I was originally diagnosed with "just" COPD by my GP practice respiratory nurse last year, but further lung function tests very recently showed that I do have a combination of Asthma and COPD, which was diagnosed by a consultant.
I have been on Trimbow for just a few days. I think it is helping with my breathing but it makes me feel very jittery and anxious.
ALUK suggested that I tried just one puff instead of two, but that felt like it wasn't enough for the breathing side.
They have also suggested that I try taking the two puffs an hour apart to see if that helps. Has anyone tried that?
My follow up with the consultant isn't until 29th August so any advice or thoughts would be appreciated.
Written by
emmjay77
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Welcome to the forum. I can't help with your query because I've never been prescribed Trimbow, but I found the ALUK nurses' advice very helpful when I consulted them, so I'd be inclined to try their suggestion.
Hi,I use Trimbow now for a few years and I cannot go without it. I had about the same problems when I first started to use the medicine but after a while they all disappeared.
When I started Trimbow I was told it takes 4 weeks to properly work. I have asthma and IPF and it works very well. I never have to use Ventolin anymore. I havent had any side effects with it.
Hi, I have taken Trimbow for over a year now, it took awhile to take affect but I also take alongside it, Clenil Modulite, Montelukast and Uniphyllin for my asthma too. It would be worth a try with what the ALUK nurses have said and see how you go introducing it that way or if you are able to persevere, you may begin to notice it working better.
As with all medication some suit us and some don't.
Commiserations on receiving your diagnosis it’s a bit pants is t it ?
I have a bit to say…..I have been living with Asthma-COPD now for 21 years
1) What experience does your practice nurse have with respiratory conditions ? Do they have additional experience in helping patients to manage their condition ? Hmmmm ?
2) Having Asthma in the treatment equation makes the co- condition more difficult to manage day to day and in the long term. Both conditions need to be treated properly.
3) Have you been offered a treatment plan + support to learn about the condition by this practice nurse or your GP ?
4) Do you know why you have been referred to see a consultant ( which is great ) ie is there some thing else they are querying ? Most 90% of respiratory patients are managed by their GP even though they are referred to consultants now and again.
I have never been prescribed Trimbow. About 8 years ago I was given Trelegy but it didn’t keep me well. I was then prescribed Relvar and Incruse which definitely works better for me. I now take the higher dose Relvar and use a Salbutamol inhaler as a reliever. It can take a bit of time to get meds right.
While you wait to see the consultant can I suggest that you speak to one the specialist nurses on the helpline at Asthma Ling UK they are very helpful and then make a list of questions that you might have for the consultant when you see them.
I agree re your queries on the GP’s roles and expertise, if anything like mine they don’t sort out management plans and even follow up’s are not diarised by the practice..left to the patient to remember and contact about. My partner missed two important post cancer op blood tests due to this..dangerous!
Pleased you agree… after years of experience I learnt, educated myself, see myself as an active partner in my own care and let the professionals know that I have a reasonable idea of what I (think) I know and that often changes their attitude towards their relationship with me.
I think that this is not necessarily because sometimes I know more than them but because I am invested and care about what happens to me. I prefer not be a passive recipient in the management of the treatment and care.
In a cabinet in my home ,in a health file is a notebook going back years. I write in there questions I need answers to during appointments and note the answers I get- otherwise I would never remember everything.
Agree. I always take notes with me. Sometimes I take typed written bullet points which I give to me doctor. They are used to it now. Out of 5 consultants only 2 objects. Bella
hi to you l am on trimbow and have been on it for about a couple of years ...try to continue it has stated ...your body has to get use to it first and that is why you are feeling jittery ect but if it continues see you copd nurse ..good luck and take care
I'm on Trimbow and after two years, it is still making me very jittery - it's almost like having bad panic attacks - it wears of after a few hours, but puts me off having any morning appointments. For some reason, the evening dose is not so bad.
makes me feel jittery for about two hours , I ve tried taking each dose hour apart but still don’t like the stuff so I end up just having one puff morning and another at 4 pm. I’m going to ask for my old inhaler back or try something new .
The Trimbow seems to wear off quickly as well even when I take the two recommended doses.
I'm a bit late with this but I could have written exactly the same post as you, symptom wise and I also got prescribed Trimbow a couple of weeks ago.
I tremble for a couple of hours after using it, I had to warn my family in case they thought that it was something worse! I also had the same after using my blue inhaler and I was told by the nurse that it's the active ingredients that open up your airways so I'm guessing it's the same stuff in Trimbow and not the steriod element.
Personally I would be worried that I might forget the second dose an hour later and only notice when I became more breathless but if you give it a go, then please let us know how you get on? I could always set an alarm on my phone...
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Asthma? COPD.
Asthma and COPD or both???
asthma or copd
COPD.
Copd diagnosis 5 years ago now diagnosed with asthma as well 
