found this today. : just found this on... - Atrial Fibrillati...

Atrial Fibrillation Support

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found this today.

macymoo007 profile image
17 Replies

just found this on the British heart foundation page. Just what I need. Hope others can use

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macymoo007 profile image
macymoo007
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17 Replies
BobD profile image
BobDVolunteer

Don't forget our own helpline (AF Association) .

macymoo007 profile image
macymoo007 in reply toBobD

I’ve found this forum amazing bob. I feel so let down by the doctors in my case at the moment. The GP actually overlooked the letter from a consultant prescribing me flecainide. I chased them up yesterday but everything is done at a snails pace. I’ve been in af since Saturday. It’s not horrendous HR has been up to around 160 but I took extra bisoporol. It’s now around 85-100. I’d rather go to hell than go to A&E and to get a doctors appointment is weeks of a job. Ive no idea who ‘I’m under’ cardiology wise. The telephone app I had 3 weeks ago was shocking. Very blunt and couldn’t wait to get off the phone. I asked him if there was a ‘cardiac nurse’ I could speak to should the next episode occur. He said no, you’ve just got to sit it out’

Desanthony profile image
Desanthony

I have spoken to the BHF nurses a few times and the AFA helpline. Brilliant advice given and its sometimes good to have someone talk through a problem with you without the constrictions on time you get with GP's and consultants. Brilliant service.

Jay10 profile image
Jay10 in reply toDesanthony

I rang BHF nurse yesterday and spoke to a very caring helpful nurse. She reassured me and explained things so all good with me. Reason for call the helpline was because I had to have an emergency Cardioversion on Monday morning as I had very fast AF ((HR 140) overnight Sunday and my flecainide wouldnt stop it. Hence dr sent me to A&E!Its good to know that there is someone who you can get through to for advice.

Jackie

CDreamer profile image
CDreamer

Good post as the service helplines of both AFA & BHF are worth knowing about.

30912 profile image
30912

Thank you. Handy to know.

VimtoLover profile image
VimtoLover

Thank you for posting this. My doctor is good but like you say doesn't have the time to talk me through any fears/issues I have so this is a very good service. Thankyou for bringing this to our attention. This is a great forum which I find very helpful.

Ilovedogs12 profile image
Ilovedogs12

Thank you for sharing this, sometimes we need to speak directly to someone and these people should have specific knowledge that our GPs don't necessarily have.

Jajarunner profile image
Jajarunner

You can also call your arrhythmia nurses, if you are lucky enough to have them. Papworth's are awesome

macymoo007 profile image
macymoo007

no nothing I’m aware of. I asked the consultant and he wasn’t helpful at all

Ppiman profile image
Ppiman

Useful! Thank you.

Steve

Buzby62 profile image
Buzby62

Our contact form link is heartrhythmalliance.org/afa...

here is a similar link for the AF Association forum information healthunlocked.com/afassoci...

SamAdmin profile image
SamAdmin in reply toBuzby62

Dear Buzby62

Thank you for your message, we have edited your post to include the AF Association Patient Helpline. The Patient Services Team are here to help with any questions, concerns you may have.

To contact us please call: +44 1789 867 502

We hope to hear from you soon.

Kind regards

SamAdmin

Buzby62 profile image
Buzby62 in reply toSamAdmin

Hi Sam,

Why can’t we link to the BHF forum on HUL, I’m responding here as we all need to know. This whole post may as well be deleted as it doesn’t make sense now and it was really helpful as others have replied.

You also removed my tag to TracyAdmin

This seems a bit overkill on moderation to me.

Best wishes

Buzby62 profile image
Buzby62 in reply toBuzby62

Just to be clear, the reply above is not my reply. I added a link to the BHF forum “about” page but it would appear that is not allowed.

TracyAdmin profile image
TracyAdminPartner in reply toBuzby62

Thank you for your reply, our Admin team at the AF Association monitor the Forum on a daily basis, this is to ensure the Forum remains a safe and welcoming environment for all Members, therefore we strongly discourage any links to external articles\websites etc (please refer to our Forum rules available on the 'pinned posts')

Please feel free to share information privately with another Member if appropriate via the 'Chat' function rather than on the Forum.

If you have any specific questions relating to your condition, our patient services team are here to help, or alternatively, please see medical attention from a medical professional.

Thank you for your understanding.

TracyAdmin

Buzby62 profile image
Buzby62 in reply toTracyAdmin

Thanks Tracy for taking time to reply, it was an internal HUL link to another HUL forum which you can get to from the My hub button above and was just trying to make it easier for members less familiar with navigation of HUL (Healthunlocked).

Best wishes

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