NIVI Mask

[Joseph260268]

NIVI Mask, good morning everyone since August lasts year I have worn overnight a NIVI Mask to combat my C02 build up and help reduce it. I generally put my mask on around 9pm and I can tolerate it till around 3.30am within that time period my Oxygen is reduced from 4 Ltrs to 1 Ltr. Can I ask does anyone wear their mask throughout the day instead of overnight? Or do the majority of us wear them just at bedtime?

All your comments will be gratefully welcomed.

Thanks

Joe Rogan

[2greys]

Generally speaking the build up of co2 will be caused by shallow breathing whilst sleeping. When you are awake breathing tends to be a lot deeper (or should be) which expels the co2 much better. No personal experience, just logical.

[Joseph260268 in reply to 2greys]

Thank you. x

[micktheknife]

Overnight for me (or if I need a disco nap in the afternoon 😊)

My equipment supplies 2lt/min constant overnight and with my VPAP machine my O2 and CO2 is now mostly under control

[Joseph260268 in reply to micktheknife]

Thank you for getting back to me.

[Spacecat1]

my breathing playing up during the day the nurse said I could use it but must be worn at night wear it a night. My problem waking with yucky gung round my lips and it makes my mouth so dry have tried everything

[Joseph260268 in reply to Spacecat1]

Thank you.

[kiaman]

Hi there i be using a niv machine for nearly 5 years now and have found that is has been a great improvement in my health before i used to be tossing and turning coughing spulttering near all night but since i had the machine it cooled dwn abit i tend to wear it when ever i go to bed to rest even in the daytime and i keep it on when i am having bad days and cant get out of bed its like a bloody second wife (lol) but if u feel u are tired and need to rest or lie dwn during the day i would use it anyway take care

[Joseph260268 in reply to kiaman]

Thank you for your reply. x

[Grandmatojack]

I’ve been on NIV for about 3years now and it has made my life so much better. Was in and out of hospital every few weeks with high carbon dioxide levels. I was told to use my machine for at least 18 hours a day. I have a full mask for when I sleep and one that just goes over my nose for when I’m awake. I have even got a nippy now which is a portable machine so I can get out a bit in the wheelchair. I would use the mask whenever you had a sleep even if it’s during the day. I think your tolerance to the mask tends to take time but you get there in the end. Sorry for rabbiting on. Good luck.

[Joseph260268 in reply to Grandmatojack]

Thank you. x

[ScouseTaffy]

Hi Jo,

I've had it explained there's no value using the machine unless going to sleep as it kicks in when I dont breathe often enough?

Cheers Scouse

[Joseph260268 in reply to ScouseTaffy]

Thank you so much for replying. x

[jabber]

Hi Joseph, I'm another long term user of NIV for CO2 retention, so speak from 10 years experience of several different face masks. When I first started using the NIV my physio suggested wearing it during the day for a short time just to get used to the feel of it and breathing with it. But she emphasised that it really should be used whilst sleeping because, as 2greys says, breathing is so much shallower when you sleep.

So now I tend to put the mask on as soon as I get into bed, though I read for a while to relax before sleeping. I have no problems wearing it for anything up to 10 hours if I have an early night and sleep that long. My mask is now this one: eu-pap.co.uk/sleepweaver-an... It's not pretty but it's the most comfortable I've tried. Southampton Respiratory Unit have been brilliant in letting me sample several over the years, and I'm really grateful to them.

Someone mentioned dry mouth, which seems to go with any mask and for that I use a hydrator that was suggested when I asked the forum for advice years ago. hydrateforhealth.co.uk The cloth mask is good for this because it's easy to briefly lift it to take a drink, without having to sit up and take the mask right off. I can practically do it in my sleep!

Sorry this is a long one, but I hope it's helpful.

All the best, Jan

edited because I muffed the links - sorry

[Joseph260268 in reply to jabber]

Thank you.

[Hidden]

Can I ask you what happens when the co2 builds up through the night is it because you are on oxygen

[Joseph260268 in reply to Hidden]

Hi there, I like other people seem to retain C02 within my body. The oxygen helps me through out the day on 4lpm but overnight I change it down to 1lom when wearing my NIVI Mask.