Trimbow

[nannyx6]

Feeling a bit low been on this new Trimbow for nearly two months and found it so good for my breathing BUT i am having side affects i think from it for about 2 weeks i have got bad sinus and blocked up nose on one side plus no sense of smell or taste dry mouth, i read leaflet and it says 1 in 100 people get this trust me to be one of the 100, i have had antibiotics had hay fever tabs but nothing is touching it so my resp nurse taking me off it what a shame, hope it clears up because it is driving me mad as not good with oxygen 24/7 and i love my food lol!! anybody else had problems ???

[Damon1864 Volunteer]

Hi nannyx6 I am on Trimbow and I have been fine. What a shame you have one of the side effects. It works brilliantly, hope you find something that works for you. Love Bernadette 😳 xx

[nannyx6 in reply to Damon1864]

well all i can hope is that its not Trimbow if it clears then have to accept it!! found Trimbow so good as my chest has been so clear

[Dedalus]

Shame you suffered from side effects. You say it helped with your breathing - did you find it helped with inflammation?

[nannyx6 in reply to Dedalus]

Yes i do not cough as much and my breathing so much better , the only way i can see if this stuffed up nose and loss of smell and taste is to come off and see if it clears

[Dedalus in reply to nannyx6]

Hope coming off it sorts out your problems and that you find a good replacement which works. Please keep us updated x

[greatauntali]

I am sorry to hear that you had side effects especially when it was working. I was hoping to be changed to it but now I am having doubts.

[nannyx6 in reply to greatauntali]

Everybody is different please try it has been good the last few weeks been on it and Tbh might not even be the Trimbow x

[shadow4me]

I have been on Trimbo a few weeks i thought it was helping me but im beginning to think i was wrong and im going to ask to try trelegy if possible x

[nannyx6 in reply to shadow4me]

Yes me to a few weeks, why are you thinking of coming off ?

not heard of Trelegy is this new ??

[Fennella02 in reply to nannyx6]

I’m due to start Trelegy. It’s basically Anoro plus a steroid so it works in the same way but has different drugs with similar actions. Its 1 puff once daily which I prefer. It’s also a powder. I have found Anoro highly tolerable but possibly it’s onset of action is more gradual over a 24 hour period.

[shadow4me in reply to nannyx6]

I thought it was helping but i was on steroids at the time now im not on them im finding i keep feeling sick bad stomach stuffy and my breathing is no better i tjink trelegy is another new one i read some good reports but to be honest i dont think inhalers do me any favours xx

[nannyx6]

Will keep you updated on what happens and what they put me on the resp nurses not heard of Trelegy had to look it up so i know it wont be this, dont care what it is long as it helps and i can taste and smell food again lol thanks everyone

[shadow4me in reply to nannyx6]

I think maybe its American and i jumped the gun x

[nannyx6]

No its in UK as well its another new one on the market! i saw resp nurse and she said see how i get on with meds i am going to be given then they will transfer me over to Trelegy so you haven't jumped the gun