Check out my eye.

[monkeybus]

First I have my brain MRI, get a clean bill of health.

Then I go face down into a door frame, six stitches.

A week-ish later, I wake up to find this.

That's a subconjunctival hemorrhage. Nothing to worry about, says the eye doctor. Though the word hemorrhage doesn't exactly put my mind at ease. And, i look like one of the Walking Dead.

I have actually had several of these over the years, usually quite small, and quick to depart. This is the point where I say something like "likely nothing to do with AMN", though there are multiple things I have had along the way make me wonder, I've have posted about these things before, stuff like hiccups (every day, for the best part of a year), twitchy eye, migraines, and so on.

I am hoping this is the end of it.

[easygoin1]

Wow, that looks nasty! No pain hopefully!

[monkeybus in reply to easygoin1]

You'd think it'd hurt, just uncomfortable is all.

Brings it home, though. Just cos we hit the jackpot with AMN, doesn't stop plenty other things wrecking your health.

We should do a thread of "Other things that are wrong with me."

[monmon]

Sorry for that ☹️. Can I ask you more about your ‘twitchy eye’? My own has been diagnosed at Moorfields as SOM (Superior Oblique Myokymia) but - in spite SOM being also linked to nerve demyelination - the neuro-ophthalmologist is reluctant to link it to AMN. Both conditions being too rare to have any data he said... (the jackpot 🎰!)

[monkeybus in reply to monmon]

To be honest, my eye stopped twitching a year or so back. It always used to twitch around hay fever time and it started at the time my symptoms became aparrent. I'd say it is/was connected to AMN.

[tieaknot]

Yikes! You’ve had quite a run of it!

I had a patient who was sneezing a lot and blew a vessel like that right before her wedding. She wasn’t happy that there wasn’t much that could be done except photoshop.

Hope this is the end of your “excitement” for a while!

[monkeybus in reply to tieaknot]

Are you a doctor? If so, can you cure us?

[tieaknot in reply to monkeybus]

Ha! I wish! I used to work as a PA, many moons ago, never imagining I would be a professional patient instead of a provider. I took most of my classes with the med students though, and I honestly don’t recall even a portion of a single lecture about ALD.

I ended up doing my own research after multiple misdiagnoses (at top US hospitals) and asked to be tested based on my symptoms. Unfortunately I was right. (And right about a bunch of other unfortunate issues too). I’ve offered to return to the med school and do a talk on my experiences as well as ALD...only crickets. No interest. Oh well!

I haven’t worked in over 11 years so any of my comments or suggestions are NOT to be taken as medical advice ok? (Had to throw in that disclaimer, right?)

[Klorda]

Poor thing! It looks painful. Hope you heal quickly!

[Giuseppe_]

Hi Monkeybus!

I hope your eye is getting better every day.

I'm Josep from Spain, from time to time I suffer the twitchy eye, fortunatelly it only last a few hours, specially on the morning. The point is that I don't notice about the twitchy eye, it's other people who tell me... "Hey! You have a twitchy eye"

But in my opinion, the best we can do is to stay optimistic! I'm sure you have other skills you can be proud of.

Best wishes!