Well recived results of urine test and blood test AND my immunoglobulin’s are low again AND my vitamin D as vanished.
Even tho my vitamin D had vanished I could not get them on prescription.
I think it’s bad when your results say you need it but have to 💰
Yet more things NHS are cutting back on.
Anyway results are ... tests need repeating SO have to submit other urine sample Looking for benice jones proteins and repeated immunoglobulin test.
What is good news is the more people talk about the more is known .. when I first looked up IGM antibodies issues WAS not much on NET ... but now when search this lots of new information research.
I am having similar with my test from PH centre have found even though I am on Iron tabs it has dropped again Plus my HB so asked my GP to look into it and all they would do was have another Blood test. They are not keen on scripting iron either?
It has been noted that PH and it's treatment can drop the iron levels Hench why they put me on iron before my new tabs but they are more surprised about my HB results?
I am asked all the time what O2 I am on at home but when I say none they just shrug their shoulders. They are now doing tests to see if it is a genetic PH but not done any on my family but they do not know why I have the PH?
I’ve been researching this for ages having had a year of repeated infections and I can’t even get my gp to send me for an X-ray or a scan. This is a very important topic and the results of your tests will I imagine dramatically change your meds?
Good luck.
You’ve promoted me to phone the BLF for advice this morning as I have just started yet another flare up.
Best wishes Hope you improve very quickly and feel better for the Xmas season.
Hi thanks for reply HERE is interesting video defo worth a watch as explanes about route of infection and antibodies youtu.be/IjYnE_viknA
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