My sputum test came back with this rare bacteria. That’s all I needed 😃
Thought it wasn’t a virus..Anyway being sent to the respiratory team again..they were supposed to come this evening but never did, it looks like it can be a hospital acquired thing...maybe when I had my eye op??
Not sure but I think it used to be called Klebsiella? Which certainly can be a hospital acquired one. I haven’t heard of the ornithinolytica variety tho. I’m sure you can do without the notoriety of having such a rare bug! Given your history & susceptibility, I’m sure your docs will be on the case tomorrow & beat it into submission
I got Klebsiella in February after being in RBH for two days having trials .I'm due for my LVRS op on the 8 th October so I'm having to take antibiotics two weeks before I go in , so I start them on Saturday .I looked it up and it is a hospital thing .
Thank you for the info Babs 🤗. You are having to take preventative abs?? One would have thought the RBH was top clean, incredible..I thought Swiss hospitals were clean but here we are..
Yes I'm starting Amoxiclav 3 times daily for two weeks prior to me going in .I start tomorrow . They found out after I had the trials but I had a bronchoscope and the tube up the nose down the throat so your guess is as good as mine how I caught it ???? .
Oh Fran u arent a full member of the lung elite if u dont catch a superbug of such description lol ...im stuck with 1 from when i was in intensive care ...hope u start feeling better soon ...xxxxx
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Are you too? Honestly aren’t we a pair xxx
Oh my goodness Fran. Another emerging hospital aquired bacteria - presuming that you haven’t been scuba diving! I do hope that they get a grip on it. From doing the reading I guess you could be right about when it got in.
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I saw aquatic water! I don’t know..maybe from the nursing home nebuliser I thought? I bought a new one a pari boy was all I could find and installed everything yesterday.
Good thinking, Fran! So sorry you’ve got another thing on your list to deal with. I read that a water infection is a common manifestation in humans...keep drinking water, flush this stranger out!!
Difficult to know isn’t it but it does seem tobe hospital aquired through invasive or surgical procedures. I have several nebs aquired over the years from different sources. I have recently bought a Pari eflow ( extortionate). It is strange because the drug comes out as a fine mist. My consultant tells me that it is just as effective as the ineb (2400 to the NHS which is why very few are prescribed promixin which goes with it). It only takes five minutes and best of all has no tubing which has always been my ‘germ’ concern. I sterilise it once each day either in a baby steriliser or in milton. Too early to say if it makes the ab more effective and I am about to give colistin another go so we will see. Do keep us up to date with the strange bacteria story.
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You are right Littlepom, the pari boy is the NHS one I had before, it takes a good 20mn. They say to wash things in washing up liquid every day then vinegar once a week in my manual.
I will ask the nurse what she has in stock for me. But we can’t wash the tube so that’s not good. The nurse said anything in plastic do not keep more than 4 months.
Good luck with colistin!
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I used to rinse the parts of my conventional nebuliser after every use and boil them once each week. Although I worried about the tubing I never got any bugs from my neb and I have been nebulising mostly since 1983. The standard plastic pots etc are pretty robust and I have bags full which I interchanged over the years. I did get them to give me new tubing though. I do feel that the NHS is stuck in a throw away culture as a low risk policy on infection but at home as long as we are sensible we can keep these things going much longer.
That’s same one as mine really WELL Raoultella bit.
The call it a hospital soap bacteria AM sure I got mine when had camera up nose down Throat.
Usually it don’t effect people but will those immunity compmirised.
It can cause respiratory distress ie throat swelling even sepsis
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I’m trying to think I was already sick when they look at my nose and throat.
I thought about my eye op, my eye was sore and swollen he washed with loads of serum but you have put your head and chin in all those machines for check ups etc.
Well I am on steroids so my immunity is compromised. Thank goodness I had the pneumo jab..because it definitely went down my chest.
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Lot of GP labs are not geared up for checking that AS such commen bacteria ITs only hospitals specialists labs have equipment to screen isolate.
The want to put me on home iv’s but have not needed big guns as am carrier but I still had lot symptoms.
Asymptotic think the called it
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So maybe I caught it from a carrier and not a machine because the first respiratory physiotherapist was snivelling, had no mask and I thought I had caught it from him.
Does it mean I passed it on! Because I haven’t had a temperature I have been out and about with a cough..great..lucky I kept away from the little old ladies in the home..
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One way to home test and that’s sneeze 🤧 on a plant.
I have too plants mini trees at my house COST me £46 each and there dieing from root up HOW why beyond me.
