Nuelin - Theophylline: Does anyone else... - Asthma Community ...

Asthma Community Forum

22,474 members24,862 posts

Nuelin - Theophylline

7 Replies

Does anyone else take this? What are the most common side effects? If I shake taking symbicort are my shakes likely to get worse? Should I be asking my GP about blood tests when i go and see him, the consultant never mentioned anything but I read in the leaflet that comes with the medication that they might want to check potassium levels.

Beth

Read more about...
7 Replies

Hi Beth, it doesn't usually cause low potassium in normal doses, so unlikely to need bloods done. If you eat plenty of fruit then your potassium should be fine. As for side effects, the most likely is nausea and vomiting - that usually settles down after a few days, usually just feel a wee bit sick, likely to be a lot less bad than erythromycin which is nasty! I don't think it makes the shakes any worse, cos it acts in a different way. You might notice your heart feels like it is beating faster, but again that usually settles itself. Oh, and headache when you start it, but that lasts a few hours at most.

Hope it works for you.

Love sarah

Aminophylline / theophylline

Hi Beth

There have been quite a few threads on the various brands of aminophylline and theophylline in the past, I've brought a few of them to the top for you. I think side effect wise it makes little difference for most people what brand you're on, although some people seem to find one better than another.

Side effect wise, it's a vastly variable feast. Some suffer to the extent that they have to stop taking it, others barely notice it. Most people find though, that the side effects are worst initially and wear off a bit after a week or so, so hang in there if you do get side effects!

Myself, I take theophylline (Uniphyllin) and I find I get mild nausea first thing in the morning, and yes, it's not a well documented side effect but it does seem to make my shakes worse. Other than that, I don't get much in the way of side effects, unless my levels go toxic, and then I really know about it, with relentless nausea and vomiting and a pounding headache (imagine the worst hangover you've ever had, and multiply it...).

The toxic dose is close to the treatment dose, so your doctor may want to do blood tests to monitor your levels whilst you're being established on it. It's also very much affected by other medications including several antibiotics and things like St John's Wort, so be careful what other meds you take at the same time and always remind your doctor and pharmacist that you're on it! Occasionally, even some foods can alter the levels, but that's rare.

I've probably worried you even more now! Honestly, for a lot of people this drug is no great problem... I've been on it for over 10 years and have rarely had problems. Best of all, for me it's a total wonder drug and keeps me well better than any other... when my levels go low I know about it!

I hope you get on alright with it and remember to go back and hastle your doctor if you have any problems or the side effects get too much!

Take care

Em H

i dont no if this is just a kids side effect but michael had huge behavural probs on the neullin - he was totally out of control. it was much worse within the first 2 hours of a freash dose, he stopped the neullin 3 weeks ago cos his behaviour and mood swings were so bad that the cons decided that hed be better of without it!

bump

theophylline

hiya

yes you my should get your blood tested as my levels all of the blue went to a toxic level and I was vomiting - in the end decided to stop this med as the side effects were worse than the benefits

have you tried Singular (montelask) this seems to help without the side effects

Neuline -Theophylline

Hi I take Phyllocontin which is another version of Aminophyhlline and the only problem I have is if I take the doses too close together (usually if I've been out and forgotten to take to before leaving home). I then end up with a massive headache and nausea. I think you are supposed to have blood tests once a year to check that the blood levels are at the correct amount and not at a toxic level

Neuline -Theophylline

Hi I take Phyllocontin which is another version of Aminophyhlline and the only problem I have is if I take the doses too close together (usually if I've been out and forgotten to take to before leaving home). I then end up with a massive headache and nausea. I think you are supposed to have blood tests once a year to check that the blood levels are at the correct amount and not at a toxic level

Not what you're looking for?

You may also like...

Theophylline

Hey all Saw my consultant this morning and he decided to start me on theophylline very much as a...

theophylline absorption

when i was admitted to costa the other day the docs said that my theo levels were virtually nil but...

Theophylline

Does anyone know if you are ok to drive when taking Theophylline? I should have asked my asthma...

Theophylline

Hi Everyone! I've been put on Theophylline to see if I get any relief from the breathlessness etc....

Theophylline

Hello I have my medication review next week and we’re discussing switching Montelukast for...
SilentAsthma profile image

Moderation team

See all
Homely2 profile image
Homely2Administrator
ALUK_Nurses profile image
ALUK_NursesAdministrator
Lysistrata profile image
LysistrataAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.