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Pirfenidone
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Pirfenidone.
Just received a letter from hospital telling me they are now using a cheaper manufacturer of
Pirfenidone
as the Roche licence has expired. We can only pray the cheaper version is as effective. 🙏🙏
Just received a letter from hospital telling me they are now using a cheaper manufacturer of
Pirfenidone
as the Roche licence has expired. We can only pray the cheaper version is as effective. 🙏🙏
Mrbojangles
in
Lung Conditions Community Forum
4 months ago
Newbie with IPF
I have been told I might be able to start on
Pirfenidone
if my liver settles down in a few weeks or so. Has anyone else had this and how have you found to side effects of
Pirfenidone
. Many thanks Hazel
I have been told I might be able to start on
Pirfenidone
if my liver settles down in a few weeks or so. Has anyone else had this and how have you found to side effects of
Pirfenidone
. Many thanks Hazel
Hazel-mary
in
Living with Interstitial Lung Disease (ILD)
7 months ago
New Member - Progressive Pulmonary Fibrosis
She's about to start on
Pirfenidone
, finally! Took forever to get insurance to approve it. I'll keep you posted on how it goes. We are all taking a 2 week cruise to Hawaii in a month (my husband's 93 year old Dad as well), so we hope she's adjusted to the drug by then. (You only live once.)
She's about to start on
Pirfenidone
, finally! Took forever to get insurance to approve it. I'll keep you posted on how it goes. We are all taking a 2 week cruise to Hawaii in a month (my husband's 93 year old Dad as well), so we hope she's adjusted to the drug by then. (You only live once.)
Aerobics-Instructor
in
Living with Interstitial Lung Disease (ILD)
6 months ago
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Pirfenidone side effects
I’ve been on Nintedanib for some time now but may be offered a switch to
Pirfenidone
when I next speak to my consultant. Has anyone had any side effects from
Pirfenidone
& how bad are they?
I’ve been on Nintedanib for some time now but may be offered a switch to
Pirfenidone
when I next speak to my consultant. Has anyone had any side effects from
Pirfenidone
& how bad are they?
Bee61
in
Living with Interstitial Lung Disease (ILD)
1 year ago
Pirfenidone side effects
Anyone with experience of taking
Pirfenidone
have any advice on the side effects?
Anyone with experience of taking
Pirfenidone
have any advice on the side effects?
Bee61
in
Lung Conditions Community Forum
1 year ago
The best of three evils: Which medication will cause me least grief?
APO-Mycophenolate, Esbriet (
Pirfenidone
), or Ofev (nintedanib). I unfortunately eat grapefruit for breakfast! Taking mycophenolate during a pandemic, seems foolhardy, and who is to say when the next pandemic will occur. I have a choice NOT to take this drug.
APO-Mycophenolate, Esbriet (
Pirfenidone
), or Ofev (nintedanib). I unfortunately eat grapefruit for breakfast! Taking mycophenolate during a pandemic, seems foolhardy, and who is to say when the next pandemic will occur. I have a choice NOT to take this drug.
Sclero_99
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Pleased to report the lump has left the building...👍👍
Anyway, starting the Nintedinab soon as i opted for this over the
Pirfenidone
for various reasons but mainly due to the skin photosensitivity risk as this once ginger bap ( now white) only has to say the word Sun and i’m like a beetroot.
Anyway, starting the Nintedinab soon as i opted for this over the
Pirfenidone
for various reasons but mainly due to the skin photosensitivity risk as this once ginger bap ( now white) only has to say the word Sun and i’m like a beetroot.
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Pirfenidone
i have ipf and is about to start taking
pirfenidone
can you get sun screen on priscription
i have ipf and is about to start taking
pirfenidone
can you get sun screen on priscription
treval1946
in
Lung Conditions Community Forum
2 years ago
Pirfenidone
Have just had my
Pirfenidone
delivered, I seem to recall a nurse telling me that I have to use factor 50 sun protector because of skin sensitivity. Anyone have any advice on this. Max
Have just had my
Pirfenidone
delivered, I seem to recall a nurse telling me that I have to use factor 50 sun protector because of skin sensitivity. Anyone have any advice on this. Max
Maxiem
in
Lung Conditions Community Forum
3 years ago
Pirfenidone
Have just been prescribed this drug for my copd/fibrosis has anyone tried it? Thanks Max
Have just been prescribed this drug for my copd/fibrosis has anyone tried it? Thanks Max
Maxiem
in
Lung Conditions Community Forum
3 years ago
Pirfenidone
Have now been prescribed
pirfenidone
anyone tried this and has it helped?
Have now been prescribed
pirfenidone
anyone tried this and has it helped?
Maxiem
in
COPD Friends
3 years ago
IPF drugs
Which drug is best tolerated for IPF,
Pirfenidone
or Nintedanib ? Any comments or personal experiences?
Which drug is best tolerated for IPF,
Pirfenidone
or Nintedanib ? Any comments or personal experiences?
1l0vecrumble
in
Lung Conditions Community Forum
3 years ago
Pirfenidone
Has anyone been prescribed
Pirfenidone
and if so what was the impact of the medication?
Has anyone been prescribed
Pirfenidone
and if so what was the impact of the medication?
dangrade
in
Lung Conditions Community Forum
3 years ago
“Disease Flare” in lung cancer
He was on a clinical trial of
Pirfenidone
pills (9 per day) and Alimta/Carbo, then down to
Pirfenidone
and Alimta maintenance for stable disease.
He was on a clinical trial of
Pirfenidone
pills (9 per day) and Alimta/Carbo, then down to
Pirfenidone
and Alimta maintenance for stable disease.
Lisam81
in
Lung Cancer Support
4 years ago
ILD now classed as IPF
Am due to start
Pirfenidone
in next few days. Is anyone else taking it? How are you finding it? My head is all over the place too. I am becoming quite panicky, waking during night feeling like I am suffocating but really imagining it. How do you guys cope? Any advice gratefully received. H.
Am due to start
Pirfenidone
in next few days. Is anyone else taking it? How are you finding it? My head is all over the place too. I am becoming quite panicky, waking during night feeling like I am suffocating but really imagining it. How do you guys cope? Any advice gratefully received. H.
Helsbells1
in
Lung Conditions Community Forum
4 years ago
Adding radiation to chemo or not?
Stay on chemo and stable or stay on chemo and radiate all 4 tumor sites and gamble that it just may work in his favor for NED in the long run and come off
Pirfenidone
in clinical trial. Any help would be most appreciated!!!
Stay on chemo and stable or stay on chemo and radiate all 4 tumor sites and gamble that it just may work in his favor for NED in the long run and come off
Pirfenidone
in clinical trial. Any help would be most appreciated!!!
Lisam81
in
Lung Cancer Support
5 years ago
Dad having severe SOB after 1 Alimta maintenance infusion
Prior to this recent setback, he was noticing aggravated SOB within hours of taking the
Pirfenidone
, which he takes 3 pills 3 x a day.
Pirfenidone
may be helping the chemo (oncologist said it works as a form of immunotherapy) or hurting his lungs and SOB - we just don’t know what’s happening.
Prior to this recent setback, he was noticing aggravated SOB within hours of taking the
Pirfenidone
, which he takes 3 pills 3 x a day.
Pirfenidone
may be helping the chemo (oncologist said it works as a form of immunotherapy) or hurting his lungs and SOB - we just don’t know what’s happening.
Lisam81
in
Lung Cancer Support
5 years ago
IPF questions
Hi, can anyone help with the following :- Has anyone experienced bad side affects with
pirfenidone
, Really bad fatigue, could not increase medication as it put me to my bed.
Hi, can anyone help with the following :- Has anyone experienced bad side affects with
pirfenidone
, Really bad fatigue, could not increase medication as it put me to my bed.
Tattyoldgit
in
Lung Conditions Community Forum
5 years ago
IPF Meds
Unable to take
Pirfenidone
due to it causing sickness,so tried Nintedanib at 100mg ok for a week then sickness again,don't what to do.I feel that the way the medicine makes me feel that it's not worth continuing with them anymore,and I should just try to get on with life.Has anyone had the same problem
Unable to take
Pirfenidone
due to it causing sickness,so tried Nintedanib at 100mg ok for a week then sickness again,don't what to do.I feel that the way the medicine makes me feel that it's not worth continuing with them anymore,and I should just try to get on with life.Has anyone had the same problem
iain123
in
Lung Conditions Community Forum
5 years ago
PIRFENIDONE
CanI ask if anyone is taking Pirfendone for IPF, and if so, how soon does one begin to feel any improvement ? Thank you Wendy.
CanI ask if anyone is taking Pirfendone for IPF, and if so, how soon does one begin to feel any improvement ? Thank you Wendy.
Joneswm
in
Lung Conditions Community Forum
5 years ago
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