Translants have been going on for a long time but you are right the understanding of ALD to AMN needs a lot of work. AMN has had a few transplanted patients but not with any released outcomes. The research field is concentrating more on AMN now
According to our oncologist and neurologist, once the transplant is successful the enzyme will be there and therefore, there should be no further deterioration of the spinal cord or adrenal gland as well.
Mt son was transplanted at the Univ of MN in 1991. A successful sibling perfect match donor.. He is now 35 years old and doing well. Unfortunately nobody will know this as his doctor-Dr. Krivit passed away and since there has been little follow up. Until I reached out to inquire when I heard of BMT ALD boys having AMN later in life there was no contact to see how my son was doing. For this reason I hesitate to take studies to heart as I have not seen one that includes all boys or at least a majority from the beginning which would be the ones now old enough to experience AMN.
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