exactly that a large JD tonight as I promised someone on site I would have an extra bit 😂 if I lose my humour I'm a lost cause with no fight so I got no intentions of losing it 😂

HollyBoyd profile image
HollyBoyd in reply to

And we are all with you. Enjoy the extra JD tonight 😎

in reply to HollyBoyd

I'm taking my time and savouring every drop thank you

HollyBoyd profile image
HollyBoyd

😊😊😊

in reply to HollyBoyd

I'll tell you a little something that I was told when I was 15 . My grandmother had a Romany gypsy knock the door my gran having Irish blood would never close the door to one, she told my gran that she had a young man in the house with a good heart but he wouldn't see his 60th birthday that young man was me . She said I would live a full life it always stuck in my head. It amazes me how accurate that old lady was .

HollyBoyd profile image
HollyBoyd in reply to

Unfortunately, a lot of what the Romany gypsies prophesy do come true but not everything. I do feel sad that you have believed that all your life, Davey. Maybe you accepted it and never questioned the old gypsy?

in reply to HollyBoyd

No it was also other things she said I would experience in life and it's only when things actually happen it's like a flash back. But that was a fair few years ago I'm no kid anymore mores the pity 👍🏼😂😂😂😂

HollyBoyd profile image
HollyBoyd in reply to

No kid, but a strong man 💪 😆

in reply to HollyBoyd

More like a stubborn old wrinkley 😂😂😂😂

Aingeful profile image
Aingeful

Thinking of you and sending massive hugs . xxxxx

in reply to Aingeful

Gratefully received with many thanks xx

Mavary profile image
Mavary

Oh Davey I’m so sorry. I knew things were bad but didn’t know exactly why. It’s a horrible thing to know. I nursed my Husband knowing he only had between two and four years. Luckily he had the four years. It’s a very difficult thing to deal with from both sides. I can only hope that if and when it happens it happens quickly and you don’t know about it.

in reply to Mavary

Looking at what information I was given I'm going to be in a fair amount of pain and will be aware of alot of what is going on, but the oncologist said that I would be in full control of the pain management I got what he was getting at being on morphine it is easy to use too much if you get my drift

Mavary profile image
Mavary in reply to

It’s usually regulated so you can’t use too much. But I’m glad they are taking good care of you and are not going to let you suffer.

in reply to Mavary

I know , it's not going to be pretty I know that much it was explained quite well, how was it worded oh yes imagine having a pillow pressed over your face. Oh it wasn't pleasurable to hear

Sutton5 profile image
Sutton5

I don’t know what to say Daveyboy1963, Except you are braver than brave , be the happiest you possible can be at the minute take care of yourself in the mean time Always here I don’t know how to post, just like and reply

in reply to Sutton5

Thank you and I'll keep ticking till I tock 😊

Sutton5 profile image
Sutton5 in reply to

And we will wind you up everyday to keep you ticking

in reply to Sutton5

For that I thank you, I thought of having a sola panel fitted but it is where they shove the wiring that bothers me 😂

BreatheasyBe profile image
BreatheasyBe

That’s so tough to absorb take your time working it all through. Keeping you in my thoughts. Don’t suffer in silence and ask for help when you required it.

in reply to BreatheasyBe

Will do

hypercat54 profile image
hypercat54

Omg! Sorry to hear that Davey. It must be devastating news for you and I don't know what to say. Keep posting your lovely photo's on here chuck and we are here for you. x

in reply to hypercat54

Cheers I will do x

hypercat54 profile image
hypercat54 in reply to

Ha ha you had better. Otherwise we will all decamp on you in the middle of the night without warning! Hugs xxxx

in reply to hypercat54

Best start wearing clothes when outside at night then instead of just boxers 😂😂😂😂

hypercat54 profile image
hypercat54 in reply to

And in bed..... 😁😁😁😘😘 x

in reply to hypercat54

Stuff that I'm in the raw then it's too hot I have fan on full to make sure everything gets cooled down 🥵🥵🥵🥵🥵🥵

hypercat54 profile image
hypercat54 in reply to

Oooer! We will all have our phones with us so you might end up on Tik Tok and go viral 🤣🤣🤣🤣 x

in reply to hypercat54

Oooh best paint a notice on the wall saying free willy part three

in reply to hypercat54

Well if it's going on tik tok ya going to need a title . Hence free willy 3 😂😂

hypercat54 profile image
hypercat54 in reply to

🤣🤣🤣🤣🤣 x

in reply to hypercat54

Glad that put a smile on your face 😂😂😂

Kristicats profile image
Kristicats

Such devastating news. So sorry to hear it. Your mind must be all over the place at the moment.It makes the phrase ‘live for today’ much more apt?

