Addison’s disease AMN and COQ10 : I have addison... - AMN EASIER

AMN EASIER

1,328 members1,190 posts

Addison’s disease AMN and COQ10

Abdallahomari79 profile image
3 Replies

I have addison’s disease since childhood. Is it ok to take COQ10. What dosage would anyone recommend daily. I am over 38 years old now

Written by
Abdallahomari79 profile image
Abdallahomari79
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Peteraf profile image
Peteraf

Assuming you are taking a cortisol steroid for your Addison, you are best to take up that question with your doctor.

DennyB profile image
DennyB

I'm 60 and have had Addison's since I was 13. I now have AMN, which I have had for the last 20 plus years. I now walk with 2 canes. I see that the COQ10 is available from health food stores. Like the previous reply said, keep taking your steriods and discuss it with your doctor. I would be interested to hear if you do start taking it and it helps.

Abdallahomari79 profile image
Abdallahomari79 in reply toDennyB

I started taking COQ10 it last year, but I was on oral Baclofen and it was really terrible I had to taper of it and stop it. Did your doctor give you Baclofen before? I don’t recommend it at all? My neurologist prescribed it for me last year and he told me to taper of it after a a few months. I was diagnosed with Addison’s disease at 8. I am 38 now. The doctor told me that COQ10 gives you energy and can help in stabilizing the situation somehow. I am doing fine with it but in a low dosage, around 60mg daily after breakfast. My spasticity is severe. I think Baclofen worsened my situation. I take 5 mg prednisone and 0.1 mg florinef in the morning and 2.5 mg prednisone in the evening

Not what you're looking for?

You may also like...

Is AMN degenerative disease?

By definition, it fits. However I don’t recall any scientists and researchers defining AMN in as a...
JasonHarnum profile image

AMN and Leukodystrophy

I've gotten more confused than ever! My metabolic specialist just told me I have AMN and I don't...
nan17 profile image

AMN carriers and more

I thought AMN was genetic I have 4 brothers and 2 sisters we were all tested and I am only female...
spalding profile image

AMN and marijuana / alcohol

Hello All, A friend of mine got diagnosed with AMN recently, I noticed that when he consumes...
diderot555 profile image

AMN and sense of smell

I really want to know how our illness affects our sense of smell? Neurodegenerative diseases such...
Intensor profile image

Moderation team

COwithAMN profile image
COwithAMNAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.