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Carkaisabellacolin profile image

Hi all

Having recently been in hospital with a terrible infection. My Dr has since been treating me with zindolin 500mg as my culture indicated psudemonas bacteria

Does any one have info reģarding this bacteria in bronchectasis patients. It's been one week and still not feeling good my lungs are full of mucus and feet starting to hurt.

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Carkaisabellacolin profile image
Carkaisabellacolin
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23 Replies

Hello Cark. ...,

Zindolin is another name for ciprofloxacllin (cipro to us). It is the only really effective oral antibiotic against pseudomonas. Those of us with bronchiectasis take 750mg twice per day for 14 days. Some cannot tolerate this drug and then a session of IV meropenem or colomycin is indicated to knock the bug on the head. Nebulised colomycin, tobramycin or ceftazidime can then be used to keep the numbers down. Once colonised with pseudomonas it is always lurking in there, even if numbers are too low to count on a petrie dish. There are quite a few of us who live with pseudo (me since 1986). The idea is to keep the numbers low enough to lead a normal life. I hope that helped.

Carkaisabellacolin profile image
Carkaisabellacolin in reply to

Thank you for your reply.

I will be seeing my Dr on Thursday to see how I am getting on. I still feel chesty and the mucus us sticky.

Let's hope I respond to the antibiotics as lying down I really feel the pressure in my lungs.

I am hoping i wont need hospital treatment.

in reply toCarkaisabellacolin

Good luck. I have been dodging having IV for some time. I have just had a nasty virus which set off my bronch. Now nine days into cipro and hopefully will dodge IV again. Don’t forget than when you have an exacerbation you have to work extra hard to get as much gunk out of your lungs as possible.

Carkaisabellacolin profile image
Carkaisabellacolin in reply to

Yes that's what I am trying to do taking trebon for mucus but tough. I am still trying to keep up my walking painful as it is . Fingers crossed.

Thanks again

Helps to know i am not alone

janice01 profile image
janice01 in reply toCarkaisabellacolin

Have you been trying postural drainage. ie letting gravity help with the drainage....

And 750mg cipro twice daily for 14 days!

Unlike Little Pom, I can't take Cipro as it causes me to have Tendonitis. So I have 14 days in hospital on IV Taxocin or Meropenham. I was first colonized in 2012 and had about 3 years in and out of hospital. But for three years I've been pretty stable, even though I know it will always be lurking. As LP says, you can lead a normalish life with Pseudo.

Carkaisabellacolin profile image
Carkaisabellacolin in reply to

Thank you for the response 😊

crashdoll profile image
crashdoll

Hello :) I have bronchiectasis and had IV tazocin for pseudomonas and it massively improved my symptoms. I really hope the oral antibiotics make you feel better soon. Such a horrible bug, made me feel so poorly. Take care.

Carkaisabellacolin profile image
Carkaisabellacolin in reply tocrashdoll

Thank you

I agree its been awful really trying to stay positive and keep fit. Beginning to realise this bacteria could be around for a while. 😣

crashdoll profile image
crashdoll in reply toCarkaisabellacolin

It’s tough but keep your spirits up, hopefully they can treat some of your symptoms. Are you able to bring up your sputum? If not, maybe they can help you with chest physio? Take care of yourself and fingers crossed this antibiotic helps you.

Carkaisabellacolin profile image
Carkaisabellacolin in reply tocrashdoll

Thank you keeping fingers crossed.

janice01 profile image
janice01

Sorry to hear you not well.

Ive had it before and it was under treated....

Ended up in Brompton on intravenous anti's. Which responded moderately.

Was told important to hit it quickly with 750mg Cyprofloxacin twice daily for 14 days.

Have followed this advice each time sputum cultures psudomonus and its under control.

By that l mean it still shows up from time to time ...

I know its important to hit it hard and quickly. My Bronchiectasis has not worsened over last 10yrs.

I believe for me, this regime has made that so...

Good luck with your progress...

Carkaisabellacolin profile image
Carkaisabellacolin in reply tojanice01

This week will have been 7 days on the antibiotics seeing the dr so will mention the higher dosage .

Thank you for your support

Patsy164 profile image
Patsy164

Hi Carkaisabellacolin I am the same Bronchiectasis with psudemonas and I also take ciprofloxacin when I get an exacerbation. I can only tolerate 500mg twice a day. It’s a horrible bug but the drug does help and I find it gives me a few months feeling better. Or should I say as best as we can be. I do hope you will start to feel better soon and be able to go back to a less gunky free breathing.

Carkaisabellacolin profile image
Carkaisabellacolin in reply toPatsy164

Thank you i woke up more positive today . Keeping fingers crossed 😎😁

Danielmystar profile image
Danielmystar

Why are your feet starting to hurt

Carkaisabellacolin profile image
Carkaisabellacolin in reply toDanielmystar

Not sure sometimes I read that the meds can have this reaction not sure so will share this with my Dr.

Izb1 profile image
Izb1

Wish you all the best Carkaisabellacolin and hope you get better soon. Make sure your daily intake of vitd / k2 mk7 and magnesium are kept going as I believe this helps your body to fight off these infections quicker as well as plenty of water to help with daily lung clearance x

Carkaisabellacolin profile image
Carkaisabellacolin in reply toIzb1

Yes thank you drinking lots and taking my supplements. 😊

Gingerapple profile image
Gingerapple

Good morning to you. I'm sorry I don't have any advice for you, but I will think of you and wish you a good Monday. Hug☀️😋💐

Carkaisabellacolin profile image
Carkaisabellacolin in reply toGingerapple

Thankyou 😎😁

ssafa profile image
ssafa

Like many others I too have the same problem with various infections over the last few months and have been on 3 separate bouts with pseudomonas.

I try to keep exercising and trying to get rid of the mucus. You just have to stay as positive as possible and never give in to it.

Carkaisabellacolin profile image
Carkaisabellacolin in reply tossafa

Yes your right. 😊 Even though I am zapped from exercising before and after mentally I keep telling myself it could be alot worse.

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