hi folks. just joined need advice for... - Lung Conditions C...

Lung Conditions Community Forum

56,315 members66,940 posts

hi folks. just joined need advice for disability

jimboye profile image
12 Replies

hi folks i have just joined and need advice on disability alowance from the gov and what i have to do i can only walk about 50 mtres before having to rest for breath.

Written by
jimboye profile image
jimboye
To view profiles and participate in discussions please or .
12 Replies
stone-UK profile image
stone-UK

Hi

If you are under 65 typePIP in search box

If you are over 65 type AA in search box

You can also check for any other benefits you may be entitled to by using the benefits checker.

gov.uk/

katieoxo60 profile image
katieoxo60

Hi Jimboye, welcome to the site, best to follow Stones link below. If you go to the disability site you will find all the info you need. There are even calculators for some benefits OK.

james1512 profile image
james1512

Hi good luck if your applying for pip. I can only walk about 18 metre s and I am. Waiting for a full lung transplant. I applied for pip 2 years ago. And was turned down. I appealed the decision. And again was turnd down evern after my consultant wrote to them telling them how server my condition is. I Am now awaiting a court date as I have taken it to tribunal. I hope you have better luck then me. And let me know how you get on please

Jan_m profile image
Jan_m in reply tojames1512

Omg James this is unbelievable and you see so many who are awarded pip who don't really need it, I know I know a few!! I hope you are successful. Good luck and take care Jan x

onamission profile image
onamission in reply tojames1512

Hi James i have said so many times people with lung problems should be awarded PIP without having to go through all this, this system does not work and needs changing. I saw on the news that people who no longer living in the UK are still being paid PIP, DLA and ESA it makes my blood boil so lets hope when they makes cuts they do so with these people

Kookie85 profile image
Kookie85

You must say your breathless, when getting up from a chair .and the effort of walking makes your breathing a lot worse . Good luck

Nanny1086 profile image
Nanny1086

When I applied for attendance allowance for my father many years ago ( I know it's all changed ) I was told by my GP that when I fill in the forms for my father ,,,,to think of how he is on the worst days and stick to that ,,,,don't make comments like,,,,,,but on good day he can,,,,,etc etc ,hope this helps good look ,

Offcut profile image
Offcut

If you are at working age then you could apply for ESA and PIP. The new PIP rules state 20 metres walking without severe discomfort. I would advise you speak to CAB or Age UK if you are over 50. Most of the time it is the way you tell them of your conditions and affects that lose you the benefit. We tend to big ourselves up when talking to people we do not know and that loses points. I took a big long look at what I can and cannot do and also when I need to do these things. I was amazed how many aids I actually use for my day to day living that I have picked up over time. It was stated that I did not use a walking stick even though I supplied letters stating that a walking stick would be damaging to my compression fractures in my back as would a hand propelled wheel chair.

Be Well

FarmerD profile image
FarmerD

I talked to the C.A.B. And they helped fill in the form.I made a diary of one day in my life ,how long everything took with a break to get my breathing back under control.I waited 8 months for interview but awarded enhanced rate for care and mobility,it was also back dated.They say waiting times have been cut so let us know how you get on.I have very severe emphysema Fev1 20%. Good luck.D.

Jan_m profile image
Jan_m

Posted my pip forms back today had help from CAB to fill them in,

Biddy_ALUK profile image
Biddy_ALUKPartnerBritish Lung Foundation

Good afternoon everyone,

Just a reminder that if you want any advice on benefits and support, Carol and I are here to help, on the Helpline.

Please give either of us a call on 0300 030 555.

Thanks, and have a good afternoon,

Biddy

stillmovin profile image
stillmovin in reply toBiddy_ALUK

Hello Biddy - I havent got any actual dates yet but am expecting to be reappraised this summer for ESA benefits and I would appreciate your advice on that and PIP (no dates yet for that either but it is likely to come as well I am quite sure of it). It is a constant source of anxiety for me and I cannot seem to get any help from local CAB offices or Age UK (I am 54) or any other disability organisations online. They don't like to get involved with ESA benefits cases. I just need advice on how to fill out the complex assessment form that will probably be sent to me this August (I was told that by the DWP) and then the actual face-to-face assessment if that follows the form assessment. Can I contact you? The last time I left a message about this subject no-one at BLF called me back. Thanks so much. stillmovin1

Not what you're looking for?

You may also like...

Hi, Just recently joined you folks.

Hi I,m 72 live in Devon and was diagnosed in 2006 although i believe i had COPD a few years before...
ivyleaf profile image

Hi all , just joined and need advice.

Hello Fellow COPD sufferers I hope you're all managing your symptoms the best you can. I myself...

Just joined, seeking advice...

Can anyone help? I have degenerative arthritis. New symptoms have developed. These include pins and...
Boone09 profile image

hi just joined this site

hi everyone ive neva dun anything like this bfor so please bear with me ...i had tb 3n ahalf yrs...

hi folks

when you were diogonesed with c o p d how does your family hubby wife ect do they find it a chore...
becraftygirl profile image

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.