Shortness of breath at the start of the day.

[Fennella02]

Hi. I am a slim 47 year old mum. I have longstanding mild Lupus with some non-specific respiratory issues (small airway narrowing, some shadows - [tree in bud]on lungs from old infections and weak respiratory muscles). No asthma. I have Flutiform & Eklira inhalers. Heart, kidneys, BP etc checked out and in good shape.

I am noticing that I am most short of breath in the mornings, particularly first thing and I wonder if this is usual? I am at my best in the middle of the day before beginning to tire later on. I wonder if this is a sign that I am working hard to breathe through the night or whether it is the exertion of getting up and moving around?

Is this something that others experience too? Many thanks.

[Bevvy]

I sleep in more up right position to help my breathing. Wondered if that would help you? Got a wedge from Amazon for bed.

My breathing gets worse as day goes on. I THINK this is due to effort of just getting through the day?!

[Fennella02 in reply to Bevvy]

Thanks Bevvy. If I can work out how to prop up one side of a king size bed, I'll give it a go! My GP suggested more pillows but, when my muscles are tired, there is too much weight on my ribs which makes things worse. All the best. C

[Bevvy in reply to Fennella02]

You can try putting catalogues underneath mattress.... I still prefer bed wedge though. They DO take few nights to get used to. I also have V shaped pillow. So am comfy as possible. Might also be worth a try?

[sassy59]

My daughter-in-law has lupus and is 35. I do wonder what may happen to her in the future and it is a worry. I am sorry I cannot help with your question but do wish you well and hope that Bevvy's reply can be of more help to you. take care xxxx

[Fennella02 in reply to sassy59]

Try not to worry. Lupus doesn't necessarily get worse. Periods of remission are well documented and the drugs get better all the time. It is an unpredictable condition that can affect daily life but, after 25 years, I have 3 children, little serious damage and have controlled it mainly by minimising stress, keeping active regardless of fatigue or joint pain/swelling and being determined that I will remain in charge. I hope she remains well and thank you for your reply. C x

[sassy59 in reply to Fennella02]

Thank you for your kind and re-assuring words Clareb. Take care. xx