Follow up to my aches : Blood test shows I... - AF Association

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Follow up to my aches

Vonnieruth
Vonnieruth
63 Replies

Blood test shows I have infection somewhere Ruled out arthritis but doctor thinks it could be polymyalgia rheumatics So I'm on steroids for a week then return to see him He will make appointment for me to visit rheumatilogy to get it confirmed More pills Could do with it all just going away Mind you I have got a new mattress on its way 😁

63 Replies
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jedimasterlincoln

Hope it helps! Any news on work?

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Vonnieruth

Not a thing Think it could be because I'm off again Will have to take sick note in and ask about 2 days holidays I have next week Was told last time I would have them cancelled with being off but I there won't be time to use them up before this year's start

Have you had your meeting with OT

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Buffafly

What mattress did you choose? Hope your problems can be sorted soon X

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Vonnieruth
Vonnieruth
in reply to Buffafly

One that's a comfy level lol

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Vonnieruth
Vonnieruth
in reply to Buffafly

Thanks buffafly How many knocks does a body take

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wilsond

Let's hope you are on the way up now..xxxx

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Vonnieruth

I hope so Wilsond Just seems to be a downward spiral I get so annoyed because my brain keeps thinking how I always do but my body isn't any more Next is to sort out work

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Buffafly
Buffafly
in reply to Vonnieruth

😖 I know.......

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Edm174

Hi vonnie !! Hope you feel better soon! I start my reduced hours from 1st April and I cannot wait !

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Vonnieruth
Vonnieruth
in reply to Edm174

Bet you can't You'll be a lady of leisure soon lol I'm off again untill I see doctor again have to wait for hospital appointment now

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Edm174
Edm174
in reply to Vonnieruth

Don’t blame you !!! This AFIB doesn’t help get so tired ! At hospital 28th see if they going to do this hybrid op ??

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Vonnieruth
Vonnieruth
in reply to Edm174

Oh what is that for Edm

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Edm174
Edm174
in reply to Vonnieruth

This AFIB I’ve never heard of it but nurse said they go in via your ribs ??? All sounds to scary to me !!! Will see what consultant says as you have to be suitable to have it done !!

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Vonnieruth
Vonnieruth
in reply to Edm174

Wow is it supposed to be a better procedure You must keep me upto date with how things go You could end up being the new Wonder woman lol

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Edm174
Edm174
in reply to Vonnieruth

I think so !! Wonder Woman 👩 I like that !!!

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Edm174
Edm174
in reply to Edm174

Hi vonnie just back from hospital not having any treatment just staying on bisoprosol and they told me to stop taking apixaban until I’m 65 ???

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Vonnieruth
Vonnieruth
in reply to Edm174

Wow really I tried the other day with gp to come off but no go Are you happy with their decision

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Edm174
Edm174
in reply to Vonnieruth

I’m not sure !!! She said I don’t need them as I got more chance of having a bleed then a stroke?? I don’t have high blood pressure or diabetes!!

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Vonnieruth
Vonnieruth
in reply to Edm174

That's good then I have blood pressure plus my age So looks like I'm stuck with mine

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Edm174
Edm174
in reply to Vonnieruth

Oh no !!! Only 4 years and I be back on them !!! are you back at work ?

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Vonnieruth
Vonnieruth
in reply to Edm174

Off again I had polymyalgia rheumatica been in steroids Back see doctor tomorrow I be lucky if I have a job left

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Edm174
Edm174
in reply to Vonnieruth

I hope you do vonnie!!!! I start my reduced hours next week ! If I had got my pension at 60 like i should have done! I would Retire

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Vonnieruth
Vonnieruth
in reply to Edm174

I would but I can't afford to It's hard on reduce hours already

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Edm174
Edm174
in reply to Vonnieruth

It’s not fair is it vonnie!! And I always think you work harder to try and prove you are not ill

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Vonnieruth
Vonnieruth
in reply to Edm174

Totally agree What with problems with my middle daughter also I wish I could disappear at times

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Edm174
Edm174
in reply to Vonnieruth

I bet you do !!!! Things will get better vonnie x

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Vonnieruth
Vonnieruth
in reply to Edm174

Good morning Hope you are feeling fine A foggy morning here Back to docs at 10 for me

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Edm174
Edm174
in reply to Vonnieruth

Morning vonnie what did the doctor say !!!

