I’d scared I’m going to dye in my sleep

[Kitawny]

A few years ago they found a hole in my heart. Since then it’s been patched up and things were rocky. I started having palpitations and chest pain and I’d go to the er and they’d just send me home saying it was anxiety. I would regularly check my blood pressure and it would be high like 140/90. I informed my doctors but they said my machine must be off because my blood pressure was fine every time I was in the clinic. As of my last echo a few days ago my left atrium is severely dialated and I’m so scared I’m going to have a heart attack or stroke in my sleep and die . Idk who to talk to about this no one Ever seems to believe me . Im just scared

[Hidden]

Hey, dear. I'm sorry you're going through this. I can't relate to your health issues but my heart goes out to you, and I didn't want to have seen this post and just scroll by. This does sound very scary..it's worse that you feel alone. Some health insurance plans have a 24 hour nurse line where they encourage you to talk about your symptoms. Maybe see if you have one available to you.

[Hidden]

I had a hole and ablation several years ago. It took a long time to come back from it. I also have neurological damage. CNS miss reads signals or just sends wrong responses out to my body. Really loves to mess with my heart. I understand your fears and frustration. I was born with the hole and it 50 years and right Dr to find it. It helps if you can figure out triggers and make it happen when at Dr. I also used to keep a detailed log and showed that. I am better but still deal with CNS issues. I will 🙏 for you.

[Hidden]

Sorry to hear your going thru a tough time. Having health issues is scary but have you tried to get opinions from other cardiologists. And see what they have to say or can do. It’s always ok to get different opinions if you don’t feel comfortable or safe. I understand cuz I had a PE in 2001 while pregnant and ever since my whole life has changed and I live in constant fear of having another one. Even tho I’m on blood thinners for the rest of my life I still get scared. Hope all goes well 🫶🏻

[Kitawny in reply to Hidden]

I’ve gotten at least 2 different cardiologists to say I don’t have hbp. The left atrial dialation is something we just found out about before the weekend so no one has had a chance to talk to me yet . Im just so frustrated and scared at this point. It doesn’t help that I have anxiety and obsessive thoughts. I just can’t seem to put it to the back of my mind until the doctors can get back to me

[Kitawny]

thank you everyone for your support and suggestions. I really appreciate . It’s comforting to know that I’m not alone

[Hidden in reply to Kitawny]

Let’s pray 🙏🏼 that you hear back asap !!