Saw respiratory consultant today, for results of ct scan etc. Apparently I have an upper lobe cavity in the left lung. This has increased since last scan a year ago. She feels it may have bacteria lurking within , combined with the scarring this is causing the chronic bleeding. As cipro had a better result than other antibiotics she is querying pseudomonas. They have reconsidered a bronchoscopy as she is concerned that the bacteria will be flushed throughout lung and cause sepsis, she feels due to my weak state my body wouldn’t cope well. The next step is that they want to consult Professor Loebinger at Brompton and be guided by him.
Bloods were okay, sputum showed up a fungus but not heavy growth.
Fev1 is 1.1. Fvc 1.5
So that’s about it for now, will just carry on as we all do one day at a time.
Thank you all for your kind words and support .
Take care and best wishes to all lung chums.
Liz x