Janeo

[janeo1]

Hi everyone can I ask if anyone on here has cfs & Menierres disease I'm not sure if my cfs is heading for Fybromyalga. I've had CFS for 21yrs I was 39 when I became I'll & I've had menierres 15yrs. Just wondering if anyone else has these & does one seem to trigger the other off, thanks for reading x

[merlin1967]

i have had the same patten first me cfs then menieres then fibromyalgia and rheumatoid arthritis i asked my gp to refer me to see if i had fibo and ruma they did a blood test to confirm antibodies fibo is more symptoms they diagnosed me with both

[janeo1 in reply to merlin1967]

Thanks for getting back merlin1967 how long ago did you get get the cfs & then the menierres, did they say why /how cfs started did you have to finish work with it. Mine started Feb 1996 I was 38yrs in full time employment with 4 sons age 6 to 18yrs. I can't go anywhere for day's weeks on end especially when they both kick in. I've more brain fog than ever now, but not coping very well, sick off my batteries running down &the only way I mend as I say is rest . When i try to do anything like hoover or pick my grandchildren up or a day out in town im in agony end of the day & worse still days after as though ive been weight lifting .My doctor has never done anything for me hes always said theres nothing he can do for me . How do you manage yours &do you see a specialist .Thankyou for reading merlin 1967 hope your not in too much pain or dizziness today &everyday x

[Admin_AFMCG Partner]

Welcome to the AFMCG Community janeo1 !

I hope you receive some answers to help you with the Menierres Disease, as I'm afraid I cannot help in this area as I have never experienced this myself. Can I provide you with links to the Menierres Society which may be of help, link below;

menieres.org.uk/information...

I would imagine though that any stress you experience from the Menierres (if any) may impact on Fibro/ME/CFS as all seem to worsen through stressful periods. Is there any way you could look at reducing any stress in your life possibly related to the Menierres to see whether this triggers the other conditions. Do keep us posted how you get on

I wondered if I could draw your attention to a post entitled 'How do I lock posts so only members of this community can read them?' as I see this post is not locked. All the information you need should you wish to lock it can be found in the post below;

healthunlocked.com/afmcguk/...

I wish you all the very best

Emma

[janeo1 in reply to Admin_AFMCG]

Thankyou Emma for the link above for Menierres disease &the lovely reply. I hope you're as well as can be &painfree.

I'm going to take a look now at the link thanks again lovee x