in reply to Kristicats

I live each day as it comes. Death doesn't scare me, it's not being in control and being alone. 2000 miles away from the place I was born.

Qr83k_-Jd profile image
Qr83k_-Jd

Well Dave, what can I say but I am so so sorry you had to hear such awful news, I think it is very sad. You are going to go through some hell, but it is lovely to hear you being so positive. I guess if you do not keep yourself jostling along then the reality of the situation may overwhelm you, which will happen when you are alone and you will become incredibly sad. I will offer my support and advice whenever it is helpful to you and I mean that. I am here for you Dave. Do you know I do not care what kind of feelings you may be experiencing, I am here for you no matter how you are. I firmly believe to accept a person is to accept the whole person may that being positive or sad. Okay Dave. May I ask how old you are if you want to answer but it is fine if you don't. I think you are an amazing, wonderful, loyal, caring and one of the most FANTASTIC PERSON I HAVE KNOWN, and what a humbling feeling I have towards you. I think it is grreat you are making cakes because that is something you greatly love to do. Great Luck to you Dave and remember there are lots of people out there who really really care about you.

in reply to Qr83k_-Jd

Well a week on Monday I will be 59 😂😂 but sometimes act like a twenty year old 😂😂😂 thank you for your support and I know I can and will call on you if I feel down but don't worry too much I am a fighter and won't let this beat me yet a while.

Qr83k_-Jd profile image
Qr83k_-Jd in reply to

I think I knew you were a FIGHTER, I am so glad to hear you will make contact when and if you need to. Well, Happy, Happy 59th birthday for a week on Monday. I will say it now as my memory is absolutely terrible. I/we look forward to hearing more from you about your health and your delicious cakes. Yum Yum!!

in reply to Qr83k_-Jd

You have a lovely evening and hope you have lovely weather tomorrow

Qr83k_-Jd profile image
Qr83k_-Jd in reply to

Thankyou and the same to you Dave. Xx

Bardear profile image
Bardear

Hello Daveyboy

Don't know you very well but am so sad to hear your news.

Have been through it with my father, my brother, my sister and my niece. Horribly unfair of the powers that be I always feel. All good people probably like yourself.

My niece lived in Tenerife overlooking the sea, fantastic views from her 7th. floor flat but had to travel to the mainland for treatment. All her family including myself lived in England but her Mum, sister and sons all visited on a regular basis especially her Mum. I and my daughter and her family visited once a year when we could.

She thoroughly enjoyed living there and passed the tests to become a Resident. Her hospital treatment was second to none far better than in this country she said.

So keep your pecker up Daveyboy. Enjoy your life as much as you can. Try a new interest/hobby - painting perhaps. I paint - though am not good at it - I use Acrylics because any mistakes - and believe you me there are many but they can be covered over. Can't do that with watercolours. I've got my head screwed on haven't I. Ha ha

So take care sweetheart, may the Angels walk beside you and protect you as you go through this awful business. Relax and let them do their work. Take it easy.

Bardear

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

in reply to Bardear

I thank you for your kind words and support at the moment my biggest fight is with the heat and humidity which is completely different this year because of climate change. Once again I thank you take care and keep safe xxx

Damon1864 profile image
Damon1864Volunteer

There is no need for thanks we're a family who support each other. You have a good day take care😊 Bernadette and Jack 🐕 xxxxxxx 🌻🌻

in reply to Damon1864

I know but you all need to know that I appreciate you all for your support understanding it's something I'm not used to . Xxx

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