I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there web site on transplants i have been going out my mind with worry. There have been reports of more deaths after transplant many died within 5 years after transplant. I'm a 44 year old mum of 2 I have a son 26and a 8 year old daughter .I don't drink or smoke so to be told my lungs are packing up is hard getting my head round ..I've been an all kinds of tablets and steroids nothing's helped my lungs get better left with the decision of lung transplant . Can anyone share there stories if had any bad or good experience at Birmingham hospital.
I'll be very with gratefully feed back