I am a AMN guy 56 years old and I hate baclofen use for our illness. Our illness is neurological and baclofen is a nero blocker, not what we need. It will cause urinary retention problems, walking problems and much more. Yes it will help you sleep and with pain in your legs by blocking the nerve signal but this pill has no brain and it will block many other signals that you don't want blocked.
Most AMN people will have some lesions on the brain and they are very seldom picked up by an MRI. What yours will do is unknown but I have seen a low fat diet and exercise do wonders. I have seen excess drinking and drug use destroy people with AMN also. I have also seen doctors medicate people with AMN to death also, they have nothing to treat the illness but they have many things that cover up the symptoms, like baclofen.
The medical establishment has been fighting over Lorenzo's oil and Mustard seed oil for more years than I can count but in my opinion normal long change fatty acids if better than abnormal.
People who have brain involvement are not retarded and many have partners who would find offense with that word.
This is really interesting about baclofen. I have been taking it for a little over a year for the spasticity, but had not fully realized other consequences. On most days, I only take about 20mg a day. Less if I'm not out and about.
As I know you are in NYC, there is a doctor I've seen who treats AMN patients in Patterson, NJ. She used to be at Bellevue in NY, but moved early this year - unfortunately! Anyway, she told me that oil is beneficial however one of her patients went overboard and gained too much weight! She takes canola oil by the spoonful several times a day, everyday! I don't know what the correct amount ought to be, but perhaps your doctor can tell you. However, based on what you stated above, you may need to proceed with caution!
I have been taking baclofen for a little over a year. I take the smallest amount I can get away with as I would be too sleepy otherwise! Besides daily physical therapy exercises, I stretch several times a day especially my calves. Before the physical therapy, I was losing my balance in everything I did (including tai chi) and every bag I carried was too heavy. Since then, I've regained most of my balance and I am able to lift my bags again!
Sorry, I did not see your post until now. I wrote about the canola oil because the doctor I went to see told me that story of another patient. I have not tried it and do not intend on trying it. The doctor only said it worked for that patient for mobility but the patient also gained weight from taking too much. I believe the patient was taking it directly by the spoonful. This is all I know of it. I don't have any more info on safety, etc, so you should consult your physician.
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