Relvar Ellipta 92/22: Anyone else found... - Lung Conditions C...

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Relvar Ellipta 92/22

Bingo88 profile image
16 Replies

Anyone else found this makes there Shortness of breath worse. I am newly diagnosed. Been on this since last Saturday. Doctor did not consider giving me anything else. Due to B/P. And i am waiting for a pacemaker. Felt a bit better ref breathless. Before i started taking it. May leave it off a few days see if it makes a difference

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Bingo88
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16 Replies
WindsweptRissa profile image
WindsweptRissa

Although the long-acting bronchodilator component acts fairly quickly the steroid component can take weeks to take full effect so stopping after only a few days will mean you won’t know how much good it could do. I wouldn’t recommend stopping it without at least discussing it with your doctor.

Bingo88 profile image
Bingo88 in reply toWindsweptRissa

Yes ok Thanks for your advice. Only got a few days till blood test results. So will carry on till then. Thanks BRIAN

Caspiana profile image
Caspiana

Hello Bingo88 .

I was on Revlar and it has never made me feel more breathless. But everyone is different. I would recommend ringing your doctor before you do anything. It is best to inform him / her.

Take care.

Cas xx ☀

Bingo88 profile image
Bingo88 in reply toCaspiana

Thanks for taking the time to reply. Cas. Will give it till midweek i guess. Then got to ring for blood test results, Off down town this see how i do. Enjoy your weekend. xxxBRIAN

joyce74 profile image
joyce74

I have been on it for just over 12 months and it suits me well. My voice gets a little croaky some times., nothing else

Bingo88 profile image
Bingo88 in reply tojoyce74

Thanks for your reply Joyce74. Trial and error cause all things work for some but not others. Enjoy your weekend BRIAN

Corin1950 profile image
Corin1950

Hi Brian

My husband who'd been on Spiriva and Symbicourt for several years was once put on Relvar Ellipta after a meeting with a consultant who found a test result showing an Asthma component in his condition. (The test was a very raised Ig score). He did not find it helpful at all and was quickly changed back. This test result was probably a one off or even a mistake on their part. You may find Relvar helpful if your COPD has an asthmatic component. My husband now uses Trimbow.

Good Luck with it all

Corin

Bingo88 profile image
Bingo88 in reply toCorin1950

Thanks for the Reply Corin. All i have been diagnosed with at present is COPD. which could be anyone of the diseases in that group. Got blood result to check for Alpha 1, Family Hereditary disease early next week. So hope they do more tests after that, So i get treatment to help me. Thanks again Corin, Hope you and your husband enjoy your weekend BRIAN

Corin1950 profile image
Corin1950 in reply toBingo88

Let us know the results

Take care

Corin

Bingo88 profile image
Bingo88 in reply toCorin1950

Thanks Corin1950, will do

frose profile image
frose

Yes, it made me very breathless and ill. It doesn't suit everyone.

Bingo88 profile image
Bingo88 in reply tofrose

Thanks frose. Yes your right. Looks like its going to take some adjusting to meds. Hope you enjoy the weekend too BRIAN

katieoxo60 profile image
katieoxo60

According to the patient leaflet this drug & dosage you have been prescribed is supposed to be good for asthma & mild COPD. However these RElvar inhalers were researched for asthma patients mainly and higher doses are not reccommended for patients with COPD of any kind.Many people are just being used as guinea pigs in respect of use for COPD. I would raise the issue of your breathing being worse with your GP. I was prescribed Relvar Ellipta 184/22 and ended up in an ambulance taken to hospital because of the effects on my breathing. Take Care

Bingo88 profile image
Bingo88 in reply tokatieoxo60

Thanks for your replyKatieoxo60, My doctor would only put me on this 1, Because of b/p. And also because i am awaiting a pacemaker. Due to low pulse. He said it would help me. Thanks again Enjoy your weekend BRIAN

Nottobad profile image
Nottobad

I have been on relvar Ellipta 92/22 for over two year and find it very good. But didn’t find it maid me more breathless when I first went on it. It’s a preventer inhaler so should be taken one puff daily. When taking it you have to take a deep breath in and hold your breath for as long as you can. A lot of people don’t do this so they are not getting the full benefit of the medication . Only stop taking it when told by your gp.

Bingo88 profile image
Bingo88 in reply toNottobad

Yes will check with the gp in the week Nottobad. Hope you have a good weekend BRIAN

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