I think you might of or from hospital but am sure the won’t be too keen on seeing you there.
Forgot to mention doctor who made it famous as end of world bacteria ALSO this some debate as might of been GM modified bacteria IT kills plants from root up
And quite destructive SO stoped using it as weed control as could not control it.
Amazing, Fran, my, what notoriety. Birds, French ornithologists, off-the-scale rareties, you need your own team of research fellows. Sputum pots at the ready.
I sometimes think 🤔 the only positive is that we who grow these oddities wind up being able to pronounce them better than the lab techs who culture them. 😏 My heart goes out to you. I know you are a viewer of the sunny 🌞 side of things, but damn!
Hopefully they will give you the right cocktail of pills large and small and you'll get better quickly. Sending along all the best ✨💫
Last night, my GP being on holiday, I emailed my report to that team of doctors who is supposed to follow me..list which is getting longer by the minute..😃 put them all in copy of each other..and felt better for it! 😉
Well when I saw the name I thought what is that?? Bird 🦅 Flu 😷??
Then I looked it up..
I have had so many hospital tests since I must have left a trail of bugs behind..so sorry for the people I have been in contact with..I had my brother over from Singapore this weekend I wrote to him to warn him. I am so glad Bea is in Italy.
All that because that silly consultant didn’t believe me. He sent me packing with paracetamol..
Well looking on the bright side 😃maybe now they will be more careful when I say I am sick I need antibiotics..
Dear Fran, I did have this nasty a few years back. Knew something was off. Did the old sputum culture... wound up in emergency. Turns out, my doctor was out of town and the results sat on her desk for nearly a week while I deteriorated. 😞
Like you, I'm immunocompromised. However, as far as I know this little nasty doesn't spread as easily as all that. It seems not to trouble those walking well, those blessedly healthy sorts. Oh you know the ones who take to their beds with a sniffle. Just sayin... Anyway, I don't think you need worry overly much about spreading it. Unless you fly of course, airline air being what is.
I can't remember what antibiotic I took, but I believe I was on them for three weeks.
I really, really, hope you aren't knocked for a loop and mend well soon!
I don't know about you, but in my next life, I plan on being something that doesn't cough, EVER!! (Like maybe a tree, grasshopper*,what is the sound of one tree coughing?) (*Kung Fu, tv show)
I usually have to do three weeks, but yes, it's hard on my stomach, keep me nibbling all day. Oh but hey, because of my crappy lungs, the weight kinda stays off...
Hola Amiga, Buenas dias. When does the Book get released! For all you have been through, You Could Write One. The Professionals could Learn. Hope your OK Fran, and feeling Better soon. Sending Abrazos y besitos. xxxxx
Sorry to hear things are not going so well for you hope things are better in a few days, I've got a few drs visits coming from tomorrow. Physio going fine . Keep as well as you can Fran. I'm busy with the decorating this week try to catch up with you again at the weekend, bye for now xx
Oh! poor you, I'm sure you are sick to death of having things go wrong. I just hope they get you on the right meds and pronto, you cant afford to take chances with your eyes. My Mum had an infection when she had her cataract/lens done years ago at the MRI they didnt do sputum tests, although she did have r.a. I took her back to emergency 5 times before they got it under control, after that she wouldnt have the other eye done. I dont have much faith in UK hospitals they all need a good clean. I hope you get better soon xx
The important thing here is not that the bacteria is rare but that it as not of the type that is resistance to antibiotics. When a specimen is sent down they culture it. Which means they put it in a medium to promote the growth of the bacteria. At the same time the will carry out tests to see which antibiotics the bacteria are sensitive too. Basically they divide the medium dish up and place differing groups of antibiotics in each section. They then add the bug. Obviously if the bug grows then that group of antibiotics cannot be used. If they do not grow then that is the antibiotic to use. Also if it a hardy bacteria the sensitivity test can indicate combinations of antibiotics which can be used. So I believe that you need not worry about having the right medication.
Hi, sorry to hear of your woes, hope all goes well later on. I had a bacteria problem at the begining of the year, Mine turned out to be Psuedomonas another oddball. Initially treated for chest infection, then it took the hospital some weeks to finally work out what it was and was treated with a very strong antibiotic & steroids.
Hey HappyLondon. I stuck ornithinolytica into a search engine and came up with a medical article that had fish connotations rather than birds or hospital infections! You haven't been eating tuna recently have you? [No idea how this 2009 piece relates to any more recent stuff you may have come across so I'm not suggesting you give it much reading time!]
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