Struggling with Diet & Steriods.

[mattcass]

Hi Guys, Hope you all are well or as can be, The problem I have is with my waistline I go to the Gym for 3 Easylife classess in 3 different areas and go to m own Gym 5 times a week plus my 5k walks 4 times a week everyone thinks i am training for Beijing, I am still on 25mgs steroids daily no more exceptions which is acceptable by the transplant team in Newcastle all this is for to strengnth the top half off my body as it will take a bit off a beating when I get the operation, I am open to discusions the dieteticians are so similar to what I am doing A low carb diet. Mattcass

[sassy59]

Wow Matt you are certainly keeping fit which is great but it's not easy to lose weight on 25mg if steroids. Pete is on 5mg now and hopeless!

I hope that you do well with your waistline and everything else too. Love to you and Fran. Xxxxx

[sibkev]

ive just gone through tplant they wanted me down to 15 mgs for op i found that drinking lots of water with meals helped with weight i lost 10 stone for op if you need to know anything about transplant and how it feels after ill gladly tell you also suger free jelly was a god send fills you up and tastes bostin

[mattcass in reply to sibkev]

Hi Sibkev, Thank You Everything is fine it's just the waistline and it would be great if I could ask you several but not personal thing about your Op.Matt

[sibkev in reply to mattcass]

you can ask me anything you like im only to pleased to help other peaple who are in the place i was . go for it its not the scary op everyone thinks it is

[mattcass in reply to sibkev]

The first question is how long were you on the active list and what oxygen were you on, I was hit with Rheumatoid Arthritis in the lungs in 2013 which took away half my lung space and more I had two visits to the big man upstairs within two weeks bad Infections in fact i hour from meeting him, I was sent home to die as one dip in my lungs was goodnight Vienna.But after watching my family going through this twice i made the decision I would make it to the transplant level after being told this would never happen, I have proved everyone wrong I even got back to work even after I was retired.I have to say goodnight as my hands are so sore with my RA i will carry on with my story tomorrow. Matt

[sibkev in reply to mattcass]

i went onto list oct 2015 i had 3 offers of tplant all failed on tests ie gas transfer one had copd the other had infections i got tpland on the 11 03 2106 my oxygen was 13 ltr a min they gave me 4 month in jan 2016 one thing i wiil advise you keep walking training it helps so much after tplant i look forwrd to more questions pal plz ill answer anything if it helps

[mattcass in reply to sibkev]

Again thanks for your reply, Everyone thinks I'm training for the next Olympics and it feels like it, My transplant team said the average calls to you before it happens it 4 times the record is 18 my hat off to that person, I have spoken to 2/3 locals who have also had the op but their stories sorry events were so far apart I need maybe you and one other, All it's in my mind is waking up and seeing my wife Fran and my Son Mark and start a new part of my life. In fact my previous would be a best seller Now that's a thought, Talk to you later away to the Gym then my 5K walk.Matt

[sibkev in reply to mattcass]

all i can say is walk walk walk train train it all helps recovery now im waiting for ya next question im sure you have a few i know i did but i had no one to ask . today at the q.e. they asked me to talk to peaple on list to answer their questions and fears im only to glad to do it i know what having no one to ask is like

[mattcass in reply to sibkev]

Hi Pal, I have spoken to several people who all gave different version's when they woke up and Met their Familie, One insisted on two bacon rolls and in fact makes it sound just like another day, I just want to wake up and look into Fran & Marks eyes and say lets go.Matt

[sibkev in reply to mattcass]

when i woke i was spoken to by a nurse that you cant pay enough id got 2 tube in my mouth she keeps you calm i waited 1 hr for it to be removed all was fine be sore breathing was just brill i went in for op at 330 am fri morn and woke sat 0505 they gave me drinks then breaky came and yep bacon butty got done pal it true one nurse gave me baby pillow its two towels in pillow case and you hold it to chest when you cough i then asked for tv to watch six nation rugby and they sorted it for me 10 am me mate turned up 10 05 me wife turned up when ya in icu you get one to one care nurse is at bottom of bed all day and all night changing drugs feeding etc i was out after 2 days and onto wards had my first shower on my own 3 days with 2 chest drains in its not that bad mate they gave me a list of pain meds i chose paracetamol 2 4 time a day it only hurt to push up off bed but you have to lie on back for 6 weeks so chest can knit proper

[mattcass in reply to sibkev]

I would hope my op goes as good as yours but I am having a torrid time with my RA 24/7 constant pain I will reply when my hands are better,Matt

[Hidden]

I can tell you that my wife was over wait at the beginning of this year but now she has lost a lot and she do not stop she walks every were .no she did not diet all she done is have one small meal a day and in the night she will have 4 thin slices of water melon and that is it she do not use her pumps any more her blood lever is 7 and she looks a lot better as well she has asmar and she is dietbetes so if it is you got to loss wight try it

[mattcass in reply to Hidden]

Hi David Thank You.matt

[knitter]

Hi Mattcass, the steroids have given me a jelly belly and a round face....the rest is skinny.

[piping in reply to knitter]

that is me.