I had my ablation on 25th March and just wanted to share how I’ve found the recovery so far.
In a word it’s been hard, both physically and mentally. Despite trying to keep my expectations low I think I expected too much from the ablation and from my body during recovery. Of course everyone is different and this has just been my experience.
My EP declared me virtually cured(90%) during the ablation and sent me home full of tentative hope. Unfortunately within 48 hours I was back in SVT, the episode lasted 4 hours and had much lower rates than I’m used to and didn’t descend into AFIB which hasn’t happened for over 12 years. (SVT is my trigger for Afib) so something had been altered by the ablation for sure but suddenly the hope of cure felt like it slipped away. Everyone reassured me it was a normal part of recovery and to rest and be patient and then I spoke with the EP and he assured me it wasn’t. I went on to have lots of little runs of SVT and started having ectopics too which was a new thing for me. I felt totally confused, an arrhythmia nurse said an SVT ablation is quick and easy to recover from and I should be fully back to normal by now, It was 8 days after the procedure. I didn’t feel well at all, my heart seemed very sensitive and worse than before. I rested to the point of ridiculousness but by the second week after another run of SVT I felt like I would never feel better and was regretting having the ablation.
My hospital lent me a Kardia that I can keep for 6 months so that I can catch the SVT the next time it happens, that has given me some comfort, knowing if it is still lingering at least I can catch it and make a plan with my EP.
At the end of the second week I decided that my heart would be well on its way to being healed and I felt like I should try and transition from rest to recovering. I have tried to do a bit more each day and gently push myself, my heart is incredibly sensitive and I’m getting used to the new way it reacts to things and trying not to be scared. I have had some really good days in the last week that have made me feel like there is light at the end of the tunnel but just when I feel like I’m turning a corner I can have a bad day with my heart just feeling off.
So that’s where I’m up to, I wish I was able to say I rested and then went back to normal feeling great but that’s not happening yet. I’m not sure if things will get better from here or if this is my new normal.
One of the hardest parts of the ablation for me has been just not knowing if it is truly gone, the 4 hour episode so soon afterwards really rocked me. I don’t know where I’m headed in terms of recovery, I don’t know if I’ve reached it yet or I’m still recovering. I’m trying to hold my nerve and stay positive. I’m trying to get used to my heart reacting in new ways without being scared. I’m trying not to feel disappointed.
So this is where I’m up to, sorry it’s not more positive but it really is still early days and I’ve had some really good days.
Onwards and upwards as they like to say around here 😊