found this today.

[macymoo007]

just found this on the British heart foundation page. Just what I need. Hope others can use

[BobD Volunteer]

Don't forget our own helpline (AF Association) .

[macymoo007 in reply to BobD]

I’ve found this forum amazing bob. I feel so let down by the doctors in my case at the moment. The GP actually overlooked the letter from a consultant prescribing me flecainide. I chased them up yesterday but everything is done at a snails pace. I’ve been in af since Saturday. It’s not horrendous HR has been up to around 160 but I took extra bisoporol. It’s now around 85-100. I’d rather go to hell than go to A&E and to get a doctors appointment is weeks of a job. Ive no idea who ‘I’m under’ cardiology wise. The telephone app I had 3 weeks ago was shocking. Very blunt and couldn’t wait to get off the phone. I asked him if there was a ‘cardiac nurse’ I could speak to should the next episode occur. He said no, you’ve just got to sit it out’

[Desanthony]

I have spoken to the BHF nurses a few times and the AFA helpline. Brilliant advice given and its sometimes good to have someone talk through a problem with you without the constrictions on time you get with GP's and consultants. Brilliant service.

[Jay10 in reply to Desanthony]

I rang BHF nurse yesterday and spoke to a very caring helpful nurse. She reassured me and explained things so all good with me. Reason for call the helpline was because I had to have an emergency Cardioversion on Monday morning as I had very fast AF ((HR 140) overnight Sunday and my flecainide wouldnt stop it. Hence dr sent me to A&E!Its good to know that there is someone who you can get through to for advice.

Jackie

[CDreamer]

Good post as the service helplines of both AFA & BHF are worth knowing about.

[30912]

Thank you. Handy to know.

[VimtoLover]

Thank you for posting this. My doctor is good but like you say doesn't have the time to talk me through any fears/issues I have so this is a very good service. Thankyou for bringing this to our attention. This is a great forum which I find very helpful.

[Ilovedogs12]

Thank you for sharing this, sometimes we need to speak directly to someone and these people should have specific knowledge that our GPs don't necessarily have.

[Jajarunner]

You can also call your arrhythmia nurses, if you are lucky enough to have them. Papworth's are awesome

[macymoo007]

no nothing I’m aware of. I asked the consultant and he wasn’t helpful at all

[Ppiman]

Useful! Thank you.

Steve

[Buzby62]

Our contact form link is heartrhythmalliance.org/afa...

here is a similar link for the AF Association forum information healthunlocked.com/afassoci...

[SamAdmin Administrator Arrhythmia Alliance AF Association in reply to Buzby62]

Dear Buzby62

Thank you for your message, we have edited your post to include the AF Association Patient Helpline. The Patient Services Team are here to help with any questions, concerns you may have.

To contact us please call: [phone]

We hope to hear from you soon.

Kind regards

SamAdmin

[Buzby62 in reply to SamAdmin]

Hi Sam,

Why can’t we link to the BHF forum on HUL, I’m responding here as we all need to know. This whole post may as well be deleted as it doesn’t make sense now and it was really helpful as others have replied.

You also removed my tag to TracyAdmin

This seems a bit overkill on moderation to me.

Best wishes

[Buzby62 in reply to Buzby62]

Just to be clear, the reply above is not my reply. I added a link to the BHF forum “about” page but it would appear that is not allowed.

[TracyAdmin Partner in reply to Buzby62]

Thank you for your reply, our Admin team at the AF Association monitor the Forum on a daily basis, this is to ensure the Forum remains a safe and welcoming environment for all Members, therefore we strongly discourage any links to external articles\websites etc (please refer to our Forum rules available on the 'pinned posts')

Please feel free to share information privately with another Member if appropriate via the 'Chat' function rather than on the Forum.

If you have any specific questions relating to your condition, our patient services team are here to help, or alternatively, please see medical attention from a medical professional.

Thank you for your understanding.

TracyAdmin

[Buzby62 in reply to TracyAdmin]

Thanks Tracy for taking time to reply, it was an internal HUL link to another HUL forum which you can get to from the My hub button above and was just trying to make it easier for members less familiar with navigation of HUL (Healthunlocked).

Best wishes