My son had to stop taking meds due to side effects and now he's sick

[ddsda]

Hello, my son is 22 years old and has high functioning autism in addition to anxiety and adhd. For years he's been on this combo of meds: seratraline, quetinpine and lamotrigine. Six months ago he started getting very sick, he was not able to empty his bladder and urine started backing up into his kidneys. Stumped doctors didn't know why (and were too lazy to try and find out). Eventually we went to a urologist who said the meds he was on have serious side effects to his urinary system. So he stopped taking him. Now he's short of breath, and has heart palpations, nauseous, dizzy and light headedness. He is unable to work and had to take leave of absence from his job. I don't know what to do. Does anyone else have experience with these type of symptoms? Are any of those meds safe to add back to his system?

[blackcat64013]

Hi,Thank you for your post and the concern for your son. There is not a lot to recommend in the way of medication until you can get a specialist referral to a psychiatrist who can do the prescribing from his expert knowledge after considering all of his medical conditions.

People have different chemistries so its hard even for the doctors to work out what's best but they are the experts.

Wishing you both the best 🐈‍⬛🦘

[Blueruth]

I definitely recognize dizziness and light headedness from lamictal. Also headaches and irritability. I have been on it so long I can’t get off it. I also craved sugar like crazy if that helps. It is also a drug that effects your liver. Of course everyone is different to some degree. I would tell his doctor and don’t accept when they say “it will pass”. If he can’t work he needs options. It is odd to just stop them at once. The pamphlet for lamictal does not recommend going cold turkey. You could check the other FDA paperwork or look on webmd.

[ddsda in reply to Blueruth]

He knows he shouldn’t have stopped them all at once, but he was almost unable to urinate and I thought he was going to die!

I was on Geodon for about 10 years….it is in the same class of drugs as lamictal. I tried to withdraw from it about 5 times with no success. While I was on it I was a zombie, made the condition so much worse. Finally I was able to stop and and eventually I was so much better.

Thank you for your reply, and best wishes to you and your journey

[Blueruth in reply to ddsda]

Yay for you! I tried last year. Bad experience. I cut those pills into 8ths. There has to be something in between cold turkey and pain. You said they aren’t even sure that is it? I do know there is no alternative to lamictal to use as replacement. Hope he can get help.

[Daveacr1959]

We can only suggest things that help us.. start his day with the Wim Hof guided breathing exercises free on you tube. Get 45 minutes of cardio exercise daily helps burn off steam and produce endorphins. Working his way down to cold water. Releases 5-6 chemicals in the brain. I do all the things I suggest. Besides take a beta blocker and klonopin.

[ddsda in reply to Daveacr1959]

Thank you, I’m going to try the Win Hoff method with him, I’ve already found some videos. I like to try natural remedies when I can

[Aspergirl47]

Hi...I am on the autism spectrum too...I was given setraline and diazepam for severe anxiety..was wondering what dosage they started your son on? Our systems are extremely sensitive and react badly to a normal dose that would be prescribed for non autistic people...I was experiencing terrible sweating episodes night and day . .wanted to eat sugar all day...I was told to stop immediately but was switched the same day to 5mg Escitalopram..bit concerning they would just stop his meds cold turkey....what your son is experiencing now will probably be side effects from just stopping his meds.....I would try to get him a calming drug ...I'm in Scotland so we have diazepam....best of luck to u both ...

[b1b1b1]

I would change doctors and try to get some seriously good specialists, including a very good psychiatrist and try to get to the bottom of what has happened and advice on the best way to move forward, both physically in terms of the urinary problem, and psychologically as to the autism issue.

[Pte82]

ddsda, vitamin B1 (thiamine) and magnesium are often depleted by the prescription drugs used by your son. Anti thiamine factors listed in the stuttersence link cause thiamine to be diminished or destroyed. Magnesium is needed to activate both thiamine and vitamin D. Activated thiamine and magnesium are critical for brain and vagus nerve function. The objectivenutrients highlights the vagus nerve's role with bladder function and it's reliance on thiamine. TTFD, Benfotiamine and Sulbutiamine are fat soluble thiamine forms offering good absorption through the blood brain barrier although water soluble forms can but at a slower and possible lower rate. Threonate magnesium may offer better blood brain barrier absorption than other forms. Please study it in addition to other forms. Thiamine and magnesium are needed to create ATP the energy currency of the cells. Research the symptoms your son is having with magnesium and thiamine to start with as a core and broaden it with the other vitamins and minerals especially boron. Always consult with his health care provider before using any supplement.

objectivenutrients.com/insi...

ncbi.nlm.nih.gov/pmc/articl...

stuttersense.blogspot.com/2...

frontiersin.org/articles/10...

krispin.com/magnes.html