Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!!
Here is my story. (sory for my english :))
Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation. My heart was broken, all my life turned around... it is so hard to discribe my emotions...I've always been happy and positive thinking everywhere try to see the good things, but how to live now ??? !!!
With our son's diagnosis became clear what exactly happens to my feet ... Two years ago I had herniated disc surgery and I thought my legs feeling cold and stiff in the morning is due to back surgery ... now I have already diagnosed with AMN. I'm confused, what should I do ... No one neurologist in Latvian here do not know anything about the disease.Medications I use is gabapentin against leg freezing. What else you could recommend me to do? Has anyone tried apitherapy or some alternative treatments?