AMN EASIER
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Spinal cord stimulator

I was recently recommended for a spinal cord stimulator (SCS) implant, as I have failed all conservative pain management attempts (both pharmacological and non-pharmacological) for neuropathic pain. I found out earlier this week that I was approved for a four day trial, which is scheduled for 6/25/18. I have a friend with ankylosing spondylitis who had a SCS implanted last fall, and he said it has significantly helped with his spinal pain.

Has anyone on this forum had the trial or the surgery for the permanent SCS device? Can you think of any reasons why a person with AMN should not consider this device?

Cheers!

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Hi Aaron, I had a permanent one out in January 9th of this year. I had the trial in November and it was great. I went to a friends for Thanksgiving, she met me in the driveway as I got out of my car and said "what's wrong with you? you're walking better" we both laughed.

I've got a lot going on besides the AMN. I've also got CMT and 5 messed up discs in my lower back. since ive had the permenant one out in. the pain in my feet has decreased a lot, something no pain meds could do and my lower back pain is better.

for me it wasn't a cure all but the decrease in pain has been well worth it. I was expecting more pain relief but what I'm getting is ok and I've cut down on my pain meds.

a big plus is it has straightened my left foot out a lot when I walk it used to turn in about 45 degrees when I took a step. I told my neurologist after the surgery that I had it down and she said she didn't see any reason not to.

I get a lot of comments from people that I'm walking better, not good but better. if you have any questions I'll try to answer them for you.

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Thanks so much for the reply, deengo. I was not aware that this device could make your walking better, but if that is an added benefit, great!

You wrote that this really helps the pain in your feet - that sounds amazing. I've tried countless treatments for mine, and nothing has come close to touching it. If I'm able to get 50% pain relief, I would consider that a major win.

I have several questions for you, which might be best discussed over the phone. If you are willing, would you mind sending me a private message with your number? I have very little going on this upcoming week, so I could work around your schedule to call. You are in AZ, is that correct? I think that's one time zone ahead of me. It would be nice to chat! Thanks!

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Spinal cord stimulator? Sounds extreme, but just as extreme as a baclofen pump, or being on opiates or benzo's until you die.

I looked into SCS a while back, though for spasticity, not pain. I'd volunteer to see if it helps with that.

Electro medicine. It's coming back into vogue (slowly).

TENS works (for me) for both spasticity and some types of pain. I'm looking into where I can try PENS, no electrode pads, the current goes through accupuncture-type needles. Gets it right into the muscle.

I posted about cranial electro stimulation before. None of this is quackery. Any way a pain or spasm signal can be quietened has to be good, more so if it is non-pharmacalogical.

Some with Parkinsons receive deep brain stimulation. Compared to that, spinal cord stimulation is nothing at all.

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