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Vonnieruth
Vonnieruth
in reply to Edm174

Two more weeks on steroids Back to work next week If 12 hour shifts too much go back see about another sick note Hopefully I can stop taking tabs in two weeks as I feel so much better now He did say condition may reoccur at some time and may send me for bone density scan

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Edm174
Edm174
in reply to Vonnieruth

Glad you feeling better 12 hour shifts is a lot to do !!!

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Molliemoxie

Have you joined back to 60 the group taken governmen to court

Or waspi campaigns

There's hope we will get our pension back to 60

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Vonnieruth

No I hadn't heard of it to be honest

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Molliemoxie

Its on face book

Back to 60 .com

There are lots of testimonials

Of how we are all 1950s ladies are suffering.

Have taken them to JR court

Hopeful we will win

Try it

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Vonnieruth
Vonnieruth
in reply to Edm174

Mind you it's less to pass the equipment if it's via ribs I guess Less pressure and time to

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Edm174
Edm174
in reply to Vonnieruth

Good point !! Not sure what they actually do but nurse said 6 months after the op you have the ablation but success rate quoted was 80% !

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Gladaven

Vonnie so sorry you are not 100% again, I am glad I am retired but I did work till I was 69 years old, Got so tired of young would - be bosses looking at me and talking to me as if I was something off the bottom of their shoe. My daughter has Raynauds ,numbness and pain in her wrist, leg everywhere ,dole insisting she fit for work but Not!! Hospital now testing for Lupus???. She' s sixty and like yourself prob has more qualifications than the lot of them put together sadly she keeps dropping things. Hope you get to see improvement soon ( don't let the B......... get you down) Cheers Gladie xxx 😈😬😡.

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Vonnieruth

To be honest I'm now not bothered really about work It hasn't been the same since I stood down from senior and went part time Friend who I went out with a lot no longer speaks much I feel I have been put on back burner I hope your daughter gets sorted real soon

Yvonne x

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Bagrat

Sorry something elase has popped up to aggravate you. Hope you can get stetoids taken before 2pm if possible 6pm at the latest as they can disturb sleep! Depends on dose of course. Good news id it is Polyarthralgia rheumatica they work very well.

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Vonnieruth
Vonnieruth
in reply to Bagrat

Steroids took at 6.30 this morning I don't sleep much any way due to all the aches I have Go back to see my doctor in a week Fingers crossed the tabs have helped

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Morzine

Oh dear you don’t need that piled on top ........Hope you get an appointment soon, it’s horrid all the waiting,

Sue

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Vonnieruth

Thanks Sue Hopefully the tabs will help

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Flyer2820

Hi Vonnieruth

You say your doctor thinks you have polymialgia rheumatic. My wife has it at the moment (she also had it several years ago). The doctor prescribed steroids both times and they work in hours. The first doctor described them as a miracle drug, AND THEY ARE. If it is polymialgia then the steroids will work very quickly, in my wife's case in hours. If it is rheumatoid arthritis, they will not work. With polymialgia, the stiffness and pain is usually worse in the morning and gets slightly easier towards the end of the day. As my wife currently has it and has had it before, I have researched it on Google and it follows the pattern as above. Hope this helps and the pain goes away.

Regards Flyer.

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Richos
Richos
in reply to Flyer2820

Hi do you know how polymialgia differs from fibromialgia? My partner has fibromialgia and it's permanent but it comes and goes. She gets flu symptoms, extreme hot and cold, aches and pains and feels exhausted.

Regards Richos

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Vonnieruth
Vonnieruth
in reply to Richos

I think polymyalgia can go within five years but can return There is good info on the internet

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Auriculaire
Auriculaire
in reply to Richos

Fibromyalgia tends to be a bit of a catch all diagnosis

when doctors do not really know the cause of the symptoms. Some people who have been diagnosed with fibro are actually suffering from fluoroquinolone toxicity ie they have been poisoned by a class of antibiotics which act in the body like chemo drugs giving a delayed reaction that neither the patient nor the doctor ever connect to the drug. Women are far more likely to be diagnosed with fibromyalgia than men and women are more likely to have been "floxed" due to Ciprofloxacin being a very popular treatment for UTI before being "unrecommended". I think anybody diagnosed with fibromyalgia should insist on trawling through their medical records to see if in the past they have been prescribed a fluoroquinolone antibiotic. There is no medical treatment for fluoroquinolone toxicity but there are alternative treatments which help some people but knowledge is key- never ever take this class of drugs again because once you have had a reaction any subsequent exposure will cause a worse reaction.

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Vonnieruth
Vonnieruth
in reply to Richos

Q: I’ve been diagnosed with polymyalgia. What is the distinction between polymyalgia and fibromyalgia? What is the treatment for polymyalgia?

A: I can certainly understand the confusion between fibromyalgia and polymyalgia; the names and, to an extent, the symptoms of both conditions are similar.

The word myalgia means pain within the muscles. Both fibromyalgia and polymyalgia are characterized by muscle pain, but many other aspects of the two conditions differ.

Polymyalgia, or polymyalgia rheumatica, is an inflammatory disease of muscle. The cause is uncertain but it is believed to be an autoimmune disease in which the body’s own immune system attacks the connective tissues. The primary symptoms are severe stiffness and pain in the muscles of the neck, shoulder and hip areas. People with this condition also may have flulike symptoms, including fever, weakness and weight loss, and approximately 15 percent develop a potentially dangerous condition called giant cell arteritis – an inflammation of the arteries that supply the head.

Fibromyalgia is not an inflammatory condition. It is caused by abnormal sensory processing in the central nervous system. People with fibromyalgia may be extremely sensitive to pain and other unpleasant sensations. To be diagnosed with fibromyalgia, one must experience pain on both sides of the body and in both the upper and lower half of the body. They are also typically tender points throughout their body. Other common symptoms of fibromyalgia include fatigue, difficulty sleeping and concentrating, irritable bowel syndrome and headaches.

Both fibromyalgia and polymyalgia are more common in women than men. Fibromyalgia can occur at any age, but polymyalgia rarely occurs before age 50. The average age of onset is 70. And whereas fibromyalgia is chronic, often lasting a lifetime, polymyalgia usually resolves itself within two years.

Treatment differs, too. Fibromyalgia is treated with exercise, relaxation techniques, analgesic medications and antidepressants to relieve pain and promote sleep. Treatment for polymyalgia is targeted at relieving inflammation. For some people, daily doses of NSAIDs, such as ibuprofen (Advil, Motrin), are sufficient, but more often corticosteroids, such as prednisone, are required to control inflammation.

Although your polymyalgia will eventually go away completely, it’s important that you be mindful – both now and after your disease resolves – of symptoms such as headaches and blurred vision, which could mean giant cell arteritis. If you develop arteritis, high doses of corticosteroids may be necessary to control the condition and prevent vision loss.

Daniel Clauw, MD

Hope this will help It's in simple English .Sorry but I don't agree with the next persons comment We are not medically trained and if we don't suffer from the condition who are we to tell a person we basically have been poisoned by medicine

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Richos
Richos
in reply to Vonnieruth

Yes thank you, very helpful.

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Flyer2820
Flyer2820
in reply to Richos

Hi Richos

Not sure of the answer to that question as I have only looked up Polymialgia, but as I said, Polymialgia is worse in the morning and all the muscles seem to lock up, making it awkward to get out of bed. My wife does not get flu type symptoms either, but she has to be on steroids for at least 10 months to 2 years. She had it before in 2010 but only had a ten day course of steroids then which worked within hours. Sorry I can't help you anymore. I would not like to give you duff information.

Regards Flyer.

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Vonnieruth

Hi Started tabs this morning Bloods ruled out arthritis Im bad in a morning eases during day a little but ache during the night At first I couldn't even roll over in bed Silly me have just worked my way through it doing 12 hour shifts With dementia.Knew i needed to see go when I struggled to bend or get out of bath Did wife go to hospital with hers and how is she now

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Hilly22

Sorry to come in so late Vonnie, I've only just seen your post.

I hope the new mattress helps ... I've got 2" of memory foam on my mattress and it's helped so much with my aches and pains. Now I hate sleeping in any bed that's not my own!

Good you've got a diagnosis, hopefully the steroids will work. Just sorry you're having so much trouble with your employers, I bet you wish you could tell them where to go :-)

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Vonnieruth
Vonnieruth
in reply to Hilly22

Sure do Hilly.Cannt wait for my mattress to be delivered How's things with you x

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Hilly22
Hilly22
in reply to Vonnieruth

I bet you can't 😊

To be honest I haven't been great. The cyst on my back is still painful and swollen even after a course of antibiotics, and I've had pain just under the skin around my waist which could be shingles, and niggling pain in the abdomen. If I went to the doctor I'd need to take a list and they hate that! Just hoping time will heal!

Bet you wish you'd never asked now 😂 x

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Vonnieruth
Vonnieruth
in reply to Hilly22

Aw Hilly What does hubby think Please do what's best for you Xx

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Hilly22
Hilly22
in reply to Vonnieruth

He thinks they should've removed the cyst years ago, but now they're saying I'd need a general anaesthetic and have to stop Apixaban for 5 days!! before the op. I'm going to wait and see if it goes on its own.

Hubby's given me the once over and can't feel any lumps or bumps in my tummy, and there's nothing to see, so if it's shingles it's a rare sort!

He's being very patient and kind which helps Soooo much.

Bless you, I'll go to the GP if it doesn't go away soon I promise xx

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Vonnieruth
Vonnieruth
in reply to Hilly22

Let me know how things go Hilly x

1 like
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doodle68

Result at last Vionnie :-) I hope you see a big improvement very soon..

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Vonnieruth
Vonnieruth
in reply to doodle68

Thank you Doodle Feeling better already Fingers crossed it continues Hope you get back into your walking X

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Lucydog

If its polymyalgia you will be on steroids for at least 2 years and then wean off slowly. My husband had it three years ago and is reducing down now. however you have to be very careful as he has days and weeks when the dose has to increase again as it flairs up all over again. Not good but slowly getting there? Just one question Did you by any chance have Sarcoidosis in your earlier years? I wonder if its associated as Hubby did.

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Vonnieruth
Vonnieruth
in reply to Lucydog

I didn't have that My gp just said that he didn't want me on steroids for long and go back in two weeks How was your husband diagnosed with the condition if I may ask

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Lucydog

More luck than judgement, nothing helped he was in so much pain and it was going to be 12 weeks before we saw a consultant. He was in a lot of pain on lots of pain killers which were making him hallucinate. Our Gp Thought it might be polymyalgia and tried the steroids and hey presto they helped so the the doctor said thats what it must be. However he now takes Levo for Thyroid, meds for AF and has a very slow heartbeat. Dont know if it was the steroids that did this or the polymyalgia. Sarcoidosis also wrecks your Lungs and heart muscles so could of been that. He is 65 and I constantly worry about him

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Vonnieruth
Vonnieruth
in reply to Lucydog

I was fine till I was diagnosed PAF last year I struggled doing 12 hour shifts for over 4weeks with pains in legs arms neck and stiffness In the end I went docs and blood tests showed infection It's a very painful thing I'm in serious trouble now at work with being off two weeks as I have already had written warning and I as not suppose to have any sickness before August

So does husband go to clinic at hospital for his condition or just his gp.Im 63 now and have no idea what happens next with this rheumatica thing

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Lucydog

He never got to the hospital the GP looked after him. He could hardly walk some days and if he did not push himself he would of been disabled now I am sure of it.

Surely work cannot sack you for being sick.

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Vonnieruth

Well guess I will soon find out I'm back in on Wednesday but I think it be someone from head office this time

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