IV PIC W CEFTAZINE FOR 2 WEEKS DID NOT MAKE. IT INACTIVE. THO COLONIZED IT SHOULD HAVE BEEN INACTIVE FOR A WHILE AT LEAST AFTER THE PIK LINE PLUS 4 MOS OR SO OF CIPRO 750.
THEY ADDED TOBRAMYCIN WHICH IS JUST CAUSING NON STOP MUCAS ALL NIGHT AND CANNOT SLEEP.
MY DR IS ON VAC SO FAR NO ONE HAS CALLED BACK.
ANYONE ELSE GOING THRU THIS AND WHAT TREATMENT WORKED FOR THEM AT LEAST FOR AWHILE.
I AM REALLY SICK.
THANK UY
I had two weeks of iv antibiotics ceftazidime and tazocin at the same time. The went onto to nebulised colomycin. This worked for me. I was told there’s no point using nebulised antibiotics until you’ve got the pseudomonas under control. I hope someone gets back to you soon as you clearly need some help.
Pseudomonas is a right pain and so difficult to kill. I’m on Bramitob as I’ve had it before about 3 years ago and it worked really well for me. The first 28 days went ok until the last week when I started coughing violently, as I’ve got EDAC (trachea posterior membrane goes into my trachea when coughing etc which weakens it) but stuck with it till 28 days finished. I’ve only managed 2 weeks of the 2nd course so far, and have been advised to take a little break. I’ve experienced coughing, mucus running out of my nose, and a wheeze. The problem is it doesn’t stop when you have had the dose. Sometimes when I took a dose the side effects were bearable. Then I’d wake up in the night and the side effects would kick in. They were so severe that I had trouble completing this course. At present I have a chest infection. I’ve been on 3 lots of prednisone and am now reducing dosage. I’ve been on Co-Amoxiclav course of 14 days but went back to drs as it clearly wasn’t working. The dr changed the antibiotics to Clarithromycin which I finishes on Sunday. I’ll pop another sputum test in, though not sure how long the antibiotics last in system, perhaps someone will know.I have resistant to Ciprofloxacin which is the only one that can kill pseudomonas, and Charlie G has suggested I try it again. One of my sputum test went missing, and the 2nd one showed flora, but that was because I was on the antibiotics. As normal antibiotics aren’t working personally I think I have pseudomonas but until it’s been proven by sputum test they are reluctant to prescribe more antibiotics. Charlie G (fountain of knowledge and very helpful in these matters) suggested doxycycline, it won’t kill the bug but should hinder it. I’ve been in contact with Chiesa and explained my side effects which I think are severe, but as they are mentioned as side effects on the information pack, to no avail. However they have contacted me for more information on the way that Bramitob is affecting me, so I’ll see how that pans out.
I’m sorry it’s such a long message but I just wanted you to know that I fully understand your side effects, and to let you know that your not alone, others on the forum may be able to help you further. Best Wishes
Thanks for gettin back to me as i am so sick w green thick mucas coming out of mouuyth and mucas in my nose and spitting it up all nightk, no sleep. i was trying the tobramycin nebed and they wnat me to keep doing it but it makes my throat so sore and for some reason was causing so much mucas at night i quit after 4 days. My pul dr is out of town so finally manafged to get my gp to prescribe Cipro 750 which helps .Is Bramitob nebulized?Do u use nebed saline and use a vest twice a day as I do? the vest helps. prob for me w saline isas it really helps get it up the only. sway i can get it out is in hot showwer so have to do tht twice a day and then was adding toby after..allt his is exhaustiing as i am exhausted all the time too. I am in Sacramento CA and am 78, with immune disorder too. living alone w my cats .sorruy for typos just got up and saw your post and wanted to respond asap.
Bramitob is like Tobramycin, yes it’s nebulised, hence the side effects. I haven’t got a vest, though British Thoracic Soc. report it’s the best for bronchiectasis patients and saves hospital stays etc. Hopefully they will become more common. Funding is always a problem in UK but the cost is set against Hospital stays etc. so that should be taken into consideration.I’m currently nebulising Ipratropium, salbutamol and 2 saline 3-4 times daily. Do you do manual chest clearance as well as use vest? I agree that it is exhausting, as it makes daily living very difficult.
I hope you get better soon and send my best wishes to you.
What is a vest and how does it work? Thanks.
I have answered your message.Bramitob is a form of nebulised tobramycin.
New Lungs or not
Pain in lungs
Pseudomonas
Pseudomonas
