vision

[Equinney]

have any of you had a sudden decrease in vision? I was better than 20/20 a year ago and now he can’t get me corrected enough with lenses to be worth it. Other than to get my right eye well enough to not be legally blind for driving. I’m being referred to a neuro-ophthalmologist to see what they can do.

[monkeybus]

It's always on my mind (to mis-quote Elvis).

Best I can describe is my vision is "blurry". Some days I need reading glasses, other days not.

We all know about demyelination of the optic nerve. That's the last f-ing thing thing I need on top of the spasms/spasticity/constipation/erectile dysfunction/spastic bladder/sleep disturbances, and that.

Hello Equinney, I been away from here for a long time. How are you doing?

[Equinney in reply to monkeybus]

Between all the “normal” AMN stuff, the compressed nerve in my spine causing major arm pain, divorce, and now all the vision issues. I won’t lie, I feel like I’m barely hanging on. At least I’m getting spinal steroid shot Monday. But the neuro-ophthalmologist doesn’t have an opening until Feb 7. So gonna be a fun wait for that one. My optometrist is concerned that my vision will keep regressing since it has done this in the last 3-4 months. Hopefully it won’t and that there’s some way they can get me improved. Feel like it may involve coke bottle lenses if anything. I’m sure those would help solidify the lonely hermit life.

[monkeybus in reply to Equinney]

There's "legally blind", and then there's blind. Friend of mine, her boyfriend had shocking vision, and that was with glasses. I read about us lot and blindness a good while back. I'll do another plug for 4-Aminopyridine.

Effect of 4-aminopyridine on vision in multiple sclerosis patients with optic neuropathy

pubmed.ncbi.nlm.nih.gov/236...

And this report in interesting as well:

4-Aminopyridine improves clinical signs in multiple sclerosis

pubmed.ncbi.nlm.nih.gov/243...

And this:

Altering neuronal circuitry with 4-aminopyridine for visual improvement in Leber's hereditary optic neuropathy (LHON)

pubmed.ncbi.nlm.nih.gov/349...

And this:

Effects of 4-aminopyridine in patients with multiple sclerosis

pubmed.ncbi.nlm.nih.gov/663...

Zero mentions of our disease, but so what? Ain't never stopped me from posting before.

What kind of light sources do you have in your house? I hate sitting in dim light. Spend a lot of my time in Asia, especially Japan, and I haven't met anyone yet without diabolical eyesight. All that study in dim lighting takes it's toll pretty quick.

What's the deal with your back? Steroids did nothing for my mother, in the end she had the radiofrequency ablation to kill the nerve pathways. Trouble is, now she is addicted to opiates. My own mother. I have met plenty of junkies in my time, getting money was their biggest worry. Not so, my old Ma. All free.

This is a stupid question. Why do you have a compressed nerve? Are you lined up for any surgery any time soon?

[Equinney in reply to monkeybus]

don’t know how exactly I wound up with the back issues, other than overexersion through the years. I have bone spurs, spinal stenosis, and the compression in a couple of areas. I keep being reminded by my neuro that I have to take it easy because it’s not just AMN and Addison’s I’m dealing with.

The lighting in the house is great, I’ve always used daylight bulbs and usually a pretty high wattage. I’ve always wanted to keep eye strain reduced, and reading, doing crafts, and all I needed the brighter lights.

I’ve looked at ordering 4-AP and just never have, mainly due to the cost here. My neuro tried to get my insurance to cover it, but they wouldn’t because I don’t have a diagnosis of MS. Ampyra was even going to cut $1000 off each month if insurance would cover it. Needless to say, my neuro had some choice words for the insurance company.

[3WheelWonder in reply to monkeybus]

always providing some levity and humor, thanks monkey. “Zero mentions of our disease, but so what? Ain't never stopped me from posting before.”

[nikolahn]

“Cerluten” can fix damaged brain tissue. My white brain region visible on MRI scan disappeared after taking Cerluten.