4th Mid Line Insertion ouch ouch and OUCH!!

[Clareyg]

I’m back on a different IV antibiotic ceftazidine as the Tazocin didn’t sort out the bug in my lungs which has returned with a vengeance l. Another line was inserted 5 days ago in my left arm - just as it’s recovered from the last insertion. This line started to play up on Friday afternoon when my arm started to become painful and hot so off I went again to the hospital to have that removed and instead inserted into my right arm. This one is really painful as it’s sitting across the fold in my elbow although it is working fine. I’m counting down the doses and praying cef does the job this time and the line comes out before Christmas. At least the pain from my arm is taking my mind off the mucus and wheezing! C x

[cofdrop-UK]

Oh no sorry the Tazocin didn’t do the trick for you and hope you have more luck with the Ceph.

They have been doing self administered IVs at our hospital for some time now and like you, I have just completed my 4th this year. As the exacerbations were so frequent anaesthetics weren’t happy and it isn’t good on your veins they want me to keep this midline in for a year, flushing it daily. I’m not happy to do it for that length of time and so have opted for a PASport.

Do you have a cover so you can shower easily? Hanne told me about it and it has meant the world of difference.

Everything crossed for you that this treatment will prove effective and you can say goodbye to your midline.

Love cx

[Clareyg in reply to cofdrop-UK]

Thanks for your reply. It’s much appreciated especially as you and I seem to tracking along similar paths at present. Are you feeling any better yet? I can’t imagine keeping the line in for a year I find it really restrictive and this one especially is very uncomfortable to the point that it’s painful much of the time. You must be very resilient. I think I’m being hit with the heavy duty ABs because the consultant wants to start a second course of antifungal meds straight after Christmas. I’m hoping they are tablets because giving myself a dose of IV ABs at my desk at 3pm in the afternoon really isn’t great at all and I’m trying to keep working through this at present. I pack the dosing kit into a sandwich bag to take to work! Isn’t it odd how quickly we adapt to a new challenge such as home IVs? I never thought I would be able to cope with making up the AB and dealing with the line etc but I’ve surprised myself and my family.

Yes I have a limbo so I can bath and shower to cover the dressing it worked fine until this morning when I think the seal failed so all was soaked this morning - fortunately I have a spare bandage to cover it up whilst the other one dried.

Thanks for keeping in touch.

X

[cofdrop-UK in reply to Clareyg]

OMG I am so full of admiration for you. Desks are not the cleanest of places (saying she who has to wipe the tabe down with Clinell Detergent Wipes when the cat has decided to take a short cut to the window cill). You must go through loads of Sani-Cloths. Have you got one of the white partition trays. I find them clean and keep my flush stuff, abs stuff and heperin stuff in order? I did them over last Christmas and New Year away from home at my sister’s house but I couldn’t imagine doing them at work. You are something special⭐️

Oh no so sorry the seal broke on the limbo. Couldn’t find mine this morning and had to call St. Antony (I’m not particularly religious - failed Catholic but he never lets me down!) Supposed to be doing hydrotherapy at the arthritis clinic but of course can’t whilst this midline is in and let’s get our priorities right a SPA would be impossible and that’s just not on.

I can’t imagine leaving it in for a year either but apparently a lady at ours has just had hers replaced after 12 months. Hats off to her but it’s not for me. This one is very high but the dressing is not covering the hard bit on entry and the sticky dressing is too close to the elbow to get the tubing turned away from the elbow, so I have eased the sticky off a bit and place the clampy things (the the technical term 😉over the honeycomb dressing. So I feel your pain.

Have extreme pain at present in lung on coughing, breathing and blowing my nose and I think the gram pos bacteria are being oportunistic following the kicking the gram neg has had.

Oh poor you having to start on the anti fungals - it’s a bummer.

Still can’t get over the fact your working with this exacerbation but amazed you are doing your IVs there. Do your colleagues know not to distract you and to answer the ‘phone for you so you can concentrate.

One of the cf nurses told me during one of my courses when my then 7 year old granddaughter was worried about me to involve her by allowing her to help with the IVs. She was right as she was less concerned about it after helping and now just asks if I’m doing them if I want some help.

Like you say Clareyg - it funny how quickly you and your family get used to this stuff.

Not sure how far through you are but I have everything crossed you will be rid of this turbulent beast soon.

Keep us posted.

Love cx

[RoadRunner44]

Life is so full of difficulties Clareyg particularly when we have poor health. Reading your post and others makes me appreciate Im not anywhere nearly as poorly as you and others here. I find it helpful to share my feelings of frustration at times with a dear friend. I hope you. continue to feel you can also do that here amongst your forum friends who always understand and will offer support when you need us. I sincerely hope things improve for you soon. Kind regards. CHRYS

[Clareyg in reply to RoadRunner44]

Thanks for your reply. I really find the forum a great support as are my family and friends. I’m looking forward to a more stable 2020 hopefully.

Best wishes to you for the festive season

X

[HungryHufflepuff]

Ouch! 🤕 I have nothing helpful to contribute here but I just wanted to wish you all the best and I hope things start to improve for you soon. Sending you lots of good wishes.

[Patsy164]

Just finished ceftazidine 10 day course in hospital it got rid of all wheeziness. I hope it does the trick for you. X

[peege]

Ouch indeed. Fingers crossed for you

[Mooka]

I hope the ceftazine works for you. I sympathise with you it’s painful and awkward to have the line in the crook of your elbow. I take my hat off to you working through all this too. I have everything crossed for you.