Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials of blood! There were more but the doctor wanted to see me so they've had to wait. Still, I've had a good mot.😂 After these and a chat with the doctor and transplant co ordinator we have decided, for now, to remain as I am, with frequent monitoring. Palliative care are being contacted to help me with the cough. Possibly oramorph but I did have an allergy to morphine following my last surgery. Weirdly my fev1 and sats were both better than they have ever been! Harefield, when compared to my local hospitals the Churchill and JR in Oxford, was quite bijou.
Lung transplant clinic appointment - Lung Conditions C...
Hope everything goes well for you, please keep us updated. Have a good day and take care 😊 Bernadette and Jack 🐕 xxxxxx 🌻🌻
Thank you for the update Karenanne. I have read from others undergoing this assessment that they leave no stone unturned. You are at least on their books now and I hope that they can find something to ease your cough.
Yes, it's like being in a holding pattern, I'm on their rader and being monitored. I'm obsessed by planes just now as we're flying to Ibiza on Tuesday, I'm so excited!
I hope that you have a smooth transfer through the airport and a lovely holiday xx
Oh so do I. We are still waiting to hear if the assistance we have requested will be available.
Ask again at the airport if it's not forthcoming. My daughter did that last year for me because I hadn't been able to manage it on the Easijet web site. Made a big difference.
Thankyou, husband had phone call earlier today to discuss what assistance I need. We've arranged a wheel chair from check in to the plane. And they are aware that I can manage the steps to the plane 'in my own time'. I.e. lots of coughing and stopping. Off to see Giffords circus now so more excitement!
You're really living it up, setting a good example to all of us. At Stanstead last year the staff were so anxious to look after me well that they even forgot/ omitted to put my bulging rucksack in the hand luggage tester thing.( A bonus.) They also shunted us to the front of the queue to board the plane. The airport was much less of a hassle that way,so I hope you get the same treatment. xxx
You’ve certainly been thoroughly tested and looked after. Wishing you well for the future. Xxxx
I have! So much blood!
When I was at RBH the phlebotomist couldn’t believe how many phials she was asked to fill. I think it was eight.
That all sounds positive, wishing all the best for the future. Have a great holiday xxx
Wow… Though to be honest I am not surprised. They really have to check everything for such major surgery. I am intrigued by your sats and FEV1. I believe that stress and the resultant adrenaline rush “normalises” my results. I am not very SOB when I see doctors whereas at home I am really struggling. I have tried to find out a bit more about the effects of stress but I think it is an area that is under-researched. All the best
pleased you’ve now seen good Consultant, enjoy holiday, best wishes,Jeanx
This all sounds positive Karenanne61 and glad to hear that your fev1 and sats are good it all helps to cheer us up. Have a fab holiday and enjoy yourself x
Well you certainly did have an MOT so pleased they are going to monitor everything. Take care x
That all sounds so positive Karen. My best wishes for the follow up. Grace
I'm glad you are now on their radar and hope this means you get the optimum treatment from now on. Hope you have a really lovely holiday.
This is very good news. This means you still have wiggle room. I am very pleased you don't have to be listed yet. I'm happy for you Karen. xx ♥️
my doctor doesnt seem to think im ready for a transplant yet I really hope everything goes really well I ll be thinking of you