Pirfenidone: Just finished my first... - Lung Conditions C...

Lung Conditions Community Forum

55,729 members66,376 posts

Pirfenidone

Sooki profile image
3 Replies

Just finished my first week,no adverse reactions,just more sleepy than usual.However took 2 this morning as now on second week,can hardly stay awake,has anyone else found they are tired,what's your reactions to this drug anyone else out there taking it.thanks.

Written by
Sooki profile image
Sooki
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Toci profile image
Toci

NICE published guidance on this in April.

nice.org.uk/nicemedia/live/...

Baldie profile image
Baldie

I had trial of this but couldn't get on with it. I would advise be very careful to be sure to reapply sun block to your hands every time you wash them. I know it's not quite so important this time of year but the resulting rash if you don't is quite horrifying. Thousands of little blisters each with their very own each.

I wish luck and hope they work. Are you upto the nine a day yet?

esgatch profile image
esgatch

I was curious about taking the Pirfenidone regiment. It eventually becomes 2400mg per day and costs over $500 a month.

Not what you're looking for?

You may also like...

Pirfenidone.

Just received a letter from hospital telling me they are now using a cheaper manufacturer of...

carbocisteined 375 mg,

carbocisteined 375mg & had a bad reaction with diarrhea, has this happened to anyone else & is it a...

Bronchiestasis exacerbation

from no energy and just wanting to sleep all day and feel really down , does anyone else ever feel...

Has anyone had a bad reaction to Clarithromycin Antibiotics

very ill, 3 weeks after finishing the 7 day course of 500mg 2 a day one every 12hrs, Reaction Dizzy...

Spiriva respirmat and Fostair

the past 4 or 5 weeks I have been getting quite bad muscle abd joint pain. Has anyone else had this...