It's been a while since I posted on my DIY asthma engineering projects here.
Some background: I've been on Xolair for 7 months now, and I am gradually gaining confidence to walk and drive 1-2 hrs from where I live, without checking the location of the nearest hospitals along the way. I still sleep in a HEPA/charcoal filtered air tent (DIY). I manage to get some exercise on my stationary bike: I breathe through a DIY ventilator that blows HEPA/charcoal/humidified/warmed air into a mask. Been tapering down steroids from 20 mg to 5 mg a day, and just checked my cortisol levels. They say 170 nM (correct units?) which they are happy with. Managed to lose 4 kilos in 2 months -- it's slow going, I hope I can stick to it -- I have 12 kilos to go to my pre-sickness weight.
Another news is that my wife and I are driving across the Channel next month -- my first attempt at international travel since the pandemic. I intend to wear an FFP3 mask everywhere, but hotels have always been a problem -- odors, dust, carpets etc -- and sleeping in a respirator just does not work for me (tried that many times). So I built a HEPA/charcoal air purifier which is more portable than what I have at home. It's not tiny, but it fits into my car and can be rolled into a hotel room (weights about 20 kg). It's all stainless steel and aluminium (regular air purifiers are made of plastic which itself has a smell). It blows clean air into a small treking tent (Sea to Summit 2-person) through a 150mm flexible duct which packs small, too. The tent is small enough to be set up in a hotel room -- on the bed, or next to it. It also can be run from a battery and an inverter (about 100W), so I can potentially use it on camp sites as well. Picture of the air purifier is attached.