I am so glad I found this forum - Atrial Fibrillati...

Atrial Fibrillation Support

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I am so glad I found this forum

20 Replies

I have never joined any onIine sites before so this forum is my first and it’s brilliant - apart from all the useful information, it’s by turns informative , emotional , interesting, thought provoking,inspiring, carefully monitored, inclusive and just downright hilarious! And I have also learned about many useful aspects of the spiteful condition we are all dealing with. Not at all what I had expected! Thank you everybody!

20 Replies
jeanjeannie50 profile image
jeanjeannie50

It's great isn't it!

I think of everyone on here as my AF family. They're the only people who truly understand all the effects of AF. Feel I know them well, but there's so many I feel close to that I've never met.

We have had a few get together's in Devon, but unfortunately fate has prevented us from organising any recently.

Jean

Barb1 profile image
Barb1

Yes, totally agree. Every time I meet someone with AF, I recommend this Forum.

irene75359 profile image
irene75359

I agree with all your comments; I joined shortly after my AFib diagnosis and I read it every day and catch up later when I can't. I have dabbled in other forums where keyboard warriors rule, I backed off very quickly! Super bunch of people on here, though.

CDreamer profile image
CDreamer in reply toirene75359

What’s a keyboard Warrior? Love the name! I sort of imagine them in Nordic costume with horns on their helmets sitting at their keyboards ready to do battle and destroy the opposition and colonise the WWW. 😂😂😂😂

irene75359 profile image
irene75359 in reply toCDreamer

I like the term too! Usually (but not always) a meek quiet person who wouldn't say boo to a goose. However, at a key board and usually under a pseudonym, will rant and rage and resort to personal insults and threats. However, and sadly, there is a hard core of keyboard warriors and trolls (the dividing line can be blurred) who post utter filth and lies and who have no conscience.

ThinLizzy1 profile image
ThinLizzy1

This forum was the source of great reassurance at a low point for me. Common sense calm advice.

Aus19 profile image
Aus19

Wholeheartedly agree. Reading about other people's experience is very useful. I have learned so much here.

CDreamer profile image
CDreamer

Ditto to what Jean said. Glad it’s helping. You gotta have a bit of craic in your life, no matter what this miserable condition reduces you to!

X

hartbeast profile image
hartbeast in reply toCDreamer

Had to google “craic” - a new favorite word! I love that this forum teaches me new vocabulary along with all the other useful info 😂

CDreamer profile image
CDreamer in reply tohartbeast

Very Celtic. I blame the Irish.

wilsond profile image
wilsond

It is a fantastic forum,full of kindness coupled with a bit of fun and insights into how we can look after ourselves...many a time I have had far better advice here than anywhere.

As Jean said,it's hard for non members of the AF Club to understand, here we are among friends who do,and 24/7!

Xx

Visitingcat profile image
Visitingcat

Totally agree, it’s brilliant, lovely atmosphere.

I found it by searching “scared of cardioversion” and I really was scared, but by the time I went in for it I had read so much about peoples experiences and how it’s really not a big deal that I was completely calm about it.

I’ve learned so much and I’m very grateful to all the posters who share so much knowledge with us : )

I feel the same. Great group of caring people here💜

bassets profile image
bassets

Me too - I read the updates everyday and feel much calmer for it - thanks all :)

Madscientist16 profile image
Madscientist16

Right? Knowing I wasn't the only one having to deal with AF was comforting. I would have gone insane if not for this forum.

Lovetheoutdoors profile image
Lovetheoutdoors

I agree. Certainly helped me feel less anxious about this condition. Since diagnosis several friends have told me they have the same condition. I had myocarditis a month prior to my first af episode and still question if they are related. O n colchicine for the heart inflammation for 3 months, type of gout medication. I had vertebrae fracture, slip in shower, 3 years ago and had pain most days since yet since being on colchicine, not a twinge! On apaxaban for af and so far so good. But thanks everyone for support via this forum. Stay safe.

Yes me too! As a 35 year old busy mum.. I’m going through a very scary time with AF!! And I know nobody who had experienced it! This forum reassures me daily!! X

Ladypaula profile image
Ladypaula

I don't know what I would have done without this forum.

Like yourself I had never joined an online forum or group before.It was the best thing I ever did.

There is always lots of good reassuring advice from fellow sufferers.It has been a godsend for me .

Lovetheoutdoors profile image
Lovetheoutdoors

Yes it good to join all these positive people at a time when you're feeling vulnerable. People here more friends than most fb ones for sure!

actionteddy profile image
actionteddy

Hi yes I've only just joined and found it such a comfort to speak to fellow sufferers you realise you are not alone with this awfull thing April

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