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Phone review

Blackbird8 profile image
20 Replies

Had my copd phone review with the GP nurse ...

I scored 0 on the charts but she then asked had I considered taking anoro rather than spiriva respimat.

Why fix something when it's not broke and try to change you from one thing to another.. its beyond me I told her I didn't like a powder inhaler but she still explained it all to me after saying no 🙄 anyone else take this anoro ...have you changed ...is it better than what you were taking..

Apparently it decreases the use for ventolin which I use once in the morning..then in the afternoon and before going to bed many thanks all

💜💜💜

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Blackbird8 profile image
Blackbird8
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20 Replies
sassy59 profile image
sassy59

Stick to what you’re happy with Blackbird. Pete can’t use the powder inhalers so that’s that. Xxxx😀🥰😘💖

Blackbird8 profile image
Blackbird8 in reply tosassy59

I couldn't agree more I did have one before it got caught in my throat and made me cough terribly..

I used it for a month and gave up using it ....sprays I just find so uncomplicated 😃

sassy59 profile image
sassy59 in reply toBlackbird8

That’s how Pete feels. He used to choke terribly with the powder inhalers. Xxx😘😀

2greys profile image
2greys

I had a similar experience, whist in hospital, COPD nurse wanted me to change to a once a day dose of a triple inhaler. I said the same thing "don't fix what is not broken" and she still went through all the sales patter. My Oncologist has already said that it is fine to take an extra puff of my Fostair if I need to since my breathing has gone downhill. I do not do that unless I really have to, a toss up between being able to breathe and getting leg cramps or not. What could I do with a once a day inhaler? She was most put out to find my inhaler technique for both MDI and powder ones was perfect. I wonder just how qualified that particular COPD nurse actually was, I seemed to know more than she did. She was the only one I have come across in 4 years though.

I've had my telephone respiratory check, no idea I was being scored and I wasn't told my score if I was.

Sorry I don't know anoro. I take spiriva respimat, the nurse did say if I start to find operating the respimat difficult (due to arthritis in hands) there is an alternative but I don't recall her mentioning by name.

jackdaw1 profile image
jackdaw1

Stick with ventolin.

flicky1 profile image
flicky1

I take anora, which replaced the seretide which I should never have been on. I have been as well as I can be on the anora with no apparent side effects, I rarely use ventolin and I am sure that doesn't do anything much for me. I have emphysema.

katieoxo60 profile image
katieoxo60

You sound like me why fix it if not broke. My inhalers work but everytime they try something different I end up with a flare up of symptoms. But its the general trend to try things that may reduce your other drug intake these days. I don't think nurses should be altering drugs ,changes should be monitored by your GP incase of reaction, my opinion of course, unless you have a specialist Asthma nurse / lung nurse. Good luck with it.

Bingo88 profile image
Bingo88

Morning Blackbird8. Obviously no universal system in the doctors practices I have never had a phone review or anything to do with my copd. Will have to remind them Supposed to have a severe obstruction they said on diagnosis But Respiratory nurse visited me and said i did not need inhalers at all Take care have a good weekend Brian

teenieleek profile image
teenieleek

I’ve been using Anoro for nine months and I’m happy with it. It doesn’t “feel” like powder, no catching the back of the throat or residue on my tongue. Hard to tell I’ve taken anything except a slight taste. Must be very fine powder. Effective though I think and no steroid in it. Stopping the steroid inhaler (Relvar Ellipta) made a big, positive difference to me. I know Spiriva, like Anoro, isn’t a steroid one but it’s sometimes worth trying out something new, you can always go back to the previous one.

anng18 profile image
anng18

Anora was not bad for breathing, but gave me a very bad stomach. I'm very slim and it gave me very sharp stomach pains and bloating. I actually put on about 6lbs. I mentioned this to my respiratory nurse and she denied the medication caused it, but when I changed back onto Spiriva, as I insisted, the pains, weight and bloating went away.

I'm now on Spiolta, which I find has less side effects for me.

Yes, why do they want to change your medication when you feel ok on the one you take.

Earlier this year, Fostair was forced on me 😢

watergazer profile image
watergazer

You know your symptoms best and what works for you bb. My feeling is that a face to face with a specialist is the way to think about changes. x Anita

ennabell profile image
ennabell

I had my review, it lasted less than two minutes, box ticked. Useless. You know what is best for you.

Blackbird8 profile image
Blackbird8

Thanks all I'm sticking with what I have regardless of any changes they want to try and make it wont happen stay safe 💜

HungryHufflepuff profile image
HungryHufflepuff in reply toBlackbird8

Good for you. I had inhalers that worked but was 'sold' new ones that didn't help and now can't find any that do work for me. I don't understand the logic of changing something that works just fine.

Jackieshep57 profile image
Jackieshep57

I find the powder inhalers make me choke. I have Forstair 200/6 which suits me.

Caspiana profile image
Caspiana

Hello Blackbird8 , 👋🐾

I'm not sure what scoring zero means, but I was on Spiriva for years. Honestly, I would not go messing about with changing if you are happy. New medication always brings new issues sometimes good but not always. Take care and do keep sending us your lovely photos. xx 📷🐴🐄🐾

Blackbird8 profile image
Blackbird8 in reply toCaspiana

Hi Cas

I was asked a few questions from a sheet of paper that score between 0 and 5

0 being good

5 being not so good

The questions are pretty routine do you sleep well .do you eat well

Anyways I have told her no im not interested in any changes to meds and that's the end of it 😂😂 hope your well and staying safe 💙💙

dufflex profile image
dufflex

i was switched from spiriva to anoro as it wasnt really working for me, difference was like night and day im now an anoro convert

FormerT profile image
FormerT

Used Braltus (tiotropium) for several years no problem then Surgery Lung Nurse changed me to Anoro. Several dizzy spells followed so changed back to Baltus for a month to see, no more dizzy spells. Now back to Anoro and return of dizzy spells and I passed out on one occasion. Could be a coincidence I suppose but is Anoro responsible?

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