I was diagnosed with AMN after my left kidney was removed when I was repairing HVAC. I was part of the Lorenzo's Oil study for about four years. I do not think it helped. After returning to college to get my BSEE I relocated from Il. to AZ. I was able to walk with a cane until 1994 and then I found the wheelchair easier. Over the last twenty years my legs gave got so thin, I can no longer stand. If I had known my legs would get so weak so fast, I would have tried to walk as long as I could. The spastic bladder is a problem; Botox helps. To this day I hit the gym three times per week and stay as active as I can.
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