Stress and AMN: When I was diagnosed my... - AMN EASIER

AMN EASIER
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Stress and AMN

deengo
deengo

When I was diagnosed my neurologist I had a very high stress job, that I loved.

my neurologist was adamant about me going in disability. which I did a year later. He said stress is bad for AMN and the symptoms will progress faster.

Have any of you heard this before?

I know when I do get stressed (but things not normal things) my legs are very weak and shaky and I cant walk.

I'm going through some stuff right now with my 16 y/o moving to his moms (1500 miles away). he's been with me since he was 2. I've worked hard to control the stress in my life and have done good with it but this is huge.

Does stress effect anyone else badly?

17 Replies
oldestnewest

Stress. Cannot walk. Makes my legs all wobbly.

Though, I am not talking about a high stress job or lifestyle. I am talking about an extremely stressful encounter, like a serious argument or physical danger.

I don't know about stress making symptoms progress faster, though it is a fact that low stress = a longer life. Nice bucolic life in the country. Not for me. Grimy East End of London.

I am semi retired (at 47). Nice, easy life. When I was working, it was regular 12 - 15 hour days. Stressful, but I didn't feel bad. Was on my feet a lot more, which has to be good.

Did your doctor recommend you give up your job?

deengo
deengo
in reply to monkeybus

sounds like the same symptoms I have with crazy high stress.

Yes, my doctor was the one pushing me to quit and go in disability.

Hi Deengo,

Stress definitely effects Addisons, I need extra Hydrocostisone if stressed! Also like emotional stress, when my father died I took extra! do you have adrenal insufficiency?

All the best

deengo
deengo
in reply to StevenSims

I don't have addison's. I get tested twice a year for morning cortisol and it has always been in range except for this last one. it was a little high

jolocny
jolocnyVolunteer

Hey deengo!

My symptoms came out due to the stress at my last job and has continued as stressors would come up in our home life. I’m now one of the few women that are extremely affected by AMN. Yes, each time I’ve had progression it follows a time when I’ve been through a terribly stressful event. I also have trouble walking, trouble moving my legs at all. I fall or almost fall often and that keeps everyone on edge.

So, I understand! Unfortunately, I haven’t always been able to recapture what I lost.

Take good care of you!!

I found that stress, even just normal every day stress advances my progression. Early on I took prescriptions for it almost every day but once I stopped working, 20 years ago my wife and I recognized the problem and have worked hard to reduce all stress by simplifying our lives. I don’t push myself into social or other situations I know will be hard or exhausting. I haven’t needed meds for a very long time. It’s a difficult life style change but I found it’s worth it.

So, it sounds like stress could be a factor when it comes to this disease. When I think about times I've been super stressed, not regular daily things, it really does effect me physically. I'm concerned about what I'm going through with my son have long term effects on me. I don't see an end to the situation anytime soon. I'll just pray that everything goes well for him.

Yes stress is a all-sort trigger. I can see it with myself and my mum (AMN) and my cousin (ALD). Your situation is not just crazy stressful but downright heartbreaking. And yet you’re doing the right thing, concentrating on what also matters the most, your son’s well-being. I believe that’s our only way to counter attack the 💩 = with our best 🌞 thoughts and actions (and I’m not even religious...) Take care X

Yes, stress does affect me. I was dealing with breast cancer these past 6 months and I was not walking well at all. I've finished radiation and I'm now on my way back to life pre-cancer. It's a weird thing. AMN was a more immediate concern for me during the whole time I was taking care of the cancer!

deengo
deengo
in reply to julie_

I'm so happy you're cancer free now. that's great. im sure it was a stressful time.

julie_
julie_
in reply to deengo

Thank you. I hope everything goes well for you and your son.

SongStream
SongStream
in reply to julie_

Julie, I'm so glad you are getting back to normal! Wonderful news and I'd be interested on how or if medical stress affected your AMN.

julie_
julie_
in reply to SongStream

Thanks Steve! The stress was having something else in my life that took away attention from dealing with the AMN symptoms in that I had to focus on healing and doing the right thing for cancer. I was concerned/stressed about how radiation therapy was affecting me, my nervous system, etc. I did not want to stress even more by researching since as we know we are all affected differently (of course, no one on the medical staff at the cancer center understood my other condition).

This is not to say that this was worse than what deengo or anyone else has dealt with, but it is the form of stress I have!

monkeybus
monkeybus
in reply to julie_

Just read this, julie_ .

I hope you are OK. Keep well.

julie_
julie_
in reply to monkeybus

Thanks, monkeybus. The link brought me to my profile page. Was there something else?

My doctor also advised against avoiding stress. I run into stress quite often in my job and do my best to overcome it. My walking goes all crazy like and my coworkers know when I'm bouncing off the walls, I'm not to be crossed haha

Stress damages your mitochondrial and produces oxidative stress. It's no wonder that it deeply affects us all. Personally, it creates havoc with my condition and alarmingly so (gait spasticity and balance).

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