Multiple Sclerosis : Age of onset for multiple... - AMN EASIER

AMN EASIER

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Multiple Sclerosis

monkeybus profile image
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Age of onset for multiple sclerosis 'linked to distance from equator'

theguardian.com/society/201...

theguardian.com/society/201...

Absolutely nothing to do with our disease , but interesting nonetheless .

This is not news in the MS community , I was told this years ago.

I doubt one exists but I'd like to see a map of the worldwide distribution of our disease and severity of symptoms .

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monkeybus profile image
monkeybus
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bluejadedwho profile image
bluejadedwho

It definitely would be interesting to see this my friend I would agree. See if there's any correlation with location etc.

monkeybus profile image
monkeybus in reply to bluejadedwho

Keep meaning to do a post on epigenetics.

Women who were starved by the Nazis in Holland gave birth to smaller offspring, no surprise there, but these children went on to have small offspring , and on and on.

Myself and my brother have the same ABCD1 mutation , yet he is older and in much better condition than me.

But, my mother quit cigarettes when pregnant with him, yet she smoked heavily with me. Then again , I was a militant vegetarian most of my adult life , he wasnt.

Small sample size, but there is much more to this than a genetic mutation.

bluejadedwho profile image
bluejadedwho in reply to monkeybus

I definitely agree that there's much more to it. When I was on a vegan diet, I found that I actually got a lot worse. Now I'm following a Paleo diet which does not have any grain carbohydrates. Grains cause inflammation in the body and in many of diseases like ours inflammation is the big concern. I would highly recommend making a switch.

wilburlois15 profile image
wilburlois15

I'd think the problem you have doing something similar with AMN is the lack of specialists in this condition. I'd imagine many countries would be very under-represented.

monkeybus profile image
monkeybus in reply to wilburlois15

Indeed, most people with AMN likely don't even know they have it. If I hadn't got lucky with a free genetic test, I'd still believe I had HSP. I'd probably be happier as well.

Not that I'm particularly sad, but HSP is a slow grind, with fewer complications all around.

wilburlois15 profile image
wilburlois15 in reply to monkeybus

I was initially tentatively diagnosed with HSP until I had the VLCFA test. The outlook is probably better but HSP does feel a little like the "other" category where all people with peripheral neuropathy are placed unless there are good reasons to put them somewhere else (AMN, MS, etc). As a result, there is upside and downside: AMN is most likely worse but it is also a specific metabolic condition that has a known cause, which will probably [within or beyond my lifetime] see an effective cure or treatment. HSP probably not. As a person, HSP is probably easier to deal with. As someone with a scientific background, HSP diagnosis feels unsatisfactory